going in the right direction ….

Question:

In article <9hjuf.20469$9e.11…@tornado.texas.rr.com>, dwil…@austin.rr.com says… – Hide quoted text — Show quoted text ->"Frank" <HangininTh…@verizon.com> wrote in message >news:eIKdnfNr5txELyTeRVn-vA@comcast.com… >> In article <8Nmtf.14980$g_6.3…@tornado.texas.rr.com>, >> dwil…@austin.rr.com says… >>>"Stretch" <lonep…@mail.com> wrote in message >>>news:11rbrt1hpk34f47@corp.supernews.com… >>>> mags wrote: >>>>> Should be food for your soul Stretch.  Your doing well. >>>>> Mags >>>> Does make it a little easier as I prepare for my Friday ritual … >>>> Thanks all. >>>Yeah I bet it does, I haven’t gotten any vl numbers yet so I just have to >>>make use of screaming "Die! Die! Die! you little nasties!" as I inject. I >>>am >>>hoping it motivates the peginterferon to get in there and kick some ass! >>>dort >> I hope you don’t live in an apartment, dort!    ;} >Frank, would you believe I do live in an apt. with 8 cats and a room mate >the yells obscenities while he does whatever he does on that playstation >thing. We don’t know any of our neighbors, wonder why? >dort

LOL!  I’ll bet your neighbors recently armed themselves and sit there in the dark shaking violently.  

Response:

In article <8Nmtf.14980$g_6.3…@tornado.texas.rr.com>, dwil…@austin.rr.com says… – Hide quoted text — Show quoted text ->"Stretch" <lonep…@mail.com> wrote in message >news:11rbrt1hpk34f47@corp.supernews.com… >> mags wrote: >>> Should be food for your soul Stretch.  Your doing well. >>> Mags >> Does make it a little easier as I prepare for my Friday ritual … >> Thanks all. >Yeah I bet it does, I haven’t gotten any vl numbers yet so I just have to >make use of screaming "Die! Die! Die! you little nasties!" as I inject. I am >hoping it motivates the peginterferon to get in there and kick some ass! >dort

I hope you don’t live in an apartment, dort!    ;}

Response:

In article <1136036183.632278.79…@o13g2000cwo.googlegroups.com>, Chill…@rogers.com says… >Nasties are just to nice – bastards is more appropriate don’t you >think? >Mags

I call them little mofos.

Response:

"Frank" <HangininTh…@verizon.com> wrote in message

news:eIKdnfNr5txELyTeRVn-vA@comcast.com… – Hide quoted text — Show quoted text -> In article <8Nmtf.14980$g_6.3…@tornado.texas.rr.com>, > dwil…@austin.rr.com says… >>"Stretch" <lonep…@mail.com> wrote in message >>news:11rbrt1hpk34f47@corp.supernews.com… >>> mags wrote: >>>> Should be food for your soul Stretch.  Your doing well. >>>> Mags >>> Does make it a little easier as I prepare for my Friday ritual … >>> Thanks all. >>Yeah I bet it does, I haven’t gotten any vl numbers yet so I just have to >>make use of screaming "Die! Die! Die! you little nasties!" as I inject. I >>am >>hoping it motivates the peginterferon to get in there and kick some ass! >>dort > I hope you don’t live in an apartment, dort!    ;}

Frank, would you believe I do live in an apt. with 8 cats and a room mate the yells obscenities while he does whatever he does on that playstation thing. We don’t know any of our neighbors, wonder why? dort

Response:

In article <3014-43B6ACD2-…@storefull-3253.bay.webtv.net>, elmoemer…@webtv.net says… >Re: going in the right direction ….   >Group: alt.support.hepatitis-c Date: Sat, Dec 31, 2005, 1:27am (CST+7) >From: nots…@nuncaspam.eduorg (Michael=A0Cody) >Gordo Mondragon wrote: >Yep. What genotype are you? >Kinda reminds of the days when people said "What sign are you, a Libra?" >Cody >//////////// >Type 1a’s have more ‘class’.  ahahahahaha!!

I thought they were "certifiable"?

Response:

Nasties are just to nice – bastards is more appropriate don’t you think? Mags

Response:

I guess so, Stretch!  Way to go!!  Keep doing what you’re doing. elmo http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum

Response:

Re: going in the right direction ….   Group: alt.support.hepatitis-c Date: Sat, Dec 31, 2005, 1:27am (CST+7) From: nots…@nuncaspam.eduorg (Michael

Medications that help me

Question:

Yes, it took me a similar combination to get through the 48 weeks of TX also. Had to add two weekly shots of a drug to boost my red blood cells also. Kill the dragon, Julie Virus free for 10 months now. "MaxDad" <max…@bellsouth.net> wrote in message

news:k5s6q1ptgt33u7udo9ruvm43lpo8t6ij1l@4ax.com… – Hide quoted text — Show quoted text -> I have HVC genotype 2b. I’m in my second week of TX; 22 weeks to go. > My GI doctor wants to do as much ‘damage’ to the virus as possible in > the early part of TX, so I’m on 180 mcg of Pegasys and 1200 mg of > Riba. I was having lots of nasty muscle pain, even worse pain when I > lay down in bed. My GP doctor wants to help me get through this > without quitting the TX, something that he sees far too often. The GP > gave me scripts for Duragesic patches (an opiate), Ritalin LA, Zoloft, > and Ambien. > I tried to tough it out and did not use the Duragesic patches when I > took my first injection. The pain over the next few days was > unbelievable, but I figured I would be ‘manly’ and swallow the pain. I > eventually wimped out and put on a patch. Five hours later, the pain > in my head and muscles started to taper off- the pain is not totally > gone, but it is now bearable. I will stop wearing the Duragesic patch > next weekend and see if the side effects have lessened. The Duragesic > patches are great for killing pain, but they do have a bothersome side > effect of their own- like all narcotics, they cause EXTREME > constipation. A tablespoon of Metamucil at every meal helps. I suppose > that I can recommend Duragesic for some people fighting TX side > effects, at least during the first two weeks when the side effects > tend to be nastiest. > The Ritalin is helping me handle the fatigue I am already seeing. I > need to keep thinking at work. I don’t know if I am experiencing the > so-called brain-fog, but the ongoing pain can be very distracting. > Ritalin helps keep me focused. > The Ambien forces me to sleep seven hours. Once TX began, the most I > could sleep at one time was under an hour. Even with the Duragesic > patch, lying down in bed was painful. Ambien removed any obstacle > preventing a good nights sleep. Triple doses of Melatonin did nothing > for me, but Ambien worked in less than 30 minutes. > I found that simple ginger root from a vitamin store works great to > relieve nausea. My GI recommended it. I get nauseous in the afternoon. > As soon as I feel queasy, I pop a ginger capsule. > The Zoloft is basically a preventative AD drug. > Thanks elmo: I am eating fatty food- pasta, pop-tarts, milkshakes, ice > cream, etc,. around the time I take my TX drugs.

