Posts tagged: Hepatitis C Blood

Great News

Question:

Oh Elmo your the best!  Thanks for your continued support.  I was hoping this was excellent news and I knew you would level with me.  Hey if I am whipping this dragons butt, it will be well worth the rest of the time.  I have all my "ammunition" lined up for the next 44 weeks. Mags <elmoemer…@webtv.net> wrote in message

news:6488-43714364-285@storefull-3252.bay.webtv.net… – Hide quoted text — Show quoted text -> Fabulous!!  Exceptional!!  You couldn’t have gotten much better news! > That bodes VERY well for you, Mags.  Keep doing what you’re > doing….it’s working!  If you own a red pair of shoes, put em on and do > some dancing this evening.  Definitely celebrate! > Now all you have to do is get thru 44 more short weeks of therapy.  It’s > going to test you and wear on you, but because of your excellent news > this evening, you’ll have even more incentive to stay the course.  After > you finish dancing, tighten the strap on your space helmet and enjoy the > view out the starboard porthole.  Venus and Mars are alright tonight. > elmo > http://community.webtv.net/elmoemerson/DocElmosHepFile > http://community.webtv.net/elmoemerson/TheFamilyAlbum

Response:

Oh Bob – I am over the moon (hows that for an old broads expression lol). Don’t worry I will be sticking around here like glue :)  I can hardly wait until the end of the month to get my next results.  This study has double the advantages, free meds and loads of  blood work information.  What other tests should I be asking about??? Mags "cactus jammies" <cactusjamm…@hotmail.com> wrote in message

news:Swccf.190970$ir4.140296@edtnps90… – Hide quoted text — Show quoted text -> Hey Mags, good for you.  Hang on tight for the ride!  8-) > In my case, although my vl was not tested until after the 12th shot, my > weekly blood test liver enzymes (LFTs) went down pretty fast at the > beginning.  I started at 1.7 million and at week 12 I was 2,300 or > something, which is a 2.5 log drop. > Stick to the program, stick to this group.  It is a real help.  There are > a wide variety perspectives but it is all earnest.  The experience and > knowledge is here as well. > Best of luck, I will be looking forward to your messages! > CJ ————  Bob Mackie > YOU CAN BEAT THE DRAGON! grrrr…!!! > "mags" <chill…@rogers.com> wrote in message > news:YPadna8FLbEdsezenZ2dnUVZ_s6dnZ2d@rogers.com… >> Hello family of heppers!  I received a call today from the hospital.  The >> last time I was there I asked if my 4 week test results were in and they >> said that they didnt test viral loads until week 12 and 24.  Apparently >> because I am in the study they are checking my viral loads each time they >> draw blood.  Guess what?  I have gone from 1,000,000 viral load count to >> a 2 log drop at 4 weeks.  My viral load is 11,500.  They are very >> optimistic. Anyone else have this and successfully cleared? >> Mags >> dam  I am so happy!

Response:

I will be rooting for you all the way Van.  Stay close to the group! Mags "epson" <nu…@earthlink.com> wrote in message

news:Xns9708D6CEBA531vanlew@66.26.32.7… – Hide quoted text — Show quoted text -> "mags" <chill…@rogers.com> wrote in > news:YPadna8FLbEdsezenZ2dnUVZ_s6dnZ2d@rogers.com: >> Hello family of heppers!  I received a call today from the hospital. >> The last time I was there I asked if my 4 week test results were in >> and they said that they didnt test viral loads until week 12 and 24. >> Apparently because I am in the study they are checking my viral loads >> each time they draw blood.  Guess what?  I have gone from 1,000,000 >> viral load count to a 2 log drop at 4 weeks.  My viral load is 11,500. >>  They are very optimistic. Anyone else have this and successfully >> cleared? >> Mags >> dam  I am so happy! > Great News! That’s great for you and inspiring to others (like me) so > thanks for the good news. >  That gym is getting closer! > Van

Response:

On Wed, 09 Nov 2005 17:19:08 GMT, "cactus jammies" <cactusjamm…@hotmail.com> wrote: >aw gosh Gordo.  I am basically where I wanted to be about 14 months ago but >couldn’t be because of tx and hep C.  The finger cutting tango with the >table saw slowed down my rehab timetable.

[snipped] Geeze, I was wondering how you made out on that score. Hope the finger damage isn’t disabling, cj! I had my own argument with a radial arm saw, just two weeks after finishing tx. Kissed the blade with the fingernail side of my left hand middle finger while tapering a table leg. Didn’t hit bone, didn’t shorten the finger, but I sure cleaned that entire fingernail and the nailbed cells right off,  leaving what is best described as a square inch of human hamburger. It’s gonna look funky when it finally heals, that’s for sure. And if that wasn’t stoopid enough, three days later I convinced myself I could go back to working in my shop. Dumbass move. I promptly snagged the tube gauze bandage cover on my oscillating spindle sander. In a few milliseconds it yanked the entire bandage off my finger and wrapped it right around the threaded top of the spindle. Only dumb luck and stretchy type medical tape avoided an amputation. So it was three weeks of self-imposed exile to the "No Shop Penalty Box" until I had healed up enough to use a simple Band-Aid for protection. That also gave me time to let the tx fog lift considerably. Anyway….hope you’re healing up well! /greyhackles

Response:

Re: Great News   Group: alt.support.hepatitis-c Date: Wed, Nov 9, 2005, 6:43pm (CST+1) From: greyhack…@NOSPAMyahoo.com (greyhackles) On Wed, 09 Nov 2005 17:19:08 GMT, "cactus jammies" <cactusjamm…@hotmail.com> wrote:

aw gosh Gordo. I am basically where I wanted to be about 14 months ago but couldn’t be because of tx and hep C. The finger cutting tango with the table saw slowed down my rehab timetable. [snipped] Geeze, I was wondering how you made out on that score. Hope the finger damage isn’t disabling, cj! I had my own argument with a radial arm saw, just two weeks after finishing tx. Kissed the blade with the fingernail side of my left hand middle finger while tapering a table leg. Didn’t hit bone, didn’t shorten the finger, but I sure cleaned that entire fingernail and the nailbed cells right off, leaving what is best described as a square inch of human hamburger. It’s gonna look funky when it finally heals, that’s for sure. And if that wasn’t stoopid enough, three days later I convinced myself I could go back to working in my shop. Dumbass move. I promptly snagged the tube gauze bandage cover on my oscillating spindle sander. In a few milliseconds it yanked the entire bandage off my finger and wrapped it right around the threaded top of the spindle. Only dumb luck and stretchy type medical tape avoided an amputation. So it was three weeks of self-imposed exile to the "No Shop Penalty Box" until I had healed up enough to use a simple Band-Aid for protection. That also gave me time to let the tx fog lift considerably. Anyway….hope you’re healing up well! /greyhackles   ////////////// An old Chinese proverb:  Man who stick fingers in saw blades lose touch. You guys are cracking me up.  Playing with saws while under the influence.  My grandfather, father and brother all had table saws……and all of em are missing most or all of one finger.  I don’t own a table saw.  hehe elmo http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum

Response:

Thanks for the link Gordo.  I am hoping and praying that this is true. Mags "Gordo Mondragon" <ga_mondra…@yahoo.com> wrote in message

news:ga_mondragon-4C6E06.05194309112005@nycmny-nntp-rdr-03-ge1.rdc-nyc.rr.com… – Hide quoted text — Show quoted text -> Mags – > I am reading an article from 2003 on this site > http://www.hcvadvocate.org/news/reports/EASL-HCV.html > that says that a 2-log drop at 4-8 weeks is much better predictor of > success that the same response at 12 weeks.  I have to read it more > closely to see what the % improvement is. > Great news, then. > In article <3tctcqFqrn9…@individual.net>, "Thip" <m…@privacy.net> > wrote: >> "mags" <chill…@rogers.com> wrote in message >> news:YPadna8FLbEdsezenZ2dnUVZ_s6dnZ2d@rogers.com… >> > Hello family of heppers!  I received a call today from the hospital. >> > The >> > last time I was there I asked if my 4 week test results were in and >> > they >> > said that they didnt test viral loads until week 12 and 24.  Apparently >> > because I am in the study they are checking my viral loads each time >> > they >> > draw blood.  Guess what?  I have gone from 1,000,000 viral load count >> > to a >> > 2 log drop at 4 weeks.  My viral load is 11,500.  They are very >> > optimistic. Anyone else have this and successfully cleared? >> > Mags >> > dam  I am so happy! >> WOW!!!  Go mags!

Response:

Hey Thipper thanks so much!  I am guarded but positive. Mags "Thip" <m…@privacy.net> wrote in message

news:3tctcqFqrn9oU1@individual.net… – Hide quoted text — Show quoted text -> "mags" <chill…@rogers.com> wrote in message > news:YPadna8FLbEdsezenZ2dnUVZ_s6dnZ2d@rogers.com… >> Hello family of heppers!  I received a call today from the hospital.  The >> last time I was there I asked if my 4 week test results were in and they >> said that they didnt test viral loads until week 12 and 24.  Apparently >> because I am in the study they are checking my viral loads each time they >> draw blood.  Guess what?  I have gone from 1,000,000 viral load count to >> a 2 log drop at 4 weeks.  My viral load is 11,500.  They are very >> optimistic. Anyone else have this and successfully cleared? >> Mags >> dam  I am so happy! > WOW!!!  Go mags!

Response:

ROFLMAO – I am sure the whipping cream is key!  What is  "copies" and less than 10 – is it just a different way of saying what your viral load is?  I am too busy being self centered on my journey that I havent left that mind set to venture out to the real world of proper terminology!  I rely on the pro’s in here. Mags "kjoh" <kjohyay…@nospamyahoo.com> wrote in message

news:26cfb965469758eda17b82c7a581f8de@localhost.talkaboutsupport.com… – Hide quoted text — Show quoted text -> Mags Baby that is fabulous!  Also fabulous that you’re still working! > Must > be all that clean living and real whipped cream. I had an early viral drop > too, at week 12 from over 700,000 ‘copies’ to less than 10.  That is a > very good sign.  I’m writing up my latest data, will post it soon.  Keep > the posts coming, they’re important here. I’m sure alot of folks wait to > hear how you’re doing.  I do. > Smiles to ya > Kathy > 37/48

Response:

Oh Doug thanks so much!  Don’t know what I would do without this awesome group! Mags "Doug" <d…@adelphia.net> wrote in message

news:ptqdnTGWuO_qGezeRVn-hw@adelphia.com… – Hide quoted text — Show quoted text -> Mag’s,   I am rootin’ for you.   Doug > <elmoemer…@webtv.net> wrote in message > news:6487-437143DF-1056@storefull-3252.bay.webtv.net… >> Re: Great News >> Group: alt.support.hepatitis-c Date: Tue, Nov 8, 2005, 3:02pm (CST-2) >> From: birdsp…@gmail.com (pajaritaflora) >> mags wrote: >> Hello family of heppers! I received a call today from the hospital. The >> last time I was there I asked if my 4 week test results were in and they >> said that they didnt test viral loads until week 12 and 24. Apparently >> because I am in the study they are checking my viral loads each time >> they draw blood. Guess what? I have gone from 1,000,000 viral load count >> to a 2 log drop at 4 weeks. My viral load is 11,500. They are very >> optimistic. Anyone else have this and successfully cleared? >> Mags >> dam I am so happy! >> WOO HOO Mags! >> You are on the right track. >> I’ve got my fingers crossed for bouth of us. I was undetectable at 12 >> weeks…don’t know about week 4. >> one shot left for me. You will get there too! >> Mary Ann >> /////// >> WOO HOO and YOO HOO to you too, MA!!  Ya got balls, gal!! >> elmo >> http://community.webtv.net/elmoemerson/DocElmosHepFile >> http://community.webtv.net/elmoemerson/TheFamilyAlbum

Response:

It does give you inspiration to continue on –  I envy you – 1 shot oh wow. Did they check you at 24 weeks too? Mags "pajaritaflora" <birdsp…@gmail.com> wrote in message

news:1131490957.203897.257060@g49g2000cwa.googlegroups.com… – Hide quoted text — Show quoted text -> mags wrote: >> Hello family of heppers!  I received a call today from the hospital.  The >> last time I was there I asked if my 4 week test results were in and they >> said that they didnt test viral loads until week 12 and 24.  Apparently >> because I am in the study they are checking my viral loads each time they >> draw blood.  Guess what?  I have gone from 1,000,000 viral load count to >> a 2 >> log drop at 4 weeks.  My viral load is 11,500.  They are very optimistic. >> Anyone else have this and successfully cleared? >> Mags >> dam  I am so happy! > WOO HOO Mags! > You are on the right track. > I’ve got my fingers crossed for bouth of us. I was undetectable at 12 > weeks…don’t know about week 4. > one shot left for me. You will get there too! > Mary Ann

Response:

Mags – I am reading an article from 2003 on this site http://www.hcvadvocate.org/news/reports/EASL-HCV.html that says that a 2-log drop at 4-8 weeks is much better predictor of success that the same response at 12 weeks.  I have to read it more closely to see what the % improvement is. Great news, then. In article <3tctcqFqrn9…@individual.net>, "Thip" <m…@privacy.net> wrote: – Hide quoted text — Show quoted text -> "mags" <chill…@rogers.com> wrote in message > news:YPadna8FLbEdsezenZ2dnUVZ_s6dnZ2d@rogers.com… > > Hello family of heppers!  I received a call today from the hospital.  The > > last time I was there I asked if my 4 week test results were in and they > > said that they didnt test viral loads until week 12 and 24.  Apparently > > because I am in the study they are checking my viral loads each time they > > draw blood.  Guess what?  I have gone from 1,000,000 viral load count to a > > 2 log drop at 4 weeks.  My viral load is 11,500.  They are very > > optimistic. Anyone else have this and successfully cleared? > > Mags > > dam  I am so happy! > WOW!!!  Go mags!

Response:

aw gosh Gordo.  I am basically where I wanted to be about 14 months ago but couldn’t be because of tx and hep C.  The finger cutting tango with the table saw slowed down my rehab timetable.  The last three weeks were the most agonizing for me because I had cut myself off from the great support and personal friendships that this listserve has opened me to.  I managed through fuzzy headedness and anxiety and frustration and all the rest of it, to screw up my internet connections. When that happened, I had no one to talk to at all about the slide I was in.  I lost phone numbers, forgot passwords, and on and on.  I think by the time I did reestablish phone links at least, I had got through the most difficult time of the whole sheebang already. I will be here. tapper cool CJ  "…to everything    turn, turn, turn         there is a season, turn, turn, turn…" —————————————————————- – Hide quoted text — Show quoted text -"Gordo Mondragon" <ga_mondra…@yahoo.com> wrote in message > Hey CJ, what these new folks have never gotten to experience is one of > your screeds from the alternate but nearby reality you were inhabiting, > in your room with bongs and guitars.  I am still looking up concepts and > philosophies that you mentioned. > You’re so _clean_ and _rational_ now.  Good for you.  I wonder when that > other side comes out now :) > G > In article <Swccf.190970$ir4.140296@edtnps90>, > "cactus jammies" <cactusjamm…@hotmail.com> wrote: >> Hey Mags, good for you.  Hang on tight for the ride!  8-) >> In my case, although my vl was not tested until after the 12th shot, my >> weekly blood test liver enzymes (LFTs) went down pretty fast at the >> beginning.  I started at 1.7 million and at week 12 I was 2,300 or >> something, which is a 2.5 log drop. >> Stick to the program, stick to this group.  It is a real help.  There are >> a >> wide variety perspectives but it is all earnest.  The experience and >> knowledge is here as well. >> Best of luck, I will be looking forward to your messages! >> CJ ————  Bob Mackie >> YOU CAN BEAT THE DRAGON! grrrr…!!! >> "mags" <chill…@rogers.com> wrote in message >> news:YPadna8FLbEdsezenZ2dnUVZ_s6dnZ2d@rogers.com… >> > Hello family of heppers!  I received a call today from the hospital. >> > The >> > last time I was there I asked if my 4 week test results were in and >> > they >> > said that they didnt test viral loads until week 12 and 24.  Apparently >> > because I am in the study they are checking my viral loads each time >> > they >> > draw blood.  Guess what?  I have gone from 1,000,000 viral load count >> > to a >> > 2 log drop at 4 weeks.  My viral load is 11,500.  They are very >> > optimistic. Anyone else have this and successfully cleared? >> > Mags >> > dam  I am so happy!

Response:

Hey CJ, what these new folks have never gotten to experience is one of your screeds from the alternate but nearby reality you were inhabiting, in your room with bongs and guitars.  I am still looking up concepts and philosophies that you mentioned. You’re so _clean_ and _rational_ now.  Good for you.  I wonder when that other side comes out now :) G In article <Swccf.190970$ir4.140296@edtnps90>,  "cactus jammies" <cactusjamm…@hotmail.com> wrote: – Hide quoted text — Show quoted text -> Hey Mags, good for you.  Hang on tight for the ride!  8-) > In my case, although my vl was not tested until after the 12th shot, my > weekly blood test liver enzymes (LFTs) went down pretty fast at the > beginning.  I started at 1.7 million and at week 12 I was 2,300 or > something, which is a 2.5 log drop. > Stick to the program, stick to this group.  It is a real help.  There are a > wide variety perspectives but it is all earnest.  The experience and > knowledge is here as well. > Best of luck, I will be looking forward to your messages! > CJ ————  Bob Mackie > YOU CAN BEAT THE DRAGON! grrrr…!!! > "mags" <chill…@rogers.com> wrote in message > news:YPadna8FLbEdsezenZ2dnUVZ_s6dnZ2d@rogers.com… > > Hello family of heppers!  I received a call today from the hospital.  The > > last time I was there I asked if my 4 week test results were in and they > > said that they didnt test viral loads until week 12 and 24.  Apparently > > because I am in the study they are checking my viral loads each time they > > draw blood.  Guess what?  I have gone from 1,000,000 viral load count to a > > 2 log drop at 4 weeks.  My viral load is 11,500.  They are very > > optimistic. Anyone else have this and successfully cleared? > > Mags > > dam  I am so happy!

Response:

Mag’s,   I am rootin’ for you.   Doug <elmoemer…@webtv.net> wrote in message

news:6487-437143DF-1056@storefull-3252.bay.webtv.net… – Hide quoted text — Show quoted text -> Re: Great News > Group: alt.support.hepatitis-c Date: Tue, Nov 8, 2005, 3:02pm (CST-2) > From: birdsp…@gmail.com (pajaritaflora) > mags wrote: > Hello family of heppers! I received a call today from the hospital. The > last time I was there I asked if my 4 week test results were in and they > said that they didnt test viral loads until week 12 and 24. Apparently > because I am in the study they are checking my viral loads each time > they draw blood. Guess what? I have gone from 1,000,000 viral load count > to a 2 log drop at 4 weeks. My viral load is 11,500. They are very > optimistic. Anyone else have this and successfully cleared? > Mags > dam I am so happy! > WOO HOO Mags! > You are on the right track. > I’ve got my fingers crossed for bouth of us. I was undetectable at 12 > weeks…don’t know about week 4. > one shot left for me. You will get there too! > Mary Ann > /////// > WOO HOO and YOO HOO to you too, MA!!  Ya got balls, gal!! > elmo > http://community.webtv.net/elmoemerson/DocElmosHepFile > http://community.webtv.net/elmoemerson/TheFamilyAlbum

Response:

"mags" <chill…@rogers.com> wrote in news:YPadna8FLbEdsezenZ2dnUVZ_s6dnZ2d@rogers.com: > Hello family of heppers!  I received a call today from the hospital. > The last time I was there I asked if my 4 week test results were in > and they said that they didnt test viral loads until week 12 and 24. > Apparently because I am in the study they are checking my viral loads > each time they draw blood.  Guess what?  I have gone from 1,000,000 > viral load count to a 2 log drop at 4 weeks.  My viral load is 11,500. >  They are very optimistic. Anyone else have this and successfully > cleared? > Mags > dam  I am so happy!

Great News! That’s great for you and inspiring to others (like me) so thanks for the good news.   That gym is getting closer! Van

Response:

Hey Mags, good for you.  Hang on tight for the ride!  8-) In my case, although my vl was not tested until after the 12th shot, my weekly blood test liver enzymes (LFTs) went down pretty fast at the beginning.  I started at 1.7 million and at week 12 I was 2,300 or something, which is a 2.5 log drop. Stick to the program, stick to this group.  It is a real help.  There are a wide variety perspectives but it is all earnest.  The experience and knowledge is here as well. Best of luck, I will be looking forward to your messages! CJ ————  Bob Mackie YOU CAN BEAT THE DRAGON! grrrr…!!! "mags" <chill…@rogers.com> wrote in message

news:YPadna8FLbEdsezenZ2dnUVZ_s6dnZ2d@rogers.com… – Hide quoted text — Show quoted text -> Hello family of heppers!  I received a call today from the hospital.  The > last time I was there I asked if my 4 week test results were in and they > said that they didnt test viral loads until week 12 and 24.  Apparently > because I am in the study they are checking my viral loads each time they > draw blood.  Guess what?  I have gone from 1,000,000 viral load count to a > 2 log drop at 4 weeks.  My viral load is 11,500.  They are very > optimistic. Anyone else have this and successfully cleared? > Mags > dam  I am so happy!

Response:

Re: Great News   Group: alt.support.hepatitis-c Date: Tue, Nov 8, 2005, 3:02pm (CST-2) From: birdsp…@gmail.com (pajaritaflora) mags wrote:

Hello family of heppers! I received a call today from the hospital. The last time I was there I asked if my 4 week test results were in and they said that they didnt test viral loads until week 12 and 24. Apparently because I am in the study they are checking my viral loads each time they draw blood. Guess what? I have gone from 1,000,000 viral load count to a 2 log drop at 4 weeks. My viral load is 11,500. They are very optimistic. Anyone else have this and successfully cleared? Mags dam I am so happy! WOO HOO Mags! You are on the right track. I’ve got my fingers crossed for bouth of us. I was undetectable at 12 weeks…don’t know about week 4. one shot left for me. You will get there too! Mary Ann /////// WOO HOO and YOO HOO to you too, MA!!  Ya got balls, gal!! elmo http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum

Response:

Fabulous!!  Exceptional!!  You couldn’t have gotten much better news! That bodes VERY well for you, Mags.  Keep doing what you’re doing….it’s working!  If you own a red pair of shoes, put em on and do some dancing this evening.  Definitely celebrate!   Now all you have to do is get thru 44 more short weeks of therapy.  It’s going to test you and wear on you, but because of your excellent news this evening, you’ll have even more incentive to stay the course.  After you finish dancing, tighten the strap on your space helmet and enjoy the view out the starboard porthole.  Venus and Mars are alright tonight.   elmo   http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum

Response:

Mags Baby that is fabulous!  Also fabulous that you’re still working!  Must be all that clean living and real whipped cream. I had an early viral drop too, at week 12 from over 700,000 ‘copies’ to less than 10.  That is a very good sign.  I’m writing up my latest data, will post it soon.  Keep the posts coming, they’re important here. I’m sure alot of folks wait to hear how you’re doing.  I do. Smiles to ya Kathy 37/48

Response:

"mags" <chill…@rogers.com> wrote in message

news:YPadna8FLbEdsezenZ2dnUVZ_s6dnZ2d@rogers.com… > Hello family of heppers!  I received a call today from the hospital.  The > last time I was there I asked if my 4 week test results were in and they > said that they didnt test viral loads until week 12 and 24.  Apparently > because I am in the study they are checking my viral loads each time they > draw blood.  Guess what?  I have gone from 1,000,000 viral load count to a > 2 log drop at 4 weeks.  My viral load is 11,500.  They are very > optimistic. Anyone else have this and successfully cleared? > Mags > dam  I am so happy!

WOW!!!  Go mags!

Response:

mags wrote: > Hello family of heppers!  I received a call today from the hospital.  The > last time I was there I asked if my 4 week test results were in and they > said that they didnt test viral loads until week 12 and 24.  Apparently > because I am in the study they are checking my viral loads each time they > draw blood.  Guess what?  I have gone from 1,000,000 viral load count to a 2 > log drop at 4 weeks.  My viral load is 11,500.  They are very optimistic. > Anyone else have this and successfully cleared? > Mags > dam  I am so happy!

WOO HOO Mags! You are on the right track. I’ve got my fingers crossed for bouth of us. I was undetectable at 12 weeks…don’t know about week 4. one shot left for me. You will get there too! Mary Ann

Response:

Hello family of heppers!  I received a call today from the hospital.  The last time I was there I asked if my 4 week test results were in and they said that they didnt test viral loads until week 12 and 24.  Apparently because I am in the study they are checking my viral loads each time they draw blood.  Guess what?  I have gone from 1,000,000 viral load count to a 2 log drop at 4 weeks.  My viral load is 11,500.  They are very optimistic. Anyone else have this and successfully cleared? Mags dam  I am so happy!

Response:

Finally some GOOD news..

Question:

14 out side no wonder your headed for Palm Springs. Today is a day of lite rain it is 55 out side and I’m snivelling, until I read your 14F in Alaska. Mexico sounds like fun and the weather is always so much better this time of year. I was there in feb 04 enjoying the weather and blue sky, until I went to Huntington Beach, was a fog basin, It was like being back in San Francisco socked in with fog for days on end. I survived 10 days with my daughter who was getting divorced. Her x left his mom and her together…after enlarging the house 100%. I would have lost them both as well and skipped the construction. LOL Glad your done working for the season. Will look foreward to your posts through other’s blowing in the wind here.  Juanita   sourdo55 at yahoo.com (Russ) I’m doing good, all healed up from the 80+ hour weeks of the "end of year grind" to get jobs done before winter. Well it’s here, currently 14 F outside. I’m heading for Palm Springs CA on the 7th of November for some sun fun, buy a newer used car, head for AZ to visit friends and other romantic interests, throw my hat in the air and see what direction it goes and so shall I. Maybe a week in Mexico? Russia is proving to be a logistical nightmare for travel, will rethink that a bit.. Perhaps the Ukraine? They do not require a crazy visa where you have to buy tickets, hotel, get invitation letter, BEFORE you apply for visa. And I can stay for 90 days, just whip out the old passport and in ya go! Probably some Ludmila’s there too, haha inside joke… I’ll be in Washington sometime around T-Day and then drive back home on the Al-Can Hwy.. I’ll have to get to see Shawn and Randi, I’ll give you a call too. Ya never know where I might end up ELMO!!! Winter is the cruise time on that road, all smooth with ice, and at cold temps the rubber really grips the ice!! hahaha….. I look forward to driving around in the sun and snow. Stay well my friend! — Russ Visit Alaska @ http://www.tannersacre.com "Michael Arends" <mlare…@NODAMNSPAMearthlink.net> wrote in message

news:E2E7f.1816$A63.1050@newsread3.news.pas.earthlink.net… Smiling Wickedly, Russ answered: wow, right on Michael! very cool dude! Thanks Russ!

Injection Site

Question:

Wow John you made it! Last shot thursday is great news. Its been a horrid road for you on tx. Once you miss your 1st shot your going to feel the difference. May you feel much better soon.  Juanita sbordonej…@hawaii.rr.com (Red

2/3 of 48 wk tx routine assays and blood work

Question:

Hi all,   Recently I passed the 2/3 mark in my way to the end of tx at September 03/05.  I never did achieve an SVR, but I did have at week 12, a 2.5 log drop on my Viral Loading (VL)  No rebound, no intermediate PCR at week 24. So since then (four months or more) I have been working on the faith in the monthly blood tests monitoring all that stuff, just not the HepC VL assay that we all want to urge to -000.000 ASAP. Before I share these data out, I would like to say once again that for most of us that are on our first (and hopefully successful) tx regime, management of side effects and maintaining a low-tension environment in your home is key to handling the long hard ride after week 12 towards more than an even chance you will beat the beast. I don’t use any other compounds than Mary Jane for side effects or better put, stimulation of dopamine secretion to reduce anxiety or rage days.  To set my day up, in the morning to quell my stomach I usually take 3 tokes, then a cup of coffee after the morning BM,   It takes patience getting out of bed because it seems it will take all day, but it never does.  So my point is, in this world of minor indulgences, I choose MJ and environmental controls to lead me to success. Why should I pay yet another pharmaceutical corporation to get me dependent on some potion or another that will effect my body for weeks after I stop taking it, when I can have a few breaths in the morning and judge my attitude for the day (surely to be more positive and hungry by this point) which leads me out of depressive spirals.  But I am not afraid to cry either or sob or moan about my major limb joints aching, like the worst hangover etc etc.  And as a hypnotic pre-sleep or middle of the night boost into dozy land, why not another couple of puffs?  Nothing wrong with a little hypnotic effect at 3 am when you think you should be sleeping. Why take more pills?  Unless my tx sides are hugely different from many others, I would think that tx it is just a matter waiting out the train ride.  It is a pain, it is not a very bright experience, but one day at a time will get you to the end.   And yes there are people who need added pharmaceuticals support, but maybe not all of us do. Numbers taken after week 32:     HCV A1B Genotype, first contact 1974, liver biopsy was stage 3 level 3 30 months ago.  1.8 Million VL pre-tx.  3,000 VL at week 12. Sodium            139   OK Potassium         3.6   OK   (and yes I have no bananas) Creatine            80    OK GFR Est.           93   OK AST                  39    OK     yah man dat da kine numbah you gotta have ALT                  37    OK Blood WBC               2.90    Low RBC                3.18    Low Hgb                    99     Low (ahem*)  bfd  (drop from 103 last month) HCT                0.305   Low comments anyone? Cactus Jammies /////////////////////////////////////////////////////// be positive even if it hurts hug someone accept snuggles, offer snuggles around the world  I can still type and I can find the pipe so here I am the pyjama man fit as a fiddle and stoned as a toad!  toot toot toot