Response:

the "constipation" from the narcotics will be a good thing when the runs hit you, and they will.. good luck Ambien quick working for me after a while so I quit taking them. Xanax worked much better for sleep. russ "Gordo Mondragon" <ga_mondra…@yahoo.com> wrote in message

news:ga_mondragon-025F17.08585117122005@news-rdr-01-dummy.rdc-nyc.rr.com… – Hide quoted text — Show quoted text -> MD – > Sounds like you/your doctor have a good plan and you’re well-armed. > From what I’ve read most type 2/3s have a strong early response and > there’s not enough evidence to know how that relates to SVR, but based > on treating type 1 a stronger earlier response definitely is a stronger > indicator of an eventual SVR. > One bit of experience from me and I’ve seen it from other people here: > for some of use, nightly Ambien use over a couple of days resulted in > major forgetfulness/memory problems.  Off tx if I take it more than 3 or > 4 days I start to notice a slight memory effect, like words and names > that I should know don’t come to mind as easily.  On tx, at times I felt > like all I could do was point and grunt.  So if you start to notice that > symptom it might be related to the ambien. > You learned the lesson of trying to "tough it out" on tx….  "ride it > out" is more useful, with whatever assistance you can get.  You can go > back to being tough in 20 weeks. > Take care and keep us updated.  I haven’t heard of using Ritalin before > but it makes a lot of sense. > Gordo > In article <k5s6q1ptgt33u7udo9ruvm43lpo8t6i…@4ax.com>, > MaxDad <max…@bellsouth.net> wrote: >> I have HVC genotype 2b. I’m in my second week of TX; 22 weeks to go. >> My GI doctor wants to do as much ‘damage’ to the virus as possible in >> the early part of TX, so I’m on 180 mcg of Pegasys and 1200 mg of >> Riba. I was having lots of nasty muscle pain, even worse pain when I >> lay down in bed. My GP doctor wants to help me get through this >> without quitting the TX, something that he sees far too often. The GP >> gave me scripts for Duragesic patches (an opiate), Ritalin LA, Zoloft, >> and Ambien. >> I tried to tough it out and did not use the Duragesic patches when I >> took my first injection. The pain over the next few days was >> unbelievable, but I figured I would be ‘manly’ and swallow the pain. I >> eventually wimped out and put on a patch. Five hours later, the pain >> in my head and muscles started to taper off- the pain is not totally >> gone, but it is now bearable. I will stop wearing the Duragesic patch >> next weekend and see if the side effects have lessened. The Duragesic >> patches are great for killing pain, but they do have a bothersome side >> effect of their own- like all narcotics, they cause EXTREME >> constipation. A tablespoon of Metamucil at every meal helps. I suppose >> that I can recommend Duragesic for some people fighting TX side >> effects, at least during the first two weeks when the side effects >> tend to be nastiest. >> The Ritalin is helping me handle the fatigue I am already seeing. I >> need to keep thinking at work. I don’t know if I am experiencing the >> so-called brain-fog, but the ongoing pain can be very distracting. >> Ritalin helps keep me focused. >> The Ambien forces me to sleep seven hours. Once TX began, the most I >> could sleep at one time was under an hour. Even with the Duragesic >> patch, lying down in bed was painful. Ambien removed any obstacle >> preventing a good nights sleep. Triple doses of Melatonin did nothing >> for me, but Ambien worked in less than 30 minutes. >> I found that simple ginger root from a vitamin store works great to >> relieve nausea. My GI recommended it. I get nauseous in the afternoon. >> As soon as I feel queasy, I pop a ginger capsule. >> The Zoloft is basically a preventative AD drug. >> Thanks elmo: I am eating fatty food- pasta, pop-tarts, milkshakes, ice >> cream, etc,. around the time I take my TX drugs.

Response:

On Sat, 17 Dec 2005 14:01:08 GMT, Gordo Mondragon <ga_mondra…@yahoo.com> wrote:

Thanks Gordo- Interesting news on the Ambien. My GP told me that if I used it more that a week, the first two nights after I stopped using it might be mostly sleepless. All prescriptions have side effects somewhere down the road; you just gotta decide if the tradeoff is worth it. Both my GI and GP have numerous patients on TX that are taking Ritalin LA during the workweek. There is no scientific proof that it helps Peg/Riba fatigue. As a Ritalin ‘user’, I think it helps enormously. – Hide quoted text — Show quoted text ->MD – >Sounds like you/your doctor have a good plan and you’re well-armed.   >From what I’ve read most type 2/3s have a strong early response and >there’s not enough evidence to know how that relates to SVR, but based >on treating type 1 a stronger earlier response definitely is a stronger >indicator of an eventual SVR. >One bit of experience from me and I’ve seen it from other people here: >for some of use, nightly Ambien use over a couple of days resulted in >major forgetfulness/memory problems.  Off tx if I take it more than 3 or >4 days I start to notice a slight memory effect, like words and names >that I should know don’t come to mind as easily.  On tx, at times I felt >like all I could do was point and grunt.  So if you start to notice that >symptom it might be related to the ambien. >You learned the lesson of trying to "tough it out" on tx….  "ride it >out" is more useful, with whatever assistance you can get.  You can go >back to being tough in 20 weeks. >Take care and keep us updated.  I haven’t heard of using Ritalin before >but it makes a lot of sense. >Gordo >In article <k5s6q1ptgt33u7udo9ruvm43lpo8t6i…@4ax.com>, > MaxDad <max…@bellsouth.net> wrote:

Response:

MD – Sounds like you/your doctor have a good plan and you’re well-armed.   From what I’ve read most type 2/3s have a strong early response and there’s not enough evidence to know how that relates to SVR, but based on treating type 1 a stronger earlier response definitely is a stronger indicator of an eventual SVR. One bit of experience from me and I’ve seen it from other people here: for some of use, nightly Ambien use over a couple of days resulted in major forgetfulness/memory problems.  Off tx if I take it more than 3 or 4 days I start to notice a slight memory effect, like words and names that I should know don’t come to mind as easily.  On tx, at times I felt like all I could do was point and grunt.  So if you start to notice that symptom it might be related to the ambien. You learned the lesson of trying to "tough it out" on tx….  "ride it out" is more useful, with whatever assistance you can get.  You can go back to being tough in 20 weeks. Take care and keep us updated.  I haven’t heard of using Ritalin before but it makes a lot of sense. Gordo In article <k5s6q1ptgt33u7udo9ruvm43lpo8t6i…@4ax.com>, – Hide quoted text — Show quoted text - MaxDad <max…@bellsouth.net> wrote: > I have HVC genotype 2b. I’m in my second week of TX; 22 weeks to go. > My GI doctor wants to do as much ‘damage’ to the virus as possible in > the early part of TX, so I’m on 180 mcg of Pegasys and 1200 mg of > Riba. I was having lots of nasty muscle pain, even worse pain when I > lay down in bed. My GP doctor wants to help me get through this > without quitting the TX, something that he sees far too often. The GP > gave me scripts for Duragesic patches (an opiate), Ritalin LA, Zoloft, > and Ambien. > I tried to tough it out and did not use the Duragesic patches when I > took my first injection. The pain over the next few days was > unbelievable, but I figured I would be ‘manly’ and swallow the pain. I > eventually wimped out and put on a patch. Five hours later, the pain > in my head and muscles started to taper off- the pain is not totally > gone, but it is now bearable. I will stop wearing the Duragesic patch > next weekend and see if the side effects have lessened. The Duragesic > patches are great for killing pain, but they do have a bothersome side > effect of their own- like all narcotics, they cause EXTREME > constipation. A tablespoon of Metamucil at every meal helps. I suppose > that I can recommend Duragesic for some people fighting TX side > effects, at least during the first two weeks when the side effects > tend to be nastiest. > The Ritalin is helping me handle the fatigue I am already seeing. I > need to keep thinking at work. I don’t know if I am experiencing the > so-called brain-fog, but the ongoing pain can be very distracting. > Ritalin helps keep me focused. > The Ambien forces me to sleep seven hours. Once TX began, the most I > could sleep at one time was under an hour. Even with the Duragesic > patch, lying down in bed was painful. Ambien removed any obstacle > preventing a good nights sleep. Triple doses of Melatonin did nothing > for me, but Ambien worked in less than 30 minutes. > I found that simple ginger root from a vitamin store works great to > relieve nausea. My GI recommended it. I get nauseous in the afternoon. > As soon as I feel queasy, I pop a ginger capsule. > The Zoloft is basically a preventative AD drug.   > Thanks elmo: I am eating fatty food- pasta, pop-tarts, milkshakes, ice > cream, etc,. around the time I take my TX drugs.

Response:

Medications that help me   Group: alt.support.hepatitis-c Date: Fri, Dec 16, 2005, 10:12pm (CST+1) From: max…@bellsouth.net (MaxDad) I have HVC genotype 2b. I’m in my second week of TX; 22 weeks to go. My GI doctor wants to do as much ‘damage’ to the virus as possible in the early part of TX, so I’m on 180 mcg of Pegasys and 1200 mg of Riba. I was having lots of nasty muscle pain, even worse pain when I lay down in bed. My GP doctor wants to help me get through this without quitting the TX, something that he sees far too often. The GP gave me scripts for Duragesic patches (an opiate), Ritalin LA, Zoloft, and Ambien. I tried to tough it out and did not use the Duragesic patches when I took my first injection. The pain over the next few days was unbelievable, but I figured I would be ‘manly’ and swallow the pain. I eventually wimped out and put on a patch. Five hours later, the pain in my head and muscles started to taper off- the pain is not totally gone, but it is now bearable. I will stop wearing the Duragesic patch next weekend and see if the side effects have lessened. The Duragesic patches are great for killing pain, but they do have a bothersome side effect of their own- like all narcotics, they cause EXTREME constipation. A tablespoon of Metamucil at every meal helps. I suppose that I can recommend Duragesic for some people fighting TX side effects, at least during the first two weeks when the side effects tend to be nastiest. The Ritalin is helping me handle the fatigue I am already seeing. I need to keep thinking at work. I don’t know if I am experiencing the so-called brain-fog, but the ongoing pain can be very distracting. Ritalin helps keep me focused. The Ambien forces me to sleep seven hours. Once TX began, the most I could sleep at one time was under an hour. Even with the Duragesic patch, lying down in bed was painful. Ambien removed any obstacle preventing a good nights sleep. Triple doses of Melatonin did nothing for me, but Ambien worked in less than 30 minutes. I found that simple ginger root from a vitamin store works great to relieve nausea. My GI recommended it. I get nauseous in the afternoon. As soon as I feel queasy, I pop a ginger capsule. The Zoloft is basically a preventative AD drug. Thanks elmo: I am eating fatty food- pasta, pop-tarts, milkshakes, ice cream, etc,. around the time I take my TX drugs. ////////////// Good show, Max!  I really enjoyed peanut butter on hot toast in the morning.  Enjoy!! elmo http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum

Response:

I have HVC genotype 2b. I’m in my second week of TX; 22 weeks to go. My GI doctor wants to do as much ‘damage’ to the virus as possible in the early part of TX, so I’m on 180 mcg of Pegasys and 1200 mg of Riba. I was having lots of nasty muscle pain, even worse pain when I lay down in bed. My GP doctor wants to help me get through this without quitting the TX, something that he sees far too often. The GP gave me scripts for Duragesic patches (an opiate), Ritalin LA, Zoloft, and Ambien. I tried to tough it out and did not use the Duragesic patches when I took my first injection. The pain over the next few days was unbelievable, but I figured I would be ‘manly’ and swallow the pain. I eventually wimped out and put on a patch. Five hours later, the pain in my head and muscles started to taper off- the pain is not totally gone, but it is now bearable. I will stop wearing the Duragesic patch next weekend and see if the side effects have lessened. The Duragesic patches are great for killing pain, but they do have a bothersome side effect of their own- like all narcotics, they cause EXTREME constipation. A tablespoon of Metamucil at every meal helps. I suppose that I can recommend Duragesic for some people fighting TX side effects, at least during the first two weeks when the side effects tend to be nastiest. The Ritalin is helping me handle the fatigue I am already seeing. I need to keep thinking at work. I don’t know if I am experiencing the so-called brain-fog, but the ongoing pain can be very distracting. Ritalin helps keep me focused. The Ambien forces me to sleep seven hours. Once TX began, the most I could sleep at one time was under an hour. Even with the Duragesic patch, lying down in bed was painful. Ambien removed any obstacle preventing a good nights sleep. Triple doses of Melatonin did nothing for me, but Ambien worked in less than 30 minutes. I found that simple ginger root from a vitamin store works great to relieve nausea. My GI recommended it. I get nauseous in the afternoon. As soon as I feel queasy, I pop a ginger capsule. The Zoloft is basically a preventative AD drug.   Thanks elmo: I am eating fatty food- pasta, pop-tarts, milkshakes, ice cream, etc,. around the time I take my TX drugs.