Response:

On Sun, 29 May 2005 20:28:30 GMT, "Cactus Jammies" <n…@joshuatree.nemor> wrote: – Hide quoted text — Show quoted text ->Hi all, >  Recently I passed the 2/3 mark in my way to the end of tx at September >03/05.  I never did achieve an SVR, but I did have at week 12, a 2.5 log >drop on my Viral Loading (VL)  No rebound, no intermediate PCR at week 24. >So since then (four months or more) I have been working on the faith in the >monthly blood tests monitoring all that stuff, just not the HepC VL assay >that we all want to urge to -000.000 ASAP. >Before I share these data out, I would like to say once again that for most >of us that are on our first (and hopefully successful) tx regime, management >of side effects and maintaining a low-tension environment in your home is >key to handling the long hard ride after week 12 towards more than an even >chance you will beat the beast. >I don’t use any other compounds than Mary Jane for side effects or better >put, stimulation of dopamine secretion to reduce anxiety or rage days.  To >set my day up, in the morning to quell my stomach I usually take 3 tokes, >then a cup of coffee after the morning BM,   It takes patience getting out >of bed because it seems it will take all day, but it never does.  So my >point is, in this world of minor indulgences, I choose MJ and environmental >controls to lead me to success. >Why should I pay yet another pharmaceutical corporation to get me dependent >on some potion or another that will effect my body for weeks after I stop >taking it, when I can have a few breaths in the morning and judge my >attitude for the day (surely to be more positive and hungry by this point) >which leads me out of depressive spirals.  But I am not afraid to cry either >or sob or moan about my major limb joints aching, like the worst hangover >etc etc.  And as a hypnotic pre-sleep or middle of the night boost into dozy >land, why not another couple of puffs?  Nothing wrong with a little hypnotic >effect at 3 am when you think you should be sleeping. >Why take more pills?  Unless my tx sides are hugely different from many >others, I would think that tx it is just a matter waiting out the train >ride.  It is a pain, it is not a very bright experience, but one day at a >time will get you to the end.   And yes there are people who need added >pharmaceuticals support, but maybe not all of us do. >Numbers taken after week 32:     HCV A1B Genotype, first contact 1974, liver >biopsy was stage 3 level 3 30 months ago.  1.8 Million VL pre-tx.  3,000 VL >at week 12. >Sodium            139   OK >Potassium         3.6   OK   (and yes I have no bananas) >Creatine            80    OK >GFR Est.           93   OK >AST                  39    OK     yah man dat da kine numbah you gotta have >ALT                  37    OK >Blood >WBC               2.90    Low >RBC                3.18    Low >Hgb                    99     Low (ahem*)  bfd  (drop from 103 last month) >HCT                0.305   Low >comments anyone? >Cactus Jammies

Well, now. Some of us are fortunate that we *feel* we don’t need ADs – yet. You gotta believe that’s just plain luck, though. Folks who end up on ADs are not intrinsically weak, just unlucky. Genetics, chemistry, socioeconomic situation, extend of organic damage from hcv, pre-tx mental health….there are a lot of factors at play, perhaps most of them not under our control. Otherwise I could have written the rest. The medicinal herbage is a morning ritual – and afternoon, evening, bedtime – yeah, basically, whenever I feel like crap. It either works or I’ve convinced myself it works. As for your blood counts, things could be worse ;-) Here are mine, all factors adjusted to standards… WBC               2.90    2.7    k/mm3   and falling slowly (ANC is 1.5K/mm3) RBC                3.18    2.88  M/mm3  stuck around 3  +/- .2 *with* EPO HGB                   9.9   9.6    g/dl        dropped .7 g/dl this week HCT                30.5   29.2   %           dropped 2 % this week AST                   39    28              84 @ tx start ALT                   37    28                   166 @ tx start I need a nice upward bounce in HGB this week… Cheers /greyhackles

Response:

In article <v8hk91pesdb8ldidc8gej74bu9a4ikd…@4ax.com>,  greyhackles <greyhack…@NOSPAMyahoo.com> wrote:

[...] > Some of us are fortunate that we *feel* we don’t need ADs – yet. You gotta > believe that’s just plain luck, though. Folks who end up on ADs are not > intrinsically weak, just unlucky. Genetics, chemistry, socioeconomic > situation, extend of organic damage from hcv, pre-tx mental health….there > are a lot of factors at play, perhaps most of them not under our control. > Otherwise I could have written the rest. The medicinal herbage is a morning > ritual – and afternoon, evening, bedtime – yeah, basically, whenever I feel > like crap. It either works or I’ve convinced myself it works.

I only started on ADs during treatment when I started crying, a lot.  I didn’t feel depressed, I just couldn’t stop crying.  Weird, but then most of it was weird. The kind herb saved my life.  I couldn’t have done it without it. G

Response:

In article <1117465882.113317.194…@f14g2000cwb.googlegroups.com>,  "pajaritaflora" <birdsp…@gmail.com> wrote: > I think it is great if you can get by without supporting the > pharmaceutical companies. I wish I could but it’s making life easier to > know that I can take drugs to sleep. However, I am paranoid that the > ambien messes with my head. I,m trying to wean my self down so that I > don’t need it every night. I made it through one night with no ambien > this week. I’m concerned it will be hard to sleep when I am off tx and > want to stop sleep meds.

I didn’t like taking ambien every night so I switched around between different things and when I wasn’t working assumed that my sleep patterns were going to be all screwed up. As far as what will happen when you’re done with tx, I’d worry about that when the time comes :) G

Response:

Re: 2/3 of 48 wk tx routine assays and blood work   Group: alt.support.hepatitis-c Date: Mon, May 30, 2005, 7:56am (CDT-2) From: birdsp…@gmail.com (pajaritaflora) elmoemer…@webtv.net wrote:

Aw, c’mon CJ. Let me send you a handful of AD’s and a couple of bananas. ahahahahahahaha Your labs look pretty darn good considering you’re 2/3’s the way thru tx. Elmo http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum Bannanas? I don’t get the reference, when I first found this group you all were having a bizzarre banana conversation. I thought it meant that bannanas were bad for you.lol ////////// CJ and I have been bantering back and forth about bananas in a good natured sort of way for quite awhile now.  I like the things because they taste good and are a great source of potassium.  Full of carbs tho, a bit fattening.  If you’re losing weight, that isn’t such a bad thing. You need lots of protein when you’re on tx (not bananas).  Meat and bananas with ice cream and cereal, I say!  :-) Elmo http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum

Response:

Cactus Jammies wrote: > Hi all, >   Recently I passed the 2/3 mark in my way to the end of tx at September > 03/05.  I never did achieve an SVR, but I did have at week 12, a 2.5 log > drop on my Viral Loading (VL)  No rebound, no intermediate PCR at week 24. > So since then (four months or more) I have been working on the faith in the > monthly blood tests monitoring all that stuff, just not the HepC VL assay > that we all want to urge to -000.000 ASAP. > Before I share these data out, I would like to say once again that for most > of us that are on our first (and hopefully successful) tx regime, management > of side effects and maintaining a low-tension environment in your home is > key to handling the long hard ride after week 12 towards more than an even > chance you will beat the beast.

Low tension Definately key. If I do have a visitor I really only want one, that just lets me be chillin, and knows how to get around my kitchen. My manic friend needs to get better before coming over again. Internet friends are perfect! > I don’t use any other compounds than Mary Jane for side effects or better > put, stimulation of dopamine secretion to reduce anxiety or rage days.  To > set my day up, in the morning to quell my stomach I usually take 3 tokes, > then a cup of coffee after the morning BM,   It takes patience getting out > of bed because it seems it will take all day, but it never does.  So my > point is, in this world of minor indulgences, I choose MJ and environmental > controls to lead me to success.

Living alone definately helps with environmental controls. What I do matters to noone else. > Why should I pay yet another pharmaceutical corporation to get me dependent > on some potion or another that will effect my body for weeks after I stop > taking it, when I can have a few breaths in the morning and judge my > attitude for the day (surely to be more positive and hungry by this point) > which leads me out of depressive spirals.  But I am not afraid to cry either > or sob or moan about my major limb joints aching, like the worst hangover > etc etc.  And as a hypnotic pre-sleep or middle of the night boost into dozy > land, why not another couple of puffs?  Nothing wrong with a little hypnotic > effect at 3 am when you think you should be sleeping.

I think it is great if you can get by without supporting the pharmaceutical companies. I wish I could but it’s making life easier to know that I can take drugs to sleep. However, I am paranoid that the ambien messes with my head. I,m trying to wean my self down so that I don’t need it every night. I made it through one night with no ambien this week. I’m concerned it will be hard to sleep when I am off tx and want to stop sleep meds. – Hide quoted text — Show quoted text -> Why take more pills?  Unless my tx sides are hugely different from many > others, I would think that tx it is just a matter waiting out the train > ride.  It is a pain, it is not a very bright experience, but one day at a > time will get you to the end.   And yes there are people who need added > pharmaceuticals support, but maybe not all of us do. > Numbers taken after week 32:     HCV A1B Genotype, first contact 1974, liver > biopsy was stage 3 level 3 30 months ago.  1.8 Million VL pre-tx.  3,000 VL > at week 12. > Sodium            139   OK > Potassium         3.6   OK   (and yes I have no bananas) > Creatine            80    OK > GFR Est.           93   OK > AST                  39    OK     yah man dat da kine numbah you gotta have > ALT                  37    OK > Blood > WBC               2.90    Low > RBC                3.18    Low > Hgb                    99     Low (ahem*)  bfd  (drop from 103 last month) > HCT                0.305   Low > comments anyone? > Cactus Jammies > /////////////////////////////////////////////////////// > be positive even if it hurts hug someone accept snuggles, offer snuggles > around the world >  I can still type and I can find the pipe so here I am the pyjama man fit as > a fiddle and stoned as a toad!  toot toot toot

LOL! :) that sounds like a chorus for an ash-c song! Peace, MaryAnn

Response:

- Hide quoted text — Show quoted text -elmoemer…@webtv.net wrote: > Aw, c’mon CJ.  Let me send you a handful of AD’s and a couple of > bananas.  ahahahahahahaha  Your labs look pretty darn good considering > you’re 2/3’s the way thru tx. > Elmo > http://community.webtv.net/elmoemerson/DocElmosHepFile > http://community.webtv.net/elmoemerson/TheFamilyAlbum

Bannanas? I don’t get the reference, when I first found this group you all were having a bizzarre banana conversation. I thought it meant that bannanas were bad for you.lol

Response:

Aw, c’mon CJ.  Let me send you a handful of AD’s and a couple of bananas.  ahahahahahahaha  Your labs look pretty darn good considering you’re 2/3’s the way thru tx.   Elmo http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum

Response:

Me too. Oh, and I tried to frame my opinions and experience as just that.  I really couldn’t say if intensity of side effects usually is more extreme than in my case. Yes, I tried to be alert to that before I posted.  But I am on TX chems so I am out of kilter. Hope nobody feels offended by my cavalier sounding pronouncements. cactus jammies /rip van winkle of the monashees/ "greyhackles" <greyhack…@NOSPAMyahoo.com> wrote > As for your blood counts, things could be worse ;-) – Hide quoted text — Show quoted text -> Here are mine, all factors adjusted to standards… > WBC               2.90    2.7    k/mm3   and falling slowly (ANC is > 1.5K/mm3) > RBC                3.18    2.88  M/mm3  stuck around 3  +/- .2 *with* EPO > HGB                   9.9   9.6    g/dl        dropped .7 g/dl this week > HCT                30.5   29.2   %           dropped 2 % this week > AST                   39    28     84 @ tx start > ALT                   37    28                  166 @ tx start > I need a nice upward bounce in HGB this week… > Cheers > /greyhackles

Response:

Men make pills. God made MJ! It’s been 20 LONG years since my last hit on a joint. I miss the stuff from time to time. They say that it is non-addicting, well I was. Stopped cold when I got my first anxiety attack while ripped two week after my mother past away. But I still believe that it is holy and should be revered. Enjoy your blessed puff. Sue

Response:

EPO sides?

Question:

David, sorry I misposted and this messge wound up on the wrong string.   If John (Red Dwarf) is reading this, sorry I messed up your string, congrats on the improvements and sunny days ahead.  Week 35 of 48 for me, did not clear but got more than two log drop at week 12, cruising ever since.  Ha! 8-)  scratch scratch, bathe in Gold bond, use cortisone and some other topical steroid on my open lesions as well as polysporin to keep any hint of bacterial skin infection at bay.  I heard bad things about that, but anyways great news, guy!  I will repost this part to your string right now. cactus jammies ////////////////////////////////////////////////////////  see attached, David //////////////////////// What kind of a pharmacare plan are you on David?  Some third party supplementary?  Out in BC, they still reduce the dosage of your ribavirin before they would ever consider procrit (EPO) for anaemia.  And Nuepogen? Whoa, you must be really sick to have your doc prescribe you that stuff. $12,000 for seven days, I think it is.  Its not an option for me, in any case because I have fairly normal white cell count.  IFN daily doses to keep fibrosis at bay after failed combo tx is not an option yet, unless you have a cirrhotic liver, then you can get into physicians studies and the like.  I have also been told that INFERGEN is not an option for my case, either.  I am wondering if its your plan or supplementary or mine that seems a bit out of whack.  You don’t even want to know about my supplementary Blue Cross to reclaim the deductible on the BC pharmacare.  It doesn’t even list Pegetron treatment but out in BC they say everyone lists it.  Hmmm  go figure. Also, I have not cleared since the last test I got at xmas which showed a more than 2 log drop at week 12.  I was refused the 24 week  PCR "…because my case seemed to be headed in the right direction..".  I wonder if that is just an educated and experienced guess on the part of my spec doc. Otherwise it would be torture and I would be contacting Amnesty International about it next message. Please advise if you can and thanks cactusjammies BC ////////////////////////////////////////////////////////// "Canadave" <yeahri…@noway.com> wrote in message

news:FL-dnXQHU7oFcAnfRVn-tA@rogers.com… > Congrats!  5 weeks…a walk in the park! ;-) > You’re quite anemic?  Are you on EPO?  I was hoping that after being on > EPO for a while (I had shot #1 yesterday with a hemoglobin of 112 [from > 147]), that I’d no longer be anemic.  Too optimistic? > Congrats again, > David "Mark Emerson" <irp3…@comcast.net> wrote in message

news:H-udnfPC9bhrZgnfRVn-qg@comcast.com… – Hide quoted text — Show quoted text -> David, > I have been on Procrit for about 8.5 months. My HGB went from 15.5 to > 10.2. The NP put me on 40000 units/weekly. My HGB has leveled off at > around 11.5 and I’ve been told that’s as good as it gets for now. I have > had the same experience as Elmo….aching hips and large bones, not > terrible pain, but aggravating pain. Good luck. > Life is good > Mark > "Canadave" <yeahri…@noway.com> wrote in message > news:l6GdnQwdqqZorw7fRVn-tQ@rogers.com… >> What are your experiences with the sides of EPO?  I get my first shot >> today. >> Thanks, >> David

Response:

Mark,  Do you feel noticably better at 11.5 than 10.2, and do you "get used" to 11.5 such that it’s not as bad as at the beginning? Thanks for the response, David "Mark Emerson" <irp3…@comcast.net> wrote in message

news:H-udnfPC9bhrZgnfRVn-qg@comcast.com… – Hide quoted text — Show quoted text -> David, > I have been on Procrit for about 8.5 months. My HGB went from 15.5 to > 10.2. The NP put me on 40000 units/weekly. My HGB has leveled off at > around 11.5 and I’ve been told that’s as good as it gets for now. I have > had the same experience as Elmo….aching hips and large bones, not > terrible pain, but aggravating pain. Good luck. > Life is good > Mark > "Canadave" <yeahri…@noway.com> wrote in message > news:l6GdnQwdqqZorw7fRVn-tQ@rogers.com… >> What are your experiences with the sides of EPO?  I get my first shot >> today. >> Thanks, >> David

Response:

responses within your text… > What kind of a pharmacare plan are you on David?  Some third party > supplementary?