Response:

Bad news: Genotype I

Question:

Very Similar to me. Clean and sober for 29 years, and 55 years old. The only difference is  I have had a heart attack in my past. Anyway, thanks for encouragement.

Response:

And I may have had this virus 30-35 years.

Response:

Have you had a biopsy? Of course everyone reacts differently.  I had good blood numbers going in, so we knew I had a bit of a reserve there against anemia. I lasted about 2/3 of the way thru the 48 week regimen without an antidepressant, but a small daily dose of Prozak got me thru the last 1/3. I don’t know why I chose to be miserable for so long, I guess I’ve been on the natch so long now I just didn’t want to take anything. And, I didn’t actually feel sad or down, so I thought I was doing OK, but my thinking, that was the problem, sometimes awake all night going over and over every lousy thing I did or ever happened to me, just couldn’t seem to lighten up on myself, but I didn’t see it as depression, because there was no weeping, etc.  But now, post treatment about two months, I’m back to my wisecracking old self. "anonymousone" <te…@earthlink.net> wrote in message

news:1129780683.399078.194800@z14g2000cwz.googlegroups.com… – Hide quoted text — Show quoted text -> And I may have had this virus 30-35 years.

Response:

No biopsy. They did blood tests. Mine was certainly a pre-existing condition so maybe thats why no biopsy. My doctor certainly knew it was pre-existing, He has taken the position it could be a "new infection" in order to get me treated. although he certainly knows it isnt. In other words, maybe he has to do things a certain way to keep my insurance from being cancelled. Its kind of a minor miracle that Im being offered treatment at all.

Response:

Hmmmm, I see your point….that sure is a consideration.  Either you didn’t disclose or you just found out…..Certainly not a crucial consideration if they will treat you without it.  I had a biopsy seven or eight years ago, and at that time I was grade 1 stage 1.  I never had another biopsy.  Last year I decided that at my age I wanted the treatment because I felt if it worked, I’d have a few good years left, but if I kept doing biopsy thing waiting for dire numbers, I might not ever decide to do the treatment. I think I was right there, because I had talked to a lot of people with C and we all complained of a curious lack of energy and in my case extreme reactions to stress, sweating, for example, right, because now that I’m clear, I feel much more alert, with a to-do list that won’t quit. Physically, I’m still pretty out of shape. On the other hand I know two guys here in San Francisco, both with over 15 years, who’re walking around with borrowed livers, and they seem fine.  Another with about 25 years  who died last year of some sort of liver disease after not being able to procure a transplant. "anonymousone" <te…@earthlink.net> wrote in message

news:1129820240.187135.181200@g44g2000cwa.googlegroups.com… – Hide quoted text — Show quoted text -> No biopsy. They did blood tests. > Mine was certainly a pre-existing condition so maybe thats why no > biopsy. My doctor certainly knew it was pre-existing, He has taken the > position it could be a "new infection" in order to get me treated. > although he certainly knows it isnt. > In other words, maybe he has to do things a certain way to keep my > insurance from being cancelled. Its kind of a minor miracle that Im > being offered treatment at all.

Response:

Well if its any consolation Geno 1 is the most common infection.  Are you 1 a or b. Mags "anonymousone" <te…@earthlink.net> wrote in message

news:1129763245.437233.17220@g43g2000cwa.googlegroups.com… – Hide quoted text — Show quoted text ->I was hoping I wasnt but was prepared for the worst. They told me I am > Genotype I today. > Treatment to start next week unless I change my mind about doing it.

Response:

"anonymousone" wrote >I was hoping I wasnt but was prepared for the worst. They told me I am > Genotype I today. > Treatment to start next week unless I change my mind about doing it.

Don’t change your mind.  For you, it might be a breeze.  Tonight I take needle number 25…just over half way – I can’t believe it.  Cleared by week 12. Good luck…it’ll go fast. David – Hide quoted text — Show quoted text –

Response:

I asked the technician didnt know. She said it only came back Geno 1. Is it important to find out whether it is a or b?

Response:

My inclination at this time is to give it a try at least for a while. I can always pull the plug as long as my heart dont stop.

Response:

Re: Bad news: Genotype I   Group: alt.support.hepatitis-c Date: Thu, Oct 20, 2005, 6:34pm (CDT-2) From: te…@earthlink.net (anonymousone) My inclination at this time is to give it a try at least for a while. I can always pull the plug as long as my heart dont stop. ////////// The a or b isn’t all that significant, although I preferred being an a. LOL  We’re a classier lot.  ahahahahaha If you’re going to ‘give it a shot’, be committed for at least 12 weeks. You’ll have a pretty good idea at that point whether you stand a good chance for SVR. elmo http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum

Response:

I  am 1a acquired in 1988 discovered in 1993. been sober since then. Treated 47 weeks 7 years ago – nonresponder. Started again with daily injections of INfergen and 1200 mg of riba May 18. 12 weeks in VL dropped from 1.5 million to 80. I am encouraged and looking forward to test again at week 24. only two weeks away. The tx this time is more aggressive, but after the first 10 weeks also much more tolerable. 156 shots down amd omly 180 to go. Hang in and stay committed to killing this virus. As far as i can see, iyts HCV or me. I’m not going down without a fight. SES <elmoemer…@webtv.net> wrote in message

news:13358-4358E5FB-433@storefull-3258.bay.webtv.net… – Hide quoted text — Show quoted text -> Re: Bad news: Genotype I > Group: alt.support.hepatitis-c Date: Thu, Oct 20, 2005, 6:34pm (CDT-2) > From: te…@earthlink.net (anonymousone) > My inclination at this time is to give it a try at least for a while. I > can always pull the plug as long as my heart dont stop. > ////////// > The a or b isn’t all that significant, although I preferred being an a. > LOL  We’re a classier lot.  ahahahahaha > If you’re going to ‘give it a shot’, be committed for at least 12 weeks. > You’ll have a pretty good idea at that point whether you stand a good > chance for SVR. > elmo > http://community.webtv.net/elmoemerson/DocElmosHepFile > http://community.webtv.net/elmoemerson/TheFamilyAlbum

Response:

That IS encouraging, Steve!!  Keep after it!! Elmo //////////// I am 1a acquired in 1988 discovered in 1993. been sober since then. Treated 47 weeks 7 years ago – nonresponder. Started again with daily injections of INfergen and 1200 mg of riba May 18. 12 weeks in VL dropped from 1.5 million to 80. I am encouraged and looking forward to test again at week 24. only two weeks away. The tx this time is more aggressive, but after the first 10 weeks also much more tolerable. 156 shots down amd omly 180 to go. Hang in and stay committed to killing this virus. As far as i can see, iyts HCV or me. I’m not going down without a fight. SES <elmoemer…@webtv.net> wrote in message

news:13358-4358E5FB-433@storefull-3258.bay.webtv.net… Re: Bad news: Genotype I Group: alt.support.hepatitis-c Date: Thu, Oct 20, 2005, 6:34pm (CDT-2) From: te…@earthlink.net (anonymousone) My inclination at this time is to give it a try at least for a while. I can always pull the plug as long as my heart dont stop. ////////// The a or b isn’t all that significant, although I preferred being an a. LOL We’re a classier lot. ahahahahaha If you’re going to ‘give it a shot’, be committed for at least 12 weeks. You’ll have a pretty good idea at that point whether you stand a good chance for SVR. elmo http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum

Response:

On Fri, 21 Oct 2005 22:23:05 GMT, "Steve" <sesi…@insightbb.com> wrote: >I  am 1a acquired in 1988 discovered in 1993. been sober since then. Treated >47 weeks 7 years ago – nonresponder. Started again with daily injections of >INfergen and 1200 mg of riba May 18. 12 weeks in VL dropped from 1.5 million >to 80. I am encouraged and looking forward to test again at week 24. only >two weeks away. The tx this time is more aggressive, but after the first 10 >weeks also much more tolerable. 156 shots down amd omly 180 to go. >Hang in and stay committed to killing this virus. As far as i can see, iyts >HCV or me. I’m not going down without a fight. >SES

Wow. You da *man*, Steve! Keep up the great work, we’ll be pulling for you. Cheers /greyhackles

Response:

The best of luck you ya buddy! — Russ Visit Alaska @ http://www.tannersacre.com "Steve" <sesi…@insightbb.com> wrote in message

news:dTd6f.263133$084.29981@attbi_s22… – Hide quoted text — Show quoted text -> I  am 1a acquired in 1988 discovered in 1993. been sober since then. Treated > 47 weeks 7 years ago – nonresponder. Started again with daily injections of > INfergen and 1200 mg of riba May 18. 12 weeks in VL dropped from 1.5 million > to 80. I am encouraged and looking forward to test again at week 24. only > two weeks away. The tx this time is more aggressive, but after the first 10 > weeks also much more tolerable. 156 shots down amd omly 180 to go. > Hang in and stay committed to killing this virus. As far as i can see, iyts > HCV or me. I’m not going down without a fight. > SES > <elmoemer…@webtv.net> wrote in message > news:13358-4358E5FB-433@storefull-3258.bay.webtv.net… > > Re: Bad news: Genotype I > > Group: alt.support.hepatitis-c Date: Thu, Oct 20, 2005, 6:34pm (CDT-2) > > From: te…@earthlink.net (anonymousone) > > My inclination at this time is to give it a try at least for a while. I > > can always pull the plug as long as my heart dont stop. > > ////////// > > The a or b isn’t all that significant, although I preferred being an a. > > LOL  We’re a classier lot.  ahahahahaha > > If you’re going to ‘give it a shot’, be committed for at least 12 weeks. > > You’ll have a pretty good idea at that point whether you stand a good > > chance for SVR. > > elmo > > http://community.webtv.net/elmoemerson/DocElmosHepFile > > http://community.webtv.net/elmoemerson/TheFamilyAlbum

Response:

How are you coping with the treatment that far down the road David?  When did it get easier, if it is?  Curious about your symptoms/sides at the half way point. Mags "Canadave" <yeahri…@noway.com> wrote in message

news:Z5OdnTY2RPyui8XeRVn-uQ@rogers.com… – Hide quoted text — Show quoted text -> "anonymousone" wrote >>I was hoping I wasnt but was prepared for the worst. They told me I am >> Genotype I today. >> Treatment to start next week unless I change my mind about doing it. > Don’t change your mind.  For you, it might be a breeze.  Tonight I take > needle number 25…just over half way – I can’t believe it.  Cleared by > week 12. > Good luck…it’ll go fast. > David

Response:

"mags" <chill…@rogers.com> wrote in message

news:9a6dnVIDd_DtucfeRVn-hA@rogers.com… > How are you coping with the treatment that far down the road David?  When > did it get easier, if it is?  Curious about your symptoms/sides at the > half way point.

First of all, it does go fast.  I can’t believe I’m already considered a veteran worthy of asking advice. The worst of the fevers, chills, etc from the injection lasted a month or so.  I still get the occasional low-grade fever. The fatigue, requiring daily naps lasted for about 3-4 months.  Now, it’s mostly fatigue and mild nausea which is worse for 3 days post injection but lingers through the week.  I still nap a lot on the weekends.  Overall, my appetite is still affected, partially due to taste perversion.  Shortness of breath when climbing stairs or other exertion is due to low hemaglobin, and remains.  I have an itchy rash over my arms and torso that seems to be improving a bit. I’ve lost about 15lbs, and some hair, but it was pretty thick to begin with. Hope that helps, D

Response:

I was genotype 1 had the virus for about 30years, weighed over 200 and was over 60 years, old with pretreatment viral load about 1,000,000.  Two months after 48 weeks of death on the installment plan, I seem to have been ‘cured’.  Keeping my fingers crossed till the 6 month post treatment assay. I even missed doses here and there, and quit for 4 days at about month 3, but my Doctor talked me into going on, and not to worry about the 4 days. My provider told me they were willing to treat me in the face of all these negative indicators because I seemed well aware of the difficulties involved and was determined to stick to it.  Apparently this sort of assessment is part of their decision making protocols. I think on the plus side, I had been completely clean and sober for 24 of the 30 years. So, keep up your spirits, there’s hope, it seems….. "anonymousone" <te…@earthlink.net> wrote in message

news:1129763253.373081.133240@o13g2000cwo.googlegroups.com… – Hide quoted text — Show quoted text ->I was hoping I wasnt but was prepared for the worst. They told me I am > Genotype I today. > Treatment to start next week unless I change my mind about doing it.