Yes, through my employer. > Out in BC, they still reduce the dosage of your ribavirin > before they would ever consider procrit (EPO) for anaemia.

Bastards! >And Nuepogen? Whoa, you must be really sick to have your doc prescribe you >that stuff. > $12,000 for seven days, I think it is.  Its not an option for me, in any > case because I have fairly normal white cell count.

My white count dropped.  Price for Neupagen here is about $150/dose.  Are we talking about the same thing?  Seems impossible. > Also, I have not cleared since the last test I got at xmas which showed a > more than 2 log drop at week 12.  I was refused the 24 week  PCR > "…because > my case seemed to be headed in the right direction..".  I wonder if that > is > just an educated and experienced guess on the part of my spec doc.

Again…bastards!  Could you pop over the border and pay for the test. That’s what I’d be considering if it wasn’t ridiculously $$$. Hope that helps.  Thanks for your response, David

Response:

On Wed, 25 May 2005 21:38:46 -0400, "Canadave" <yeahri…@noway.com> wrote: >Mark,  Do you feel noticably better at 11.5 than 10.2, and do you "get used" >to 11.5 such that it’s not as bad as at the beginning? >Thanks for the response, >David

I dream of 11. 11 left me on Thanksgiving week, and 11 hasn’t been back. But 10.7 (my high point to date) was significantly better than the 9.6 I drew today :-(  Hopefully just another period in what appears to be cyclical… I can definitely feel when I’m up or down 1 full HGB point. I’m batting over .800 in my weekly bets with the lab techs… I don’t think I’ve "gotten used" to any particular hemoglobin level. While it can be *hugely* important, there’s more to QOL than just HGB/HCT. For example, when the weather is mild and fair, I definitely feel better – maybe a full point or two better – than when it’s freezing cold and wet. Anyway, you’re gonna love EPO, I guarantee it. re: the Neupogen, could see that one coming as well, kinda sucks but if you need it you need it. Whatever it takes to stay on full dose, full term! One really great thing to take from this is knowing you have one heck of a responsive doctor handling your case! That’s huge! Cheers /greyhackles

Response:

Yeah.  OHHHH BOYYYYY!!!!  (never done the stuff) Elmo ////// David PS I’m starting on Neupagen next week. Any comments on that? <elmoemer…@webtv.net> wrote in message

news:18157-42946755-4@storefull-3258.bay.webtv.net… Re: EPO sides? Group: alt.support.hepatitis-c Date: Wed, May 25, 2005, 12:34am (CDT+1) From: greyhack…@NOSPAMyahoo.com (greyhackles) On Tue, 24 May 2005 09:58:14 -0400, "Canadave" <yeahri…@noway.com> wrote: What are your experiences with the sides of EPO? I get my first shot today. Thanks, David I’m 30 weeks into tx, been on 60k of EPO the last 16 weeks, and from my blood work all indications are I’ll be on EPO for the remaining 18 weeks – assuming something doesn’t totally crash before then! Sides from the EPO have been blessedly few – the occasional bone aches are pretty much it. What SUCKS is the big bore needle used for the IM EPO shots. Man, that smarts! Plus you don’t get EPO without a matching weekly blood test, so that’s yet another weekly big fricken’ hole in a vein. But….without EPO it would have been dose reduction or worse, long ago. With EPO I can work a full day and even get in a couple of hours of puttering around the house on a good day. So I have this love/hate kinda thing going on. Bet you will, too ;-) But sides have not been an issue… Cheers! /greyhackles ////////// Strange. The Procrit I took came in a vial and I drew the stuff up in an insulin syringe, the same ones I used to inject interferon…..no large needles. My doc didn’t see any need to do weekly blood tests because of the Procrit, I got the regular monthly blood draws. Elmo http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum

Response:

David, Yes. At 10.2, I could hardly walk up a flight of steps without being completely out of breath and, I would feel like I had run a marathon…very weak. After about 3 weeks I  started to feel better. I also think I "got used" to feeling weak. Good luck. Life is good Mark – Hide quoted text — Show quoted text -> Mark,  Do you feel noticably better at 11.5 than 10.2, and do you "get > used" to 11.5 such that it’s not as bad as at the beginning? > Thanks for the response, > David

Response:

I’m at 11.2, and I feel just like that.  Anyway, EPO shot #2 this Monday. (Neupagen too.)   Hoping I start to feel better. Thanks Mark, David "Mark Emerson" <irp3…@comcast.net> wrote in message

news:h72dnRe1q7IvsgrfRVn-2w@comcast.com… – Hide quoted text — Show quoted text -> David, > Yes. At 10.2, I could hardly walk up a flight of steps without being > completely out of breath and, I would feel like I had run a > marathon…very weak. After about 3 weeks I  started to feel better. I > also think I "got used" to feeling weak. Good luck. > Life is good > Mark >> Mark,  Do you feel noticably better at 11.5 than 10.2, and do you "get >> used" to 11.5 such that it’s not as bad as at the beginning? >> Thanks for the response, >> David

Response:

What are your experiences with the sides of EPO?  I get my first shot today. Thanks, David

Response:

Canadave wrote: > What are your experiences with the sides of EPO?  I get my first shot today. > Thanks, > David

Hi David, what is EPO? …not being a jerk, just figure I may want to know also. :) Mary Ann

Response:

"pajaritaflora" <birdsp…@gmail.com> wrote in message > Hi David, what is EPO? …not being a jerk, just figure I may want to > know also.

In Canada, one brand name is Eprex.  In the US, it’s Epogen.  The generic name is Epoetin-Alpha.  It’s to stimulate the production of red blood cells (RBCs) and thus boost one’s hemoglobin. David

Response:

Minor aches in the large bones, like the upper leg bone and hips.   Elmo http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum

Response:

He’s talking about Procrit. Elmo ////// Hi David, what is EPO? …not being a jerk, just figure I may want to know also. In Canada, one brand name is Eprex. In the US, it’s Epogen. The generic name is Epoetin-Alpha. It’s to stimulate the production of red blood cells (RBCs) and thus boost one’s hemoglobin. David http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum

Response:

On Tue, 24 May 2005 09:58:14 -0400, "Canadave" <yeahri…@noway.com> wrote: >What are your experiences with the sides of EPO?  I get my first shot today. >Thanks, >David

I’m 30 weeks into tx, been on 60k of EPO the last 16 weeks, and from my blood work all indications are I’ll be on EPO for the remaining 18 weeks – assuming something doesn’t totally crash before then! Sides from the EPO have been blessedly few – the occasional bone aches are pretty much it. What SUCKS is the big bore needle used for the IM EPO shots. Man, that smarts! Plus you don’t get EPO without a matching weekly blood test, so that’s yet another weekly big fricken’ hole in a vein. But….without EPO it would have been dose reduction or worse, long ago. With EPO I can work a full day and even get in a couple of hours of puttering around the house on a good day. So I have this love/hate kinda thing going on. Bet you will, too ;-) But sides have not been an issue… Cheers! /greyhackles

Response:

Re: EPO sides?   Group: alt.support.hepatitis-c Date: Wed, May 25, 2005, 12:34am (CDT+1) From: greyhack…@NOSPAMyahoo.com (greyhackles) On Tue, 24 May 2005 09:58:14 -0400, "Canadave" <yeahri…@noway.com> wrote: What are your experiences with the sides of EPO? I get my first shot today. Thanks, David I’m 30 weeks into tx, been on 60k of EPO the last 16 weeks, and from my blood work all indications are I’ll be on EPO for the remaining 18 weeks – assuming something doesn’t totally crash before then! Sides from the EPO have been blessedly few – the occasional bone aches are pretty much it. What SUCKS is the big bore needle used for the IM EPO shots. Man, that smarts! Plus you don’t get EPO without a matching weekly blood test, so that’s yet another weekly big fricken’ hole in a vein. But….without EPO it would have been dose reduction or worse, long ago. With EPO I can work a full day and even get in a couple of hours of puttering around the house on a good day. So I have this love/hate kinda thing going on. Bet you will, too ;-) But sides have not been an issue… Cheers! /greyhackles   ////////// Strange.  The Procrit I took came in a vial and I drew the stuff up in an insulin syringe, the same ones I used to inject interferon…..no large needles.  My doc didn’t see any need to do weekly blood tests because of the Procrit, I got the regular monthly blood draws.   Elmo http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum

Response:

Yeah, mine is done sub cutaneaously…no large needle, and it’s preloaded. And I’ll be getting bloodwork every other week, not weekly.  Guess every doc has their own regime.  Hope this helps. David PS I’m starting on Neupagen next week.  Any comments on that? <elmoemer…@webtv.net> wrote in message

news:18157-42946755-4@storefull-3258.bay.webtv.net… – Hide quoted text — Show quoted text -> Re: EPO sides? > Group: alt.support.hepatitis-c Date: Wed, May 25, 2005, 12:34am (CDT+1) > From: greyhack…@NOSPAMyahoo.com (greyhackles) > On Tue, 24 May 2005 09:58:14 -0400, "Canadave" <yeahri…@noway.com> > wrote: > What are your experiences with the sides of EPO? I get my first shot > today. > Thanks, > David > I’m 30 weeks into tx, been on 60k of EPO the last 16 weeks, and from my > blood work all indications are I’ll be on EPO for the remaining 18 weeks > – assuming something doesn’t totally crash before then! > Sides from the EPO have been blessedly few – the occasional bone aches > are pretty much it. > What SUCKS is the big bore needle used for the IM EPO shots. Man, that > smarts! Plus you don’t get EPO without a matching weekly blood test, so > that’s yet another weekly big fricken’ hole in a vein. > But….without EPO it would have been dose reduction or worse, long ago. > With EPO I can work a full day and even get in a couple of hours of > puttering around the house on a good day. > So I have this love/hate kinda thing going on. Bet you will, too ;-) But > sides have not been an issue… > Cheers! > /greyhackles > ////////// > Strange.  The Procrit I took came in a vial and I drew the stuff up in > an insulin syringe, the same ones I used to inject interferon…..no > large needles.  My doc didn’t see any need to do weekly blood tests > because of the Procrit, I got the regular monthly blood draws. > Elmo > http://community.webtv.net/elmoemerson/DocElmosHepFile > http://community.webtv.net/elmoemerson/TheFamilyAlbum

Response:

David, I have been on Procrit for about 8.5 months. My HGB went from 15.5 to 10.2. The NP put me on 40000 units/weekly. My HGB has leveled off at around 11.5 and I’ve been told that’s as good as it gets for now. I have had the same experience as Elmo….aching hips and large bones, not terrible pain, but aggravating pain. Good luck. Life is good Mark "Canadave" <yeahri…@noway.com> wrote in message

news:l6GdnQwdqqZorw7fRVn-tQ@rogers.com… – Hide quoted text — Show quoted text -> What are your experiences with the sides of EPO?  I get my first shot > today. > Thanks, > David

Response:

1 of 50 people in US are HCV +

Question:

- Hide quoted text — Show quoted text -Shawn wrote: > Since you brought up the subject of bleeding in public….. We shop at a > supermarket chain called "Albertsons". In the cart stall where you get your > shopping cart, they have now installed anti-bacterial baby-type wipes so > that you can clean the cart handle before using it!! I always grab a couple > of extras in case of a  nick or cut while we’re there. I think it’s a damn > good idea! But, it does go to show that someone is looking at those HCV and > HIV numbers in corporate America besides just us!! > — > Shawn > (use the "reply feature on your browser to send a private reply via E-Mail.) > <elmoemer…@webtv.net> wrote in message > news:13351-426A9092-208@storefull-3253.bay.webtv.net… > > 1 of 50 people in US are HCV + > > Group: alt.support.hepatitis-c Date: Sat, Apr 23, 2005, 1:53pm (CDT+1) > > From: burningdayli…@private.com (burningdaylight) > > They estimate that about 5 million in the USA are HCV+. That is about > > one in fifty! Most of these people don’t know they have it. That is not > > a secret to us in this NG. > > From these numbers, I am assuming that it’s easier to get than a simple > > needle prick or from IV drug use etc. > > I was shopping the other day when I looked down at my hands that were > > holding the shopping cart handle. A finger on each hand was bleeding! > > May be from a rough edge on the cart or somthing else that I handled. > > There was also blood on the cart handle. I stood there stunned for > > awhile. I carry alcohol wipes and band aides with me now. I also cleaned > > the cart handle. Yes, I got some funny looks. I just was doing the > > responsible thing. > > My point is that this dragon can lurk anywhere, and that is why so many > > people have it. > > HCV awareness is very important and this disease needs to come out of > > the closet! > > HCV carries social stigmas like HIV. > > We don’t even want to tell our family and friends and co-workers that we > > have it, for fear of what they may think of us. Hell! Even alot of our > > BCLD’s don’t know how to treat us. They don’t take it or us seriously! > > This is an epidemic, damn it! > > Do we need to print bumper stickers? > > Do we need to have adds on TV and radio to educate the public? Do we > > need to lobby congress? > > Or do we just let them bury this in the sand? > > 5 million in the US and higher ratios in some other countries, and only > > a handful of us are in this group, where are the rest hiding? > > If it killed us over night, people night be more aware? > > Just pondering again! > > Sue > > //////// > > Relax!!!!!  If it was easily transmitted, all of our spouses, ex’s and > > children would have it.  It’s actually difficult to catch….all you > > need is blood on blood contact.  Just don’t let strangers with bloody > > fingernails pop zits on your ass and you’ll be fine.  Ooops, I > > forgot….you’ve already got it. > > :-) > > Elmo > > http://community.webtv.net/elmoemerson/DocElmosHepFile > > http://community.webtv.net/elmoemerson/TheFamilyAlbum

 More bleeding in public…..I got a bloody nose at work…and hid in the office with a bunch of kleenex, then realized I shouldn’t throw tissues in the trash under my desk that Carlos empties…..I snuck it to the receptacle for such things in the ladies room. …got a little blast of the reality ray. Mary Ann

Response:

They estimate that about 5 million in the USA are HCV+. That is about one in fifty! Most of these people don’t know they have it. That is not a secret to us in this NG. From these numbers, I am assuming that it’s easier to get than a simple needle prick or from IV drug use etc. I was shopping the other day when I looked down at my hands that were holding the shopping cart handle. A finger on each hand was bleeding! May be from a rough edge on the cart or somthing else that I handled. There was also blood on the cart handle.  I stood there stunned for awhile.   I carry alcohol wipes and band aides with me now.  I also cleaned the cart handle.  Yes, I got some funny looks. I just was doing the responsible thing. My point is that this dragon can lurk anywhere, and that is why so many people have it. HCV awareness is very important and this disease needs to come out of the closet! HCV carries social stigmas like HIV. We don’t even want to tell our family and friends and co-workers that we have it, for fear of what they may think of us. Hell! Even alot of our BCLD’s don’t know how to treat us. They don’t take it or us seriously! This is an epidemic, damn it! Do we need to print bumper stickers? Do we need to have adds on TV and radio to educate the public? Do we need to lobby congress? Or do we just let them bury this in the sand? 5 million in the US and higher ratios in some other countries, and only a handful of us are in this group, where are the rest hiding? If it killed us over night, people night be more aware? Just pondering again! Sue

Response:

"burningdaylight" <burningdayli…@private.com> wrote in message

news:f3d895f83a1beb886f9d2215ad8abbb4@localhost.talkaboutsupport.com… – Hide quoted text — Show quoted text -> They estimate that about 5 million in the USA are HCV+. That is about one > in fifty! Most of these people don’t know they have it. That is not a > secret to us in this NG. > From these numbers, I am assuming that it’s easier to get than a simple > needle prick or from IV drug use etc. > I was shopping the other day when I looked down at my hands that were > holding the shopping cart handle. A finger on each hand was bleeding! May > be from a rough edge on the cart or somthing else that I handled. There > was also blood on the cart handle.  I stood there stunned for awhile. > I carry alcohol wipes and band aides with me now.  I also cleaned the cart > handle.  Yes, I got some funny looks. I just was doing the responsible > thing. > My point is that this dragon can lurk anywhere, and that is why so many > people have it. > HCV awareness is very important and this disease needs to come out of the > closet! > HCV carries social stigmas like HIV. > We don’t even want to tell our family and friends and co-workers that we > have it, for fear of what they may think of us. > Hell! Even alot of our BCLD’s don’t know how to treat us. They don’t take > it or us seriously! > This is an epidemic, damn it! > Do we need to print bumper stickers? > Do we need to have adds on TV and radio to educate the public? > Do we need to lobby congress? > Or do we just let them bury this in the sand? > 5 million in the US and higher ratios in some other countries, and only a > handful of us are in this group, where are the rest hiding? > If it killed us over night, people night be more aware? > Just pondering again! > Sue

Good pondering, Sue, and btw, May is Hepatitis C Awareness Month (at least in Canada). I agree with you; we need to get the facts out there… people are dying for lack of information/ignorance of the medical profession and society at large. It’s some scary shit. Waterspider

Response:

1 of 50 people in US are HCV +   Group: alt.support.hepatitis-c Date: Sat, Apr 23, 2005, 1:53pm (CDT+1) From: burningdayli…@private.com (burningdaylight) They estimate that about 5 million in the USA are HCV+. That is about one in fifty! Most of these people don’t know they have it. That is not a secret to us in this NG. From these numbers, I am assuming that it’s easier to get than a simple needle prick or from IV drug use etc. I was shopping the other day when I looked down at my hands that were holding the shopping cart handle. A finger on each hand was bleeding! May be from a rough edge on the cart or somthing else that I handled. There was also blood on the cart handle. I stood there stunned for awhile. I carry alcohol wipes and band aides with me now. I also cleaned the cart handle. Yes, I got some funny looks. I just was doing the responsible thing. My point is that this dragon can lurk anywhere, and that is why so many people have it. HCV awareness is very important and this disease needs to come out of the closet! HCV carries social stigmas like HIV. We don’t even want to tell our family and friends and co-workers that we have it, for fear of what they may think of us. Hell! Even alot of our BCLD’s don’t know how to treat us. They don’t take it or us seriously! This is an epidemic, damn it! Do we need to print bumper stickers? Do we need to have adds on TV and radio to educate the public? Do we need to lobby congress? Or do we just let them bury this in the sand? 5 million in the US and higher ratios in some other countries, and only a handful of us are in this group, where are the rest hiding? If it killed us over night, people night be more aware? Just pondering again! Sue //////// Relax!!!!!  If it was easily transmitted, all of our spouses, ex’s and children would have it.  It’s actually difficult to catch….all you need is blood on blood contact.  Just don’t let strangers with bloody fingernails pop zits on your ass and you’ll be fine.  Ooops, I forgot….you’ve already got it.   :-) Elmo http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum

Response:

Classic Elmo, required reading for tx blues.  aha ha ahahhahahahahahahaha haz mat fish Gott gutz? ahahhhahhahhahh ahhahahah hah hah hah let me say that again hah hah hah I agree with WS and Sue, the medical system is not ready, it is already losing track.  The pandemic is concentrated in a certain age and background demographic and will hit beached and unknowing humanity like that damned tsunami.  It will cost major bucks. cactus jammies ////////////////////////////////// <elmoemer…@webtv.net> wrote in > //////// – Hide quoted text — Show quoted text -> Relax!!!!!  If it was easily transmitted, all of our spouses, ex’s and > children would have it.  It’s actually difficult to catch….all you > need is blood on blood contact.  Just don’t let strangers with bloody > fingernails pop zits on your ass and you’ll be fine.  Ooops, I > forgot….you’ve already got it. > :-) > Elmo

Response:

Since you brought up the subject of bleeding in public….. We shop at a supermarket chain called "Albertsons". In the cart stall where you get your shopping cart, they have now installed anti-bacterial baby-type wipes so that you can clean the cart handle before using it!! I always grab a couple of extras in case of a  nick or cut while we’re there. I think it’s a damn good idea! But, it does go to show that someone is looking at those HCV and HIV numbers in corporate America besides just us!! — Shawn (use the "reply feature on your browser to send a private reply via E-Mail.) <elmoemer…@webtv.net> wrote in message

news:13351-426A9092-208@storefull-3253.bay.webtv.net… – Hide quoted text — Show quoted text -> 1 of 50 people in US are HCV + > Group: alt.support.hepatitis-c Date: Sat, Apr 23, 2005, 1:53pm (CDT+1) > From: burningdayli…@private.com (burningdaylight) > They estimate that about 5 million in the USA are HCV+. That is about > one in fifty! Most of these people don’t know they have it. That is not > a secret to us in this NG. > From these numbers, I am assuming that it’s easier to get than a simple > needle prick or from IV drug use etc. > I was shopping the other day when I looked down at my hands that were > holding the shopping cart handle. A finger on each hand was bleeding! > May be from a rough edge on the cart or somthing else that I handled. > There was also blood on the cart handle. I stood there stunned for > awhile. I carry alcohol wipes and band aides with me now. I also cleaned > the cart handle. Yes, I got some funny looks. I just was doing the > responsible thing. > My point is that this dragon can lurk anywhere, and that is why so many > people have it. > HCV awareness is very important and this disease needs to come out of > the closet! > HCV carries social stigmas like HIV. > We don’t even want to tell our family and friends and co-workers that we > have it, for fear of what they may think of us. Hell! Even alot of our > BCLD’s don’t know how to treat us. They don’t take it or us seriously! > This is an epidemic, damn it! > Do we need to print bumper stickers? > Do we need to have adds on TV and radio to educate the public? Do we > need to lobby congress? > Or do we just let them bury this in the sand? > 5 million in the US and higher ratios in some other countries, and only > a handful of us are in this group, where are the rest hiding? > If it killed us over night, people night be more aware? > Just pondering again! > Sue > //////// > Relax!!!!!  If it was easily transmitted, all of our spouses, ex’s and > children would have it.  It’s actually difficult to catch….all you > need is blood on blood contact.  Just don’t let strangers with bloody > fingernails pop zits on your ass and you’ll be fine.  Ooops, I > forgot….you’ve already got it. > :-) > Elmo > http://community.webtv.net/elmoemerson/DocElmosHepFile > http://community.webtv.net/elmoemerson/TheFamilyAlbum

Response:

Cactus Jammies wrote: > Classic Elmo, required reading for tx blues.  aha ha

ahahhahahahahahahaha > haz mat fish Gott gutz?

LOL – Hide quoted text — Show quoted text -> ahahhhahhahhahh ahhahahah hah hah hah > let me say that again > hah hah hah > I agree with WS and Sue, the medical system is not ready, it is already > losing track.  The pandemic is concentrated in a certain age and background > demographic and will hit beached and unknowing humanity like that damned > tsunami.  It will cost major bucks. > cactus jammies > //////////////////////////////////

…..OR, are the pharmacuetical companies banking on it costing major bucks! MYE

Response:

48/48

Question:

right on man, good luck on the SVR!! — Russ Visit Alaska @ http://www.tannersacre.com "Donald" <donaldkl…@yahoo.com> wrote in message

news:GP03e.1221$Si1.44@fe03.lga… – Hide quoted text — Show quoted text -> This Saturday its over. Put up with all the CRAP that went with the meds for > 48 weeks. Now ill wait to see if I can get a SVR > This group helped me more than anything or anyone > else…………..THANKS..Don

Response:

On Thu, 31 Mar 2005 19:44:19 -0500, "Donald" <donaldkl…@yahoo.com> wrote: >This Saturday its over. Put up with all the CRAP that went with the meds for >48 weeks. Now ill wait to see if I can get a SVR >This group helped me more than anything or anyone >else…………..THANKS..Don

Glad to hear you made it through Ok Don.  I know things were looking bad for a while with that itching.  Good luck with that SVR. Don

Response:

It’s a GRREAAT feeling! Congrats again Paul on the highly coveted SVR! Life is good Mark – Hide quoted text — Show quoted text -> Nice one Mark.  It’s a good feeling when "shots to go" is only one > digit. > — > Paul > Use the reply by email facility in your > newsreader to send email

Response:

Donald wrote: > This Saturday its over. Put up with all the CRAP that went with the meds for > 48 weeks. Now ill wait to see if I can get a SVR > This group helped me more than anything or anyone > else…………..THANKS..Don

If you are like most in 2-3 weeks and you will remember what a smile feels like.

Response:

In article <GP03e.1221$Si1…@fe03.lga>,  "Donald" <donaldkl…@yahoo.com> wrote: > This Saturday its over. Put up with all the CRAP that went with the meds for > 48 weeks. Now ill wait to see if I can get a SVR > This group helped me more than anything or anyone > else…………..THANKS..Don

48 weeks is hard, you should be very happy you pulled it off and even happier that it’s over.  Hope your tests come back the way they should…

Response:

In article <6lvq41pgen3t2e8f3o7qqkaasbe2m1i…@4ax.com>,  Paul <dontspa…@westgreen.freeserve.co.uk> wrote:

[...] > I hope you start feeling better quite quickly Don.  It took me 2 – 3 > weeks to start getting my act together after tx with a steady > improvement thereafter.

I felt so much better I thought I was all better, and in retrospect I kept hitting walls and wondering why.  I’m now at 4 months and even though the last 4 were FAR better than the 6 before them, I think if I had it to do over again I’d go a little slower and hit fewer walls. I don’t know how much of the chemicals get stored in fat or other parts of the body, but this last week when I started working out really hard for the first time I had about two days of tx weird-head, and I ascribed it to remnants of stuff being dislodged.  Again, if I had it to do over again I’d do lots of stretching and/or yoga to try to pump blood to all of my body to move things out that had collected there during tx.

Response:

On Sat, 02 Apr 2005 04:15:59 GMT, Gordo Mondragon <ga_mondra…@yahoo.com>, in message ID <ga_mondragon-CB56F5.23235401042…@nyctyp01-ge0.rdc-nyc.rr.com>, in the newsgroup alt.support.hepatitis-c wrote: >I felt so much better I thought I was all better, and in retrospect I >kept hitting walls and wondering why.  I’m now at 4 months and even >though the last 4 were FAR better than the 6 before them, I think if I >had it to do over again I’d go a little slower and hit fewer walls. >I don’t know how much of the chemicals get stored in fat or other parts >of the body, but this last week when I started working out really hard >for the first time I had about two days of tx weird-head, and I ascribed >it to remnants of stuff being dislodged.  Again, if I had it to do over >again I’d do lots of stretching and/or yoga to try to pump blood to all >of my body to move things out that had collected there during tx.