Response:

I was hoping I wasnt but was prepared for the worst. They told me I am Genotype I today. Treatment to start next week unless I change my mind about doing it.

Response:

Can you work during treatment

Question:

On Thu, 26 May 2005 18:05:29 -0400, "mags" <chill…@rogers.com> wrote: >I find out on Tuesday what treatment I will be receiving.  They have sent >away for my geno type and the results come back this week.  I have been >given a video on managing my pegasys treament alfa 2a so I assume that is >how I am being treated >My question is how nasty will the side effects be and will I be able to >work?? Should I apply for disability??  I do not have any symptons.

As you’ve heard from the others, effects are different for everyone. I was able to work full time through my treatments, but it also depends on the type of work you do. If it’s physically demanding, it may become hard or impossible to work relatively soon. If it’s a desk job (like mine), it may be easier to handle. As a 2a, you’ll "only" have to bear it for 24 weeks, and if you’re lucky your sides will be mild. The suggestion to get all the info you might need now while you can still think straight is excellent. But try to keep a positive attitude, don’t expect the worst sides from the start (then it’s a pretty safe bet that you will get them). Thomas — To reach me, complete my last name in the address.

Response:

On Thu, 26 May 2005 23:25:54 -0400, Thomas Wagner <t…@capecod.com>, in message ID <794d91po5auj67vq78su1118mui6taa…@4ax.com>, in the newsgroup alt.support.hepatitis-c wrote: >As you’ve heard from the others, effects are different for everyone. I >was able to work full time through my treatments, but it also depends on >the type of work you do. If it’s physically demanding, it may become >hard or impossible to work relatively soon. If it’s a desk job (like >mine), it may be easier to handle. As a 2a, you’ll "only" have to bear >it for 24 weeks, and if you’re lucky your sides will be mild. The >suggestion to get all the info you might need now while you can still >think straight is excellent. But try to keep a positive attitude, don’t >expect the worst sides from the start (then it’s a pretty safe bet that >you will get them).

Thomas.  The 2a referred to the interferon type – not the genotype. Genotype still pending.  So don’t get too excited Mags.  It *may* be 24 weeks tx or it may be 48 weeks.  48 weeks tx is more usual than 24 but let’s hope you get lucky, eh? — Paul Use the reply by email facility in your newsreader to send email

Response:

I’m a nurse and I worked up until the end of my 6 month and I wish I would of stopped a lot sooner. I made my life and those I worked with really miserable. I was truly blessed because my fellow employees welcomed my back with opened arms!!! hc "mags" <chill…@rogers.com> wrote in message

news:mYadnV2nobqw1QvfRVn-vA@rogers.com… – Hide quoted text — Show quoted text -> I find out on Tuesday what treatment I will be receiving.  They have sent > away for my geno type and the results come back this week.  I have been > given a video on managing my pegasys treament alfa 2a so I assume that is > how I am being treated > My question is how nasty will the side effects be and will I be able to > work?? Should I apply for disability??  I do not have any symptons. > Mags

Response:

mags wrote: > I find out on Tuesday what treatment I will be receiving.  They have sent > away for my geno type and the results come back this week.  I have been > given a video on managing my pegasys treament alfa 2a so I assume that is > how I am being treated > My question is how nasty will the side effects be and will I be able to > work?? Should I apply for disability??  I do not have any symptons. > Mags

Hi Mags, Before I started treatment I reviewed my options.My doc said he would reduce the dose instead of have me go out on leave. Sorry, that wouldn’t do for me. I had to tell him twice that I have short and long term disability and wanted to use it if I needed to. He agreed he would let me. It was not my intention to use it. I did use intermittent FMLA leave in combination with the short term disability starting around week 12. But just this week (shot 23 of 48)folks at my job pointed out that I was not doing my job to adequate standards. They knew it was because of the treatment and had me call the HR office. Now I am in the midst of getting all that paperwork rolling for disability. And if everything goes smoothly I will be out till the end of treatment. I think if my job had less walking and stress I may have been able to do it longer. There is no formula for knowing what sides you will have or when you will have them. But rest assured , if you have a concern about side effects, there is someone here who can relate. So, glad you have found this group. It’s a wonderful group of people, at all stages of treatment. I’ve made very sweet friends here. Glad you found us. Take care, Mary Ann

Response:

On Fri, 27 May 2005 08:13:57 +0100, Paul <dontspa…@westgreen.freeserve.co.uk> wrote: >Thomas.  The 2a referred to the interferon type – not the genotype. >Genotype still pending.  So don’t get too excited Mags.  It *may* be >24 weeks tx or it may be 48 weeks.  48 weeks tx is more usual than 24 >but let’s hope you get lucky, eh?

Aarrghhh… that’s what happens when trying to go through messages after a long day… sorry for the confusion. Thomas — To reach me, complete my last name in the address.

Response:

"pajaritaflora" <birdsp…@gmail.com> wrote in message >They knew it was because of the treatment and had me call the HR office. >Now I am in the midst of getting all that >paperwork rolling for >disability. And if everything goes smoothly I will be out till the end of >treatment.

I hope it all works out! David

Response:

"greyhackles" <greyhack…@NOSPAMyahoo.com> wrote in message

news:u1sc919crh9dolaj6a4fspnvuivmqfvuau@4ax.com… – Hide quoted text — Show quoted text -> On Thu, 26 May 2005 18:05:29 -0400, "mags" <chill…@rogers.com> wrote: > >I find out on Tuesday what treatment I will be receiving.  They have sent > >away for my geno type and the results come back this week.  I have been > >given a video on managing my pegasys treament alfa 2a so I assume that is > >how I am being treated > >My question is how nasty will the side effects be and will I be able to > >work?? Should I apply for disability??  I do not have any symptons. > >Mags > Hi Mags. You’ve come to the right place. Sorry you had to find this group… > – Yes, depending on your individual reaction to the combo drugs, you can work > while on therapy. Even though my blood work went to hell over the worst of the > winter, I’ve only missed one full work day in 30+ weeks on tx (though getting > from the parking lot to my office was a struggle during my worst month).