The thing that persisted with me for a while was the thirst for water. It was quite mild compared with the thirst I experienced on tx though. The thirst I experienced intermittently *after* tx was different from pre-tx thirst. The other thing I have, I seem to be stuck with.  On tx, I had a problem with my eyes watering – one in particular.  My GP said it was blocked tear ducts but he was wrong.  The eye specialist diagnosed blepharitis.  It’s not dangerous but it is annoying at times.  I do treat it daily (with water and baby shampoo) but it’s not so effective as it was at first.  I’m currently awaiting the result of an eye swab test to see whether or not I should start using some fucithalmic eye drops. I have not seen blepharitis acknowledged as a known side effect of tx but I know of three other people who got this while on tx.  It looks possible that the tx doesn’t actually *cause* the blepharitis but may cause the eyes to be less able to resist it.  I say this because I had several flare ups of it over the years but my eyes dealt with it.  I was undiagnosed at the time though.  Maybe the dryness and general sensitivity of the eyes on tx make it harder to fight it.  However, this doesn’t explain why this condition has persisted (now 7 months after tx). Maybe it’s nothing to do with tx. Maybe it’s just coincidence; I suspect not though. — Paul Use the reply by email facility in your newsreader to send email

Response:

This Saturday its over. Put up with all the CRAP that went with the meds for 48 weeks. Now ill wait to see if I can get a SVR This group helped me more than anything or anyone else…………..THANKS..Don

Response:

Wish you luck with your SVR. Feel better, now that your off meds. Slay the Dragon! Sue

Response:

Right on, Don!! Elmo ///// 48/48   Group: alt.support.hepatitis-c Date: Thu, Mar 31, 2005, 7:44pm (CST+1) From: donaldkl…@yahoo.com (Donald) This Saturday its over. Put up with all the CRAP that went with the meds for 48 weeks. Now ill wait to see if I can get a SVR This group helped me more than anything or anyone else…………..THANKS..Don http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum

Response:

I’m right behind you Don….38 down…10 to go. Good luck with the SVR. Life is good Mark "Donald" <donaldkl…@yahoo.com> wrote in message

news:GP03e.1221$Si1.44@fe03.lga… – Hide quoted text — Show quoted text -> This Saturday its over. Put up with all the CRAP that went with the meds > for > 48 weeks. Now ill wait to see if I can get a SVR > This group helped me more than anything or anyone > else…………..THANKS..Don

Response:

Wonderful news your all done, good luck on the SVR. Juanita

Response:

On Thu, 31 Mar 2005 19:44:19 -0500, "Donald" <donaldkl…@yahoo.com>, in message ID <GP03e.1221$Si1…@fe03.lga>, in the newsgroup alt.support.hepatitis-c wrote: >This Saturday its over. Put up with all the CRAP that went with the meds for >48 weeks. Now ill wait to see if I can get a SVR >This group helped me more than anything or anyone >else…………..THANKS..Don

Nice feeling isn’t it?  Be a good boy and make sure you take that last week of riba won’t you?  :-) I hope you start feeling better quite quickly Don.  It took me 2 – 3 weeks to start getting my act together after tx with a steady improvement thereafter. — Paul Use the reply by email facility in your newsreader to send email

Response:

On Fri, 1 Apr 2005 10:11:53 -0500, "Mark Emerson" <irp3…@comcast.net>, in message ID <FaydnTAYDdlU-dDfRVn…@comcast.com>, in the newsgroup alt.support.hepatitis-c wrote: >I’m right behind you Don….38 down…10 to go. Good luck with the SVR. >Life is good

Nice one Mark.  It’s a good feeling when "shots to go" is only one digit. — Paul Use the reply by email facility in your newsreader to send email

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What are the odds?

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On Mon, 21 Mar 2005 10:26:19 -0500, "ba5416" <ba5…@rogers.com> wrote: >[...] My new Dr ordered an RNA >test last week and have not heard back on that one. Is it possible that I >was exposed, fought it off and will likely never get worse?

You’ll know once the RNA test is back. If that’s negative, you’re in the clear. If not (more likely, only about 15% clear the virus without treatment) then normal liver function tests and a long time since infection do NOT mean that it won’t progress – it’s quite likely that it will, sooner or later, and it may already have. You can have a damaged liver with normal LFT values, though it’s not as likely as when they’re consistently elevated. Wait for the result, and then talk to your doc about the next steps. Thomas — To reach me, complete my last name in the address.

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On Mon, 21 Mar 2005 10:26:19 -0500, "ba5416" <ba5…@rogers.com> wrote: >Hello all,  New guy here. Found out that I had Hep C when I gave blood in >94. Most likely got it during blood transfusions in 1977. Since I had my >blood turned down, I had follow up tests done to confirm the Red Cross test. >Came back positive for antibodies. Have had several LFT’s done with no >abnormal readings. One enzyme is a high normal. My new Dr ordered an RNA >test last week and have not heard back on that one. Is it possible that I >was exposed, fought it off and will likely never get worse? Its been 28 >years now and I feel good, good energy no abnormal blood work……. Or can >it still progress further.. >Would like some input from the group here.

Yes x 2, hep c is a sneaky disease.  Maybe you’ll be one of the lucky ones who fought it off without the need for pharmaceuticals.  Or maybe you didn’t but it is not damaging your liver.  Or maybe it is damaging your liver but you have no noticeable symptoms.  Keep in mind that "high normal" enzymes are quite common with people with hcv.  Me, for instance.  There have been studies that shown high normal is not necessarily good.  The averages include people with liver problems. Don’t be upset if the virus is detected. If it is, get a biopsy or whatever to determine the shape of your liver and make your decisions. Lot of Hep C warriors in this group.  No big deal.  

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Hello all,  New guy here. Found out that I had Hep C when I gave blood in 94. Most likely got it during blood transfusions in 1977. Since I had my blood turned down, I had follow up tests done to confirm the Red Cross test. Came back positive for antibodies. Have had several LFT’s done with no abnormal readings. One enzyme is a high normal. My new Dr ordered an RNA test last week and have not heard back on that one. Is it possible that I was exposed, fought it off and will likely never get worse? Its been 28 years now and I feel good, good energy no abnormal blood work……. Or can it still progress further.. Would like some input from the group here.

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On Mon, 21 Mar 2005 10:26:19 -0500, "ba5416" <ba5…@rogers.com>, in message ID <RKydnaDi_OgIeqPfRVn…@rogers.com>, in the newsgroup alt.support.hepatitis-c wrote: >Hello all,  New guy here. Found out that I had Hep C when I gave blood in >94. Most likely got it during blood transfusions in 1977. Since I had my >blood turned down, I had follow up tests done to confirm the Red Cross test. >Came back positive for antibodies. Have had several LFT’s done with no >abnormal readings. One enzyme is a high normal. My new Dr ordered an RNA >test last week and have not heard back on that one. Is it possible that I >was exposed, fought it off and will likely never get worse? Its been 28 >years now and I feel good, good energy no abnormal blood work……. Or can >it still progress further.. >Would like some input from the group here.

Can’t say yet if you fought it off naturally until your result comes back.  Statistically, there is about a 15-20% chance that your immune system beat the virus without help so it’s quite possible but don’t build up your hopes just yet. — Paul Use the reply by email facility in your newsreader to send email

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jello legs at week one?

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Took my first shot Sunday night as you all know. I was doing okay until yesterday afternoon. I thought maybe my blood sugar was a little low because when I don’t eat right I get a little buzzing in my head and dizzy, sometimes weak. I made a grilled cheese and a glass of milk then laid down. When I got up I felt a little better. Today it started about the same time (early afternoon) my legs turned to jello after walking about 20 feet. Felt a little shakey and buzzy again. Food and laying down didn’t help. I am also having trouble composing this post. And feeling a little panicy Is this a normal reaction to tx?  And if so should it be happening this soon? No other sides except a little itching. I almost feel like I did after I lost half my blood over night due to a bleeding ulser about 8 years ago. Sue

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Tx makes most people weak, its no fun, for me it was my upper body strength was the first thing to go. From then on it was a struggle and one day at a time. Your body is adjusting to poison. Eating is very very important, and lots of water will make a difference the more water you drink the better you will feel. You have really shocked your system. Get used to laying down every now and then its good for you to give it a break. As far as feeling panic stricken your immune system is all amped up now, in over drive. I had to take Valium to calm down on tx sometimes for sleep and for aches and pains. Good luck on shot #2  I hope your doing blood work soon.                                Juanita

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Thanks Juanita. Doing Blood(CBC)on Monday after my 2nd shot. I see my GI & Liver doc on Tuesday. Going to go pee for the 20th time and will chew a xanax. So far they are working for me, valium would really knock my legs out from under me but the sleep is much better. Good Night Sleep tight Sue

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It took about a day for me to feel ill after my first shot. You will get use to after a month or so, stick with it. "burningdaylight" <burningdayli…@private.com> wrote in message

news:bac3df6e3f06004a51a8cf6f1a4e1e3c@localhost.talkaboutsupport.com… – Hide quoted text — Show quoted text -> Took my first shot Sunday night as you all know. I was doing okay until > yesterday afternoon. I thought maybe my blood sugar was a little low > because when I don’t eat right I get a little buzzing in my head and > dizzy, sometimes weak. I made a grilled cheese and a glass of milk then > laid down. When I got up I felt a little better. > Today it started about the same time (early afternoon) my legs turned to > jello after walking about 20 feet. Felt a little shakey and buzzy again. > Food and laying down didn’t help. I am also having trouble composing this > post. And feeling a little panicy > Is this a normal reaction to tx?  And if so should it be happening this > soon? > No other sides except a little itching. > I almost feel like I did after I lost half my blood over night due to a > bleeding ulser about 8 years ago. > Sue

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- Hide quoted text — Show quoted text -burningdaylight wrote: > Took my first shot Sunday night as you all know. I was doing okay until > yesterday afternoon. I thought maybe my blood sugar was a little low > because when I don’t eat right I get a little buzzing in my head and > dizzy, sometimes weak. I made a grilled cheese and a glass of milk then > laid down. When I got up I felt a little better. > Today it started about the same time (early afternoon) my legs turned to > jello after walking about 20 feet. Felt a little shakey and buzzy again. > Food and laying down didn’t help. I am also having trouble composing this > post. And feeling a little panicy > Is this a normal reaction to tx?  And if so should it be happening this > soon? > No other sides except a little itching. > I almost feel like I did after I lost half my blood over night due to a > bleeding ulser about 8 years ago. > Sue

Hey Sue, My first shot was the worst for fever. since then I am just week all over. I have progressed so that it is not a chore to button my sweater. I’ve had to learn to slow everything down. Don’t panic. just relax and do what you can. hang in there, Mary Ann

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My first shot hit me in about 2 hours, I felt like crap. Second shot wasn’t too bad. The third was a piece of cake and I thought I was going to breeze through treatment. By the forth shot I was getting anemic(ribaviran sides) and short of breath, then the headaches started. It all went down hill after that. — Russ Visit Alaska @ http://www.tannersacre.com "burningdaylight" <burningdayli…@private.com> wrote in message

news:bac3df6e3f06004a51a8cf6f1a4e1e3c@localhost.talkaboutsupport.com… – Hide quoted text — Show quoted text -> Took my first shot Sunday night as you all know. I was doing okay until > yesterday afternoon. I thought maybe my blood sugar was a little low > because when I don’t eat right I get a little buzzing in my head and > dizzy, sometimes weak. I made a grilled cheese and a glass of milk then > laid down. When I got up I felt a little better. > Today it started about the same time (early afternoon) my legs turned to > jello after walking about 20 feet. Felt a little shakey and buzzy again. > Food and laying down didn’t help. I am also having trouble composing this > post. And feeling a little panicy > Is this a normal reaction to tx?  And if so should it be happening this > soon? > No other sides except a little itching. > I almost feel like I did after I lost half my blood over night due to a > bleeding ulser about 8 years ago. > Sue

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On Thu, 03 Mar 2005 19:31:55 -0500, "burningdaylight" – Hide quoted text — Show quoted text -<burningdayli…@private.com> wrote: >Took my first shot Sunday night as you all know. I was doing okay until >yesterday afternoon. I thought maybe my blood sugar was a little low >because when I don’t eat right I get a little buzzing in my head and >dizzy, sometimes weak. I made a grilled cheese and a glass of milk then >laid down. When I got up I felt a little better. >Today it started about the same time (early afternoon) my legs turned to >jello after walking about 20 feet. Felt a little shakey and buzzy again. >Food and laying down didn’t help. I am also having trouble composing this >post. And feeling a little panicy >Is this a normal reaction to tx?  And if so should it be happening this >soon? >No other sides except a little itching. >I almost feel like I did after I lost half my blood over night due to a >bleeding ulser about 8 years ago. >Sue

Sue, I never had anything like that myself.  But it is not the same for everybody.  It seems a bit early for your RBCs to be down.  I would discuss the symptoms with my doctor and see what he/she thinks. When do you get your first blood test.  I think I got mine after 2 weeks of tx.  Don’t panic though.  If the itching is a bother that can usually be treated.  If you noticing your skin getting dry it is a good idea to get some moisturizer for that.  Also, drink a gallon or so of water a day.  I don’t know if anybody has mentioned the importance of water while on tx.  It is EXTREMELY important.

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Yeah, it’s normal.  So is the panic.  It’s the drugs, of course.  I found it helped if I went outside and and sat down breathing fresh air til that feeling went away.  Never felt paniced again after I started doing anti-d’s.   Elmo ///////// jello legs at week one?   Group: alt.support.hepatitis-c Date: Thu, Mar 3, 2005, 7:31pm (CST+1) From: burningdayli…@private.com (burningdaylight) Took my first shot Sunday night as you all know. I was doing okay until yesterday afternoon. I thought maybe my blood sugar was a little low because when I don’t eat right I get a little buzzing in my head and dizzy, sometimes weak. I made a grilled cheese and a glass of milk then laid down. When I got up I felt a little better. Today it started about the same time (early afternoon) my legs turned to jello after walking about 20 feet. Felt a little shakey and buzzy again. Food and laying down didn’t help. I am also having trouble composing this post. And feeling a little panicy Is this a normal reaction to tx? And if so should it be happening this soon? No other sides except a little itching. I almost feel like I did after I lost half my blood over night due to a bleeding ulser about 8 years ago. Sue http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum

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More like a never ending roller-coaster ride up and ‘downhill’ til you have the dry heaves.  :-) Elmo //////  It all went down hill after that. Russ /////////// http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum

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Doing a little better today. Drank a Boost (energy drink) this morning with my two toaster waffles that I eat with the riba. Thought that possibly all the water could be flushing my electrolites (hope I spelled it right) so I’m drinking a little Gatorade between the water shots. I’m not overweight but Slimfast always gave me energy. Didn’t see iron listed on the label, most of the other neutritional drinks have it, besides it’s a quick snack with vitamins.

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Good advice, don’t over do things, that when I’d get problems or end up heaving my guts out. aloha, dave — — davon96720 IM@ yahoo, aim, aol, msn davon96720@hotmail davon96…@yahoo.com http://members.triopod.com/davon96720 No of SETI units returned: 1611 Processing time: 1 years, 344 days, 5 hours. (Total hours: 17021) www.setiathome.ssl.berkeley.edu "JV" <Meling…@webtv.net> wrote in message

news:25839-4227B2EC-224@storefull-3177.bay.webtv.net… – Hide quoted text — Show quoted text -> Tx makes most people weak, its no fun, for me it was my upper body > strength was the first thing to go. From then on it was a struggle and > one day at a time. > Your body is adjusting to poison. Eating is very very important, and > lots of water will make a difference the more water you drink the better > you will feel. You have really shocked your system. Get used to laying > down every now and then its good for you to give it a break. As far as > feeling panic stricken your immune system is all amped up now, in over > drive. I had to take Valium to calm down on tx sometimes for sleep and > for aches and pains. Good luck on shot #2  I hope your doing blood work > soon.                                Juanita

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The water is important, I think the itching was the only side effect that I didn’t get.  Your blood did go down early in treatment, so make sure you eat well and take a mult-vitamin mineral, when I was off feed that seemed to coorelate with my count. aloha, dave — — davon96720 IM@ yahoo, aim, aol, msn davon96720@hotmail davon96…@yahoo.com http://members.triopod.com/davon96720 No of SETI units returned: 1611 Processing time: 1 years, 344 days, 5 hours. (Total hours: 17021) www.setiathome.ssl.berkeley.edu "Kozure Ookami" <swarg…@yahoo.com> wrote in message

news:mpvf21hu05g1sdb36ed50u0i4bck900g6d@4ax.com… – Hide quoted text — Show quoted text -> On Thu, 03 Mar 2005 19:31:55 -0500, "burningdaylight" > <burningdayli…@private.com> wrote: >>Took my first shot Sunday night as you all know. I was doing okay until >>yesterday afternoon. I thought maybe my blood sugar was a little low >>because when I don’t eat right I get a little buzzing in my head and >>dizzy, sometimes weak. I made a grilled cheese and a glass of milk then >>laid down. When I got up I felt a little better. >>Today it started about the same time (early afternoon) my legs turned to >>jello after walking about 20 feet. Felt a little shakey and buzzy again. >>Food and laying down didn’t help. I am also having trouble composing this >>post. And feeling a little panicy >>Is this a normal reaction to tx?  And if so should it be happening this >>soon? >>No other sides except a little itching. >>I almost feel like I did after I lost half my blood over night due to a >>bleeding ulser about 8 years ago. >>Sue > Sue, I never had anything like that myself.  But it is not the same > for everybody.  It seems a bit early for your RBCs to be down.  I > would discuss the symptoms with my doctor and see what he/she thinks. > When do you get your first blood test.  I think I got mine after 2 > weeks of tx.  Don’t panic though.  If the itching is a bother that can > usually be treated.  If you noticing your skin getting dry it is a > good idea to get some moisturizer for that.  Also, drink a gallon or > so of water a day.  I don’t know if anybody has mentioned the > importance of water while on tx.  It is EXTREMELY important.