I was physically able to work most days (some Monday’s were tough) but mentally I was pretty much done by the 12th week.  As everyone has already said…you’re mileage may vary.  It depends on what if any sides you feel…. and I would guess it depends on the type of work you do.  If it makes you tired than you wouldn’t want to be driving that school bus > – Obtaining Disability status for HCV therapy may be difficult to achieve. > Don’t count on it being made available to you.

I had no problem at all getting SDI.  Maybe it depends on the state you live in but all I did was go on line and ask for the form, filled out my part and gave it to my Doc.  They filled out the rest…sent it in…and that was it. No interview, no problem. – Hide quoted text — Show quoted text -> – During my pre-tx work-ups I received the full Pegasys patient information > kit with all the plastic pieces and video tape. The tape and documents showed > the Peg IFN powder and diluent supplied in vials, and I learned how to mix > together and then load a syringe and all the other procedural stuff. > And what showed up the week of my first shot? > PegIntron – in Redipens. Sheesh. > So it might be worth verifying precisely which combo you’ll be on before you > spend a lot of time studying the handouts. And if you have the choice, opt for > preloaded Redipens vs the two syringes and two vials crapola. Much simpler to > deal with…

We had to go to a class where a nurse rep from the drug company went over all the info and taught us how to use the redi-pens (not that they are that hard).  Also got hand-outs and a video to take home…and even got a little insulated bag to pick up the meds in.  Oddly enough the first time I filled my prescription I got the vials.  Maybe they got the two of us mixed up <g> AG

Response:

"pajaritaflora" <birdsp…@gmail.com> wrote in message

news:1117200577.280404.97760@z14g2000cwz.googlegroups.com… > But just this week (shot 23 of 48)folks at my job pointed out > that I was not doing my job to adequate standards. They knew it was > because of the treatment and had me call the HR office. Now I am in the > midst of getting all that paperwork rolling for disability. And if > everything goes smoothly I will be out till the end of treatment. > I think if my job had less walking and stress I may have been able to > do it longer.

That is also what happened to me.  I was working from home a couple of days a week before going on the meds so I incorrectly assumed my company would work with me. In fact I use to praise them for being so understanding.  Then around week 12 they decided that I wasn’t dealing with everything very well emotionally so they gave me a disciplinary letter (that was last Sept. and it still ticks me off <G>).  I went out on disability the very next day.  Smartest thing I could have done.  I finished last November, went back to work in December…ohh…and by the way….they demoted the guy who was in charge of the dept when I was disciplined. Three months later they fired the new boss and put me in charge…yeah.. the emotional one.  And one month after that I made my own employee changes <G>.   Life is good (and payback’s a bitch.  ) AG

Response:

I could take myself to work but it was a struggle to perform my duties. I managed to do this for nine months all up but next time, I’d try to take a year off. Depends on you and your job. Wait and see how you go. Jack "mags" <chill…@rogers.com> a

bad news and info needed

Question:

Hello everybody, I posted only a few times, but I have to share my bad 12 weeks labworks and asking for a similar case (sorry for broken english). I have genotype 4 c/d, 45 years, infection dating back to 1980, mild fibrosis. After 3 months on peg-intron + ribavirine, my viral load went down from 6million to 1million, so I m not a responder. In a last effort my doc will switch from peg-intron (interferon alfa 2b) to pegasys (interferon alfa 2a) but he also admitted chances to EVR are very low, I will be tested for VL in two months. Any suggestion/similar experience will be appreciated, I m really sad. Blippo

Response:

On Wed, 16 Mar 2005 18:08:11 GMT, "blippo" <bli…@blippery.com> wrote: >Hello everybody, >I posted only a few times, but I have to share my bad 12 weeks labworks and >asking for a similar case (sorry for broken english). >I have genotype 4 c/d, 45 years, infection dating back to 1980, mild >fibrosis. >After 3 months on peg-intron + ribavirine, my viral load went down from >6million to 1million, so I m not a responder. >In a last effort my doc will switch from peg-intron (interferon alfa 2b) to >pegasys (interferon alfa 2a) but he also admitted chances to EVR are very >low, I will be tested for VL in two months. >Any suggestion/similar experience will be appreciated, I m really sad. >Blippo

Blippo, I’m sorry to hear the bad news.  Unfortunately, that happens to so many of us.  Sometimes, people will respond to a different interferon and hopefully you will be one of them.  Don’t lose hope. See how this treatment goes.  Fortunately, you have only mild fibrosis so it sounds like you have some time and time is on your side.

Response:

Pegasus (interferon Alfa 2a) and Riba is what worked for me.  My thoughts will be with you. Kill the dragon Julie "blippo" <bli…@blippery.com> wrote in message

news:fC_Zd.1070952$35.39740893@news4.tin.it… – Hide quoted text — Show quoted text -> Hello everybody, > I posted only a few times, but I have to share my bad 12 weeks labworks and > asking for a similar case (sorry for broken english). > I have genotype 4 c/d, 45 years, infection dating back to 1980, mild > fibrosis. > After 3 months on peg-intron + ribavirine, my viral load went down from > 6million to 1million, so I m not a responder. > In a last effort my doc will switch from peg-intron (interferon alfa 2b) to > pegasys (interferon alfa 2a) but he also admitted chances to EVR are very > low, I will be tested for VL in two months. > Any suggestion/similar experience will be appreciated, I m really sad. > Blippo

Response:

Sounds like you’ve at least got some time on your side. That’s good! Keep your chin up!! don’t lose your faith in yourself!! Keep on gettin’ up and swingin’!!! — Shawn (use the "reply feature on your browser to send a private reply via E-Mail.) "blippo" <bli…@blippery.com> wrote in message

news:fC_Zd.1070952$35.39740893@news4.tin.it… – Hide quoted text — Show quoted text -> Hello everybody, > I posted only a few times, but I have to share my bad 12 weeks labworks > and > asking for a similar case (sorry for broken english). > I have genotype 4 c/d, 45 years, infection dating back to 1980, mild > fibrosis. > After 3 months on peg-intron + ribavirine, my viral load went down from > 6million to 1million, so I m not a responder. > In a last effort my doc will switch from peg-intron (interferon alfa 2b) > to > pegasys (interferon alfa 2a) but he also admitted chances to EVR are very > low, I will be tested for VL in two months. > Any suggestion/similar experience will be appreciated, I m really sad. > Blippo