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Try to get some protein in your system in the mornings, and fruit or juices, eat well in general.  I got into Gatorade while on chemo, I thinned it out with sweetener to avoid some sugar, I was overweight anyway, but often added a sprinkle of lite salt to keep the electrolyts up, since you’ll drinking alot of water and flushing your system.  Try those other drinks that aren’t diet like slimfast, I can’t think of the names, it’ll provide more nutrition, particularly if you’re not overweight. aloha, dave — — davon96720 IM@ yahoo, aim, aol, msn davon96720@hotmail davon96…@yahoo.com http://members.triopod.com/davon96720 No of SETI units returned: 1611 Processing time: 1 years, 344 days, 5 hours. (Total hours: 17021) www.setiathome.ssl.berkeley.edu "burningdaylight" <burningdayli…@private.com> wrote in message

news:d846b944f2a750eebb5b4415956e2bb9@localhost.talkaboutsupport.com… – Hide quoted text — Show quoted text -> Doing a little better today. Drank a Boost (energy drink) this morning > with > my two toaster waffles that I eat with the riba. Thought that possibly all > the water could be flushing my electrolites (hope I spelled it right) so > I’m drinking a little Gatorade between the water shots. > I’m not overweight but Slimfast always gave me energy. Didn’t see iron > listed on the label, most of the other neutritional drinks have it, > besides it’s a quick snack with vitamins.

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I found the slimfast blended with a banana was a good way to choke down the morning riba and get somekind of nutrients in me. Hagan Dass was good too because of the mouth sores. Like they say, poor nutrition is better then no nutrition!! — Russ Visit Alaska @ http://www.tannersacre.com "davon96720" <illu…@verizon.net> wrote in message

news:tKPWd.27569$QQ3.1373@trnddc02… – Hide quoted text — Show quoted text -> Try to get some protein in your system in the mornings, and fruit or juices, > eat well in general.  I got into Gatorade while on chemo, I thinned it out > with sweetener to avoid some sugar, I was overweight anyway, but often added > a sprinkle of lite salt to keep the electrolyts up, since you’ll drinking > alot of water and flushing your system.  Try those other drinks that aren’t > diet like slimfast, I can’t think of the names, it’ll provide more > nutrition, particularly if you’re not overweight. > aloha, > dave > — > — > davon96720 IM@ yahoo, aim, aol, msn > davon96720@hotmail davon96…@yahoo.com > http://members.triopod.com/davon96720 > No of SETI units returned: 1611 > Processing time: 1 years, 344 days, 5 hours. > (Total hours: 17021) > www.setiathome.ssl.berkeley.edu > "burningdaylight" <burningdayli…@private.com> wrote in message > news:d846b944f2a750eebb5b4415956e2bb9@localhost.talkaboutsupport.com… > > Doing a little better today. Drank a Boost (energy drink) this morning > > with > > my two toaster waffles that I eat with the riba. Thought that possibly all > > the water could be flushing my electrolites (hope I spelled it right) so > > I’m drinking a little Gatorade between the water shots. > > I’m not overweight but Slimfast always gave me energy. Didn’t see iron > > listed on the label, most of the other neutritional drinks have it, > > besides it’s a quick snack with vitamins.

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Great idea, I should have thought of that.  Guess I was to sick to think it up. aloha, dave — — "All that glitters in not gold, all who wander are not lost" Tolkein davon96720 IM@ yahoo, aim, aol, msn davon96720@hotmail davon96…@yahoo.com http://members.triopod.com/davon96720 No of SETI units returned: 1611 Processing time: 1 years, 344 days, 5 hours. (Total hours: 17021) www.setiathome.ssl.berkeley.edu "Russ" <sourdo55 at yahoo.com> wrote in message news:112ns878r9dhf35@corp.supernews.com… – Hide quoted text — Show quoted text ->I found the slimfast blended with a banana was a good way to choke down the > morning riba and get somekind of nutrients in me. Hagan Dass was good too > because of the mouth sores. > Like they say, poor nutrition is better then no nutrition!! > — > Russ > Visit Alaska @ http://www.tannersacre.com > "davon96720" <illu…@verizon.net> wrote in message > news:tKPWd.27569$QQ3.1373@trnddc02… >> Try to get some protein in your system in the mornings, and fruit or > juices, >> eat well in general.  I got into Gatorade while on chemo, I thinned it >> out >> with sweetener to avoid some sugar, I was overweight anyway, but often > added >> a sprinkle of lite salt to keep the electrolyts up, since you’ll drinking >> alot of water and flushing your system.  Try those other drinks that > aren’t >> diet like slimfast, I can’t think of the names, it’ll provide more >> nutrition, particularly if you’re not overweight. >> aloha, >> dave >> — >> — >> davon96720 IM@ yahoo, aim, aol, msn >> davon96720@hotmail davon96…@yahoo.com >> http://members.triopod.com/davon96720 >> No of SETI units returned: 1611 >> Processing time: 1 years, 344 days, 5 hours. >> (Total hours: 17021) >> www.setiathome.ssl.berkeley.edu >> "burningdaylight" <burningdayli…@private.com> wrote in message >> news:d846b944f2a750eebb5b4415956e2bb9@localhost.talkaboutsupport.com… >> > Doing a little better today. Drank a Boost (energy drink) this morning >> > with >> > my two toaster waffles that I eat with the riba. Thought that possibly > all >> > the water could be flushing my electrolites (hope I spelled it right) >> > so >> > I’m drinking a little Gatorade between the water shots. >> > I’m not overweight but Slimfast always gave me energy. Didn’t see iron >> > listed on the label, most of the other neutritional drinks have it, >> > besides it’s a quick snack with vitamins.

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On Thu, 03 Mar 2005 19:12:55 -0500, "burningdaylight" <burningdayli…@private.com> wrote:

Sue How are your legs feeling now (almost week later)? Any better?  I hope it’s past or miniimalized. But I remember quite a few people having their toughest time in the 2nd or 3rd week. I kept waiting, its week 16 and nothing major has really materialized. (But I admit the damn rash is starting to get a bit old) Hope your "Jello Legs" were just a temporary thing, you’ve got good spirit stay with it girl DB Thanks Be Well, Be Strong, Get Better! DrBenway (not a Dr nor did I even play one on TV,)

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In article <kttp21t7fnh6dcj5o2i24jdi1a9vhes…@4ax.com>,  DrBenway <u…@usenet.net> wrote: > On Thu, 03 Mar 2005 19:12:55 -0500, "burningdaylight" > <burningdayli…@private.com> wrote: > Sue > How are your legs feeling now (almost week later)? > Any better?  I hope it’s past or miniimalized.

I had that, hard to remember exactly when, I just felt weak all the time but found that if I moved slow and steady then I was fine.  I sort of freaked at first (I’m going to fall down the stairs!  I’m going to pass out!) but I never did anything bad.   Slow and steady and very low expectations.  I spent a week in Las Vegas that way (with my in-laws!) and got through it just fine. > But I remember quite a few people having their toughest time in the > 2nd or 3rd week. I kept waiting, its week 16 and nothing major has > really materialized.

I think that the first month for me was the worst because I didn’t know what was going to happen next or how to deal with it or what I could expect and it freaked me a bit.  After that, it was just more of the same. G

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Isn’t amazing that once we find out that we are sick is when we start to eat and live right? I only drank liquids when it’s 100 degrees in the shade, besides morning coffee or milk and cookies. Vegtables? three or four times a week. Breakfast a 2pm. Vitamins and suppliments on and off, but when I take them it’s about a hand full a night for a month and then put back in the closet when company came. Out of sight out of mind! I think that the biggest shock to my system was the water. I even spent about $200.00 to buy a Aquasana water filtering system that mounts under the sink. We have well water that contains a lot of iron. I fill a gallon and put it in frig every morning. Even filter my coffee water (one thing I won’t give up) I am cutting back on some of the suppliments, and starting to eat better. Thanks everyone for all the good advice. Sue  

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Glad to hear your reply. I can totally relate to the wondering when part. Glad that you are still okay, it’s encouraging. I just posted "Shot 2" but you answered some of my questions here. Vegas sound good, I wanted to go to Atlantic City before I stared tx, but never made it, It’ only about a two and a half hour drive from here. Still plan on going but it’s no Vegas! Good Night Sue

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In article <96a0cc5d8284483c8b3ee2139943e…@localhost.talkaboutsupport.com>,  "burningdaylight" <burningdayli…@private.com> wrote:

[...] > I think that the biggest shock to my system was the water. I even spent > about $200.00 to buy a Aquasana water filtering system that mounts under > the sink. We have well water that contains a lot of iron. I fill a gallon > and put it in frig every morning. Even filter my coffee water (one thing I > won’t give up)

I have a filter on the water that goes to the fridge so my ice and water is good.  On Tx I would carry around a big plastic glass filled with water and sip from it whenever I’d see it.  Sometimes mixed in a little gatorade or powerade but that was only when I was living off of ice cream sandwiches.   I didn’t drink much coffee but I found that green tea was great, and I could save the coffee for when I really needed it. G

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Sue, Gordo’s experience is similar to mine.  Take ‘er slow and easy.  My understanding on it is if you lose your breath, it’s because your body needs oxygen so you stop and breathe a few deep ones and then continue.  The totally falling down sick symptom happened to me in week seven and eight, but as I’ve learned since, this seems to be a siginificant timeline event experienced by a lot of others, too.  There is a gradual buildup of RibaVirine in the system (as I understand it) that combine with the effects of the A2B IFN, reducing your hgb and rbc at about week seven.  The combinant effects of the two synergize and you go into a mild form of shock. Your body responds to this new shock by saying "lets lay down right now, and forget why cause it don’t matter".  And then things rebound slightly enough a couple of weeks later in the hgb department then which helps stablize your body’s response mechanisms to the shock of the synergy and  therefore reduces the extreme symptoms.  There have been open discussions about what component of the tx combo actually does which to patients and when and in what part of tx.  I have no comment to that minor controversy. Anyone, Is this too wordy or off track?  I chose to believe this stuff.  Am I way off base? Cactus Jammies details of my case Week 22 of 48   IFN A2b 1200 mmg Riba/day  last VL showed almost three log drop, no SVR yet, but not too worried.  JV says it feels better afterwards so that is good enough for me for now! /////////////////////////////////////////////////////////////////////////// "Gordo Mondragon" <ga_mondra…@yahoo.com> wrote in message

news:ga_mondragon-926FE2.20104607032005@nyctyp01-ge0.rdc-nyc.rr.com… – Hide quoted text — Show quoted text -> In article <kttp21t7fnh6dcj5o2i24jdi1a9vhes…@4ax.com>, > DrBenway <u…@usenet.net> wrote: >> On Thu, 03 Mar 2005 19:12:55 -0500, "burningdaylight" >> <burningdayli…@private.com> wrote: >> Sue >> How are your legs feeling now (almost week later)? >> Any better?  I hope it’s past or miniimalized. > I had that, hard to remember exactly when, I just felt weak all the time > but found that if I moved slow and steady then I was fine.  I sort of > freaked at first (I’m going to fall down the stairs!  I’m going to pass > out!) but I never did anything bad. > Slow and steady and very low expectations.  I spent a week in Las Vegas > that way (with my in-laws!) and got through it just fine. >> But I remember quite a few people having their toughest time in the >> 2nd or 3rd week. I kept waiting, its week 16 and nothing major has >> really materialized. > I think that the first month for me was the worst because I didn’t know > what was going to happen next or how to deal with it or what I could > expect and it freaked me a bit.  After that, it was just more of the > same. > G

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I love coffee, but on the treatment I didn’t like it. Did a lot of tea though, some of the herbal ones were soothing for me. — Russ Visit Alaska @ http://www.tannersacre.com "Gordo Mondragon" <ga_mondra…@yahoo.com> wrote in message

news:ga_mondragon-701350.21150207032005@nyctyp01-ge0.rdc-nyc.rr.com… – Hide quoted text — Show quoted text -> In article > <96a0cc5d8284483c8b3ee2139943e…@localhost.talkaboutsupport.com>, >  "burningdaylight" <burningdayli…@private.com> wrote: > [...] > > I think that the biggest shock to my system was the water. I even spent > > about $200.00 to buy a Aquasana water filtering system that mounts under > > the sink. We have well water that contains a lot of iron. I fill a gallon > > and put it in frig every morning. Even filter my coffee water (one thing I > > won’t give up) > I have a filter on the water that goes to the fridge so my ice and water > is good.  On Tx I would carry around a big plastic glass filled with > water and sip from it whenever I’d see it.  Sometimes mixed in a little > gatorade or powerade but that was only when I was living off of ice > cream sandwiches. > I didn’t drink much coffee but I found that green tea was great, and I > could save the coffee for when I really needed it. > G

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Glad to hear about your VL, sounds like SVR is in your future. We all have amazing will power! Yes we can Do This! No matter what it takes! Sue

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Understanding Paul King's tactics

Question:

‘HIV’ does not exist except as a money making myth. It has never been isolated and nothing you say can change that fact. The only faith is in those who cling to this debunked scam.

Response:

‘HIV’ does not exist except as a money making myth.

Then of course neither does hepatitis B or C, HPV, FIV, CAEV, herpesviruses, or syphilis or tuberculosis or mycobacteria or influenza….. It has never been isolated and nothing you say can change that fact.

It has been isolated. I don’t need to say anything because that’s the fact! The only faith is in those who cling to this debunked scam.