Response:

bad news and info needed   Group: alt.support.hepatitis-c Date: Wed, Mar 16, 2005, 6:08pm (CST+6) From: bli…@blippery.com (blippo) Hello everybody, I posted only a few times, but I have to share my bad 12 weeks labworks and asking for a similar case (sorry for broken english). I have genotype 4 c/d, 45 years, infection dating back to 1980, mild fibrosis. After 3 months on peg-intron + ribavirine, my viral load went down from 6million to 1million, so I m not a responder. In a last effort my doc will switch from peg-intron (interferon alfa 2b) to pegasys (interferon alfa 2a) but he also admitted chances to EVR are very low, I will be tested for VL in two months. Any suggestion/similar experience will be appreciated, I m really sad. Blippo ///////// Sorry to hear that, Blippo.  It isn’t the end of the world.  I’d give daily Infergen with a heavy dose of riba a try if I were in your shoes, Elmo http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum

Response:

Link between responders and sides?

Question:

Michael D. Henry wrote: > I believe that to be true… > My viral response was out the roof and I had some serious sides > My wife’s was much lower (barely detectable) and her sides were much lower > By the way, I go in for my 6 mos post today > We’ll see if the freakin dragon is gone for good > Peace, Mike

Good luck Mike and good to hear from you again. Dwight Dragon Slayers’ Club:  http://geocities.com/dwightmspage/

Response:

All I can do is relate my experience, and that is my medical provider told me that from her experience that when I complained about the side effects, she said that was a good indication that the treatment is working for me. God knows that I hate this TX. In fact at this moment I’m looking at the box of interferon,(pegintron), trying to muster up the courage to inject myself. Like I said in an earlier post, I have already seen some benefit from the TX, and this is what I need to remember.The edema I suffered from for the last couple of years is reduced considerably. It helps me to go on. I seem to remember from somewhere that a man is most aware of his own existence when he is standing at a public urinal with others around him. I would like to modify that a bit. because for me I’m never more of my own existence is when I’m mixing up the sterile water, and Pegintron, and am about to inject myself. I’ve never felt aware and alone as in that moment. I wonder if others feel this way as well. I do so hope that I am one of those responders, I hate like the dickens to think all this is for nothing. John in Honolulu "Waldron" <f…@foo.com> wrote in message

news:kbl6m0h5ktdn4ro2loju3out9rl8dsm9nc@4ax.com… – Hide quoted text — Show quoted text -> Someone (quoting the famous "studies have shown",) suggested that a > report of more side effects correlated with increased viral response. > Anybody heard of such? > Just wondering. > W.

Response:

I have of that from my clinical trial nurse. I guess the more sensitive you could be to inf the better it could work and make you sick. Less resistance to inf would make you sicker maybe. Hard to say from what I have seen its makes everybody sick just different degrees different angles. My friend worked all through construction of malls and has been clear over 10 years. and not real sick at all and doing the 3x a week old stuff. Interferon just has much to be learned about. It cant be trusted LOL                                     Juanita

Response:

"Red Dwarf" <sbordonej…@hawaii.rr.com> wrote in message

news:%cJ8d.3700$z04.1071@twister.socal.rr.com… > All I can do is relate my experience, and that is my medical provider told > me that from her experience that when I complained about the side effects, > she said that was a good indication that the treatment is working for me. > God knows that I hate this TX. In fact at this moment I’m looking at the box > of interferon,(pegintron), trying to muster up the courage to inject

myself. Man do I know this feeling.  For a while I almost dreaded Friday’s. Even taking the pills some days was hard.  I sit there with them in my hand on days I didn’t feel good..knowing they were the reason I felt like crap, trying to convince myself to take them anyways. My doctor told me that you adjust, that it gets easier.  Well around week 12 it was actually harder, not easier.  Course now I am past week 18 and it’s much easier.  The shot is just something I do. I’m still kind of sick of taking so many pills but it’s not so bad. So he was right, it does get easier,…just not as quickly as I would have hoped. AG

Response:

In article <kbl6m0h5ktdn4ro2loju3out9rl8dsm…@4ax.com>,  Waldron <f…@foo.com> wrote: > Someone (quoting the famous "studies have shown",) suggested that a > report of more side effects correlated with increased viral response. > Anybody heard of such?

Not in the time I’ve been here.  Couldn’t find a link but didn’t look too long after reading articles about studies on predicted outcome that didn’t mention side effects having any association with outcomes, other than for the people who quit treatment because of them. I once posted a link to an article that made mention of an association with initial immune system response (basically, turning yellow) and spontaneous clearing, but that’s not what you’re looking for. Gordo

Response:

In article <b8mdnV1bEfXvE_7cRVn…@adelphia.com>,  "Agua Girl" <ukn…@spamblock.net> wrote: > "Red Dwarf" <sbordonej…@hawaii.rr.com> wrote in message > news:%cJ8d.3700$z04.1071@twister.socal.rr.com… >[...] > Man do I know this feeling.  For a while I almost dreaded Friday’s.

Fridays are like cheerleader days for me:  "One more shot means one less shot to do!" > Even taking the pills some days was hard.  I sit there with them > in my hand on days I didn’t feel good..knowing they were the reason > I felt like crap, trying to convince myself to take them anyways. > My doctor told me that you adjust, that it gets easier.  Well around > week 12 it was actually harder, not easier.  Course now I am past > week 18 and it’s much easier.  

I never heard "you will accomodate yourself to the side effects and many of them will diminish AFTER THREE MONTHS".  Right after shot 12 I started an anti-d and that made a difference, and now after 15 I know I’m able to do more things, even though I may have a sick episode in a day I almost never spend the whole day sick.  I can do things that I can plod along at without much thinking.  I moved a small tree and planted another one.  I scraped dead paint from around three wood windows and primed them.  I smoked chiles in the BBQ. I am much less reliant on ambien, xanax, and marinol/cannibus, and there are moments every day when I realize I feel some variation of "normal" (as much as I can remember what that is.)  My friends have commented that they see the old me coming out more. From people here, I’m expecting that from here on it will be about the same with more/longer sick periods and more of a drained-out feeling.   > The shot is just something I do. > I’m still kind of sick of taking so many pills but it’s not so bad. > So he was right, it does get easier,…just not as quickly as I would > have hoped.

Exactly. I keep saying this, but