Nope. You’re the one who is clinging desperately to the flotsam and jetsam of your mind.                 George M. Carter ** See http://www.miltenyibiotec.com/service/tec/sp/pdf/SP-Iso-HIV1.pdf ** http://www.bioline.org.br/request?oc96135 ** Takehisa J, Zekeng L, Ido E, Yamaguchi-Kabata Y, Mboudjeka I, Harada Y, Miura T, Kaptu L, Hayami M. Human immunodeficiency virus type 1 intergroup (M/O) recombination in cameroon. J Virol. 1999 Aug;73(8):6810-20.     Laboratory of Viral Pathogenesis, Institute for Virus Research, Kyoto University, Sakyo-ku, Kyoto 606-8507, Japan.     Here we describe, for the first time, recombinants between two highly divergent major groups of human immunodeficiency virus type 1 (HIV-1), M and O, within a Cameroonian woman infected with three different HIV-1 strains, a group O virus, a subtype D virus, and a recently reported IBNG (A/G)-like recombinant virus. Using nested extra-long PCR amplification, we sequenced from the pol region to the env region including accessory genes of the viral genome obtained from the patient’s uncultured peripheral blood mononuclear cells and examined the phylogenetic position of each gene. Compared with sequential blood samples obtained in 1995 and 1996, there were multiple segmental exchanges between three HIV-1 strains (O, D, and IBNG) and all the recombinants appeared to be derived from a common M/O ancestor. Importantly, recombination between groups M and O occurred, even though the homology between these two groups is 69, 76, 68, and 55% in the gag, pol, vif-vpr, and env regions, respectively. Recombination between strains with such distant lineages may contribute substantially to generating new HIV-1 variants. ** Bhattacharya B, Weiss RA, Davis C, Holmes H, Hockley D, Fassati A. Detection and quantitation of human immunodeficiency virus type-1 particles by confocal microscopy. J Virol Methods. 2004 Sep 1;120(1):13-21. Department of Immunology and Molecular Pathology, Windeyer Institute of Medical Sciences, Medical School, Royal Free and University College London, 46 Cleveland Street, London W1T 4JF, UK.     A method is described to visualise directly human immunodeficiency virus type-1 (HIV-1) particles. HIV-1 containing samples were adsorbed onto a plastic surface and doubly labeled with antibodies specific for viral proteins and sensitive nucleic acids dyes. Laser scanning confocal microscopy detected co-localization of viral proteins and nucleic acids, thus allowing specific identification of HIV. Using this technique, we have quantified eight different HIV-1 sub-types and three HIV-1 groups in tissue culture supernatants from infected peripheral blood mononuclear cells (PBMCs). Confocal counts correlated well with electron microscopy (EM) counts and HIV-1 RNA loads as determined by quantitative PCR. Confocal microscopy may prove to be a simple alternative to electron microscopy for virus identification and quantitation. ** Morita T, Kawabata H, Yanagihara Y, Horikoshi Y, Mimaya J. Time-course detection of HIV-1 proviral DNA and genomic RNA by polymerase chain reaction in sera from seropositive and seronegative hemophiliacs treated with clotting factor concentrates. Int J Hematol. 1993 Oct;58(3):225-32. Laboratory of Environmental Microbiology, Graduate School of Nutritional and Environmental Sciences, University of Shizuoka, Japan.     The detection of HIV-1 proviral DNA and genomic RNA was performed by polymerase chain reaction (PCR) in hemophiliacs treated with non-heated clotting factor concentrates. Reamplification with double PCR was performed on those samples that were negative for single PCR. Primer pairs of the gag, env, and pol regions were used for the amplification of HIV-1 proviral DNA sequences. Amplification of the gag region by the SK38/SK39 primer pair was useful for the detection of proviral DNA sequences. With double PCR, 44 of 47 seropositive samples (93.6%) were PCR-positive. All 23 seronegative samples were PCR-negative. Reverse transcription and PCR amplification (RT-PCR) according to the primer pair of the gag region were performed to detect HIV-1 genomic RNA sequences. Double RT-PCR analysis of the HIV-1 RNA sequence in frozen-preserved sera revealed that 49 of 55 seropositive sera (89.1%) were PCR-positive. Although quantification of the PCR method was not performed in this study, we concluded that, in patients in whom proviral DNA or genomic RNA sequences are detected with difficulty with PCR, the onset and progression of HIV-1 infection is delayed.

Response:

Dear Gary, Most of what you wrote has been written many times by others and still the proposed entity has not been isolated.  Does HIV exist?  

Yes. If it doesn’t, then no virus or bacteria or fungus exists. They use the same techniques to identify them (and there are many) as for HIV. And HIV exists. For you to believe this at this point is truly as boneheaded as some faith-based notion that "abstinence only" works.                 George M. Carter

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Dear Gary, Most of what you wrote has been written many times by others and still the proposed entity has not been isolated.  Does HIV exist?  No, given the complete lack of evidence for its existence via isolation. Additionally, the virusmyth.net website is quite good but has not been updated recently.  The Perth Group has their own website, and I invite people to investigate it on their own:  http://www.theperthgroup.com The Perth Group are not the only people that are able to see that the propsed entity does not exist.  Many individuals around the world have been surprised to learn over the years that they have been lead to believe in a ghostly construct. The evidence for its existence from those such as yourself and others needing to sell patent medicines have depended upon PCR to fulfill Koch’s Postulates, for instance.  PCR was a technique turned into a test and may not be used as verification for the existence of an entity but may be used to make a lot of what one knows one has for study. Kary Mullis who won the Nobel Prize for PCR has stated that if you need PCR to see if HIV is there it ain’t. You and others may also want to investigate more information on the tests.  Tests?  Well lab work that supports the construct by dilution rates of 400 parts water to one part blood to keep the statistic at a reasonable level.  It is a contiuning shame that such a lie persists. http://www.robertogiraldo.com Thank you, George DeCarlo – Hide quoted text — Show quoted text – I don’t remember who wrote this originally but I was going through some of my old files and ran across it. Is this your work Bennet? Does HIV Exist? It may come as some surprise to people but there is a group of people who maintain that HIV, a causitive agent for AIDS, does not even exist. You read that right; there is a group headed by Eleni Papadopulos-Eleopulos, Valendar Turner, John Papadimitriou, David Causer and Stefan Lanka, commonly referred to as the Perth Group because they are based in Perth, Australia, who, incredible as it may seem, claim that HIV does not even exist. They have a web site called Virusmyth.com, (http://www.virusmyth.com) where their arguments, such as they are, are laid out. While their views have long ago been refuted by a mountain of evidence, they cling to their belief in the face of overwhelming evidence that HIV doesn’t exist, so cannot be the cause of the AIDS pandemic that is now ravaging the African subcontinent. They have even issued a $25,000 challenge to the research community to prove the existence of the virus (http://www.virusmyth.com/aids/award.htm); …. — Gary Stein

Response:

I don’t remember who wrote this originally but I was going through some of my old files and ran across it. Is this your work Bennet? Does HIV Exist? It may come as some surprise to people but there is a group of people who maintain that HIV, a causitive agent for AIDS, does not even exist. You read that right; there is a group headed by Eleni Papadopulos-Eleopulos, Valendar Turner, John Papadimitriou, David Causer and Stefan Lanka, commonly referred to as the Perth Group because they are based in Perth, Australia, who, incredible as it may seem, claim that HIV does not even exist. They have a web site called Virusmyth.com, (http://www.virusmyth.com) where their arguments, such as they are, are laid out. While their views have long ago been refuted by a mountain of evidence, they cling to their belief in the face of overwhelming evidence that HIV doesn’t exist, so cannot be the cause of the AIDS pandemic that is now ravaging the African subcontinent. They have even issued a $25,000 challenge to the research community to prove the existence of the virus (http://www.virusmyth.com/aids/award.htm); The folks at Virusmyth have established one of those contests that the uncritical among us seem to think has some semblance of perspicacious thought. We see these from time to time; there is Kent Hovind’s $250,000 reward for "empirical evidence of evolution" (http://www.drdino.com/), for example. Challenges such as this are not intrinsically daft, they can be quite effective when the arguments are sound, the challenge is simple and the conditions are not otherwise strawmen. There is, for example, James Randi’s well constructed challenge for evidence of the paranormal (http://www.randi.org/research/challenge/index.html ). On the face of it, the Virusmyth.com challenge seems scientifically rigorous yet simple; the hallmarks of a good challenge. Unfortunately for the folks at Perth, it merely seems so. One thing is clear from the response to the researcher who’s claimed the prize; the folks over at Virusmyth.com have no intention of allowing the contest to be won. The researcher who has claimed the prize, by the way, is Peter Duesberg, an iconoclastic Berkeley retrovirologist who claims that although HIV does indeed exist, it is not the cause of AIDS. The Perth Group has taken steps to ensure that their challenge will remain unanswered. They do this partly by setting unreasonable rules, partly by constructing strawmen, and partly by moving the goalposts. Unreasonable Rules The challenge itself, is carefully crafted to ensure that no-one is likely to take them up. This ensures that they can continue to claim that as the challenge has not been satisfied, their arguments must be devastating to the research and medical establishment. The reason for this is simply that the Perth group insists that the proof for the existence of HIV can arise from their method alone. No other evidence is acceptable. Basically they have seven steps (below) that they claim are required to prove that HIV is real. Imagine a reward for proof that the earth is round. But then requiring for proof that claimants to the prize must travel to the moon and take a picture. No other methods, from any other source at any other time would be acceptable. While flying to the moon and taking pictures of the earth would indeed prove that we live on a round ball of mud, it is expensive, dangerous and wholly unnecessary for that purpose. We could, for example, ask someone to walk several hundred miles, look down a well and measure the angle of the sun at noon and compare it to a well near us. Or we could sit by a bay on a calm clear day and watch boats sail away. Or we could plot our path through the heavens. Or we could observe the shadow of the earth ON the moon. Or we could circumnavigate the earth in sailing ships and plot our latitude. Or we could ascend in a balloon, or in an airplane, or launch a satellite. All of these methods have been used, some since ancient times, to demonstrate that the earth is round. We do not need to isolate HIV by the techniques cited by the Perth group to prove its existence. To insist upon their method to establish the reality of HIV is to unequivocally demonstrate one’s credulity before charlatans. A Classic Strawman Argument A strawman argument is an argument that uses a contrived and false premise that is used expressly to deconstruct another argument. The people at Virusmyth.com claim that since HIV researchers have not used guidelines established in 1973 at the Institute Pasteur to purify HIV, then the very existence of the virus is questionable. Unfortunately for the Perth Group, no such guidelines were established at Pasteur or anywhere else. Despite what it says at their site, the whole challenge is based upon the biggest hairiest strawman I’ve ever seen. From the Virusmyth.com web site (http://www.virusmyth.com/aids/award.htm); "The rules for isolation of a retrovirus were thoroughly discussed at the Pasteur Institute, Paris, in 1973, and are the logical minimum requirements for establishing the independent existence of HIV. They are: 1.Culture of putatively infected tissue. 2. Purification of specimens by density gradient ultracentrifugation. 3. Electron micrographs of particles exhibiting the morfological (sic) characteristics and dimensions (100-120nm) of retroviral particles at the sucrose (or percoll) density of 1.16 gm/ml and containing nothing else, not even particles of other morphologies or dimensions. 4. Proof that the particles contain reverse transcriptase. 5. Analysis of the particles’ proteins and RNA and proof that these are unique. 6. Proof that 1-5 are a property only of putatively infected tissues and can not be induced in control cultures. These are identical cultures, that is, tissues obtained from matched, unhealthy subjects and cultured under identical conditions differing only in that they are not putatively infected with a retrovirus. 7. Proof that the particles are infectious, that is when PURE particles are introduced into an uninfected culture or animal, the identical particle is obtained as shown by repeating steps 1-5." Edward King (http://www.users.dircon.co.uk/~eking/index.htm) published a rebuttal to the Virusmyth challenge in AIDS Treatment Update (http://www.virusmyth.com/aids/news/ekisolation.htm). From that essay. "Contrary to the implication by Continuum, the Pasteur Institute did not draw up such guidelines in 1973. When we asked Continuum to provide the reference for a published account of the Pasteur Institute’s guidelines, they could only supply two papers which did describe research into retroviruses, but did not themselves meet the seven steps Continuum was now requesting for HIV. Ironically, the authors of the papers cited by Continuum were also the first to describe the isolation of HIV in 1983." Indeed, those two papers cited by the Perth Group are; Sinoussi F, Mendiola L, Chermann JC. (1973). Purification and partial differentiation of the particles of murine sarcoma virus (M. MSV) according to their sedimentation rates in sucrose density gradients. Spectra 4:237-243. Toplin I. (1973). Tumor Virus Purification using Zonal Rotors. Spectra 4:225-235. Spectra is an obscure French-Canadian journal and is blastedly hard to get hold of. The journal is available in the U.S. only at large University libraries with comprehensive journal collections. Still, the papers ARE available.  They DO NOT use guidelines from the Pasteur Institute. Further, take a gander at that first author’s name on the first paper cited. Recognize her? She was a member of the group who first isolated HIV in 1983. Her paper is cited below. Virusmyth responds to the Dr. King’s point about the absurdity of basing a challenge to purify the virus on non-existent "guidelines" by agreeing that the papers they site for evidence for these guidelines do not, in fact, follow them (http://www.virusmyth.com/aids/data/epreplyek.htm). One is left to wonder, then, why they are surprised that few people take them seriously. Amphiboly The dead give away for intellectual dishonesty is the practice of amphiboly, or the use of equivocal, poorly worded or murkily-stated premises to further an argument. Back in school when faced with an assignment from a challenging professor that we were unable to meet, we used to refer to this strategy this way; "if you can’t dazzle them with brilliance, baffle them with bullshit". The folks at Virusmyth use a form of amphiboly known as moving the goalposts, wherein the premise of an argument is changed when the argument is specifically refuted. For example, when Ed King refuted their claim that the Pasteur Institute did not establish the so-called guidelines for proving the existence of a retrovirus and when Virusmyth was forced to admit that the papers they claim supported their position did not in fact do so, they suddenly switched tactics. They claimed that although the Spectra authors did not use the non-existent Pasteur guidelines, they did not need to because those authors were purifying RNA tumor viruses (http://www.virusmyth.com/aids/data/epreplyek.htm). When challenged by Peter Duesberg to explain why 19 full length clones of HIV does not constitute proof that the viral genome exists, they claim that it is because the viral genomes are not all the same size or sequence (http://www.virusmyth.com/aids/data/epreplypd2.htm). Here they conveniently ignore the very well known fact that RT is highly error prone. More convenient for Virusmyth, is that by changing the subject they believe they have rebutted Duesberg’s argument. The reader will also note the vague and undefined nature of some of their demands in the challenge. For example they require that tissue from "matched, unhealthy subjects" be used to isolate highly purified virions which are then … read more »

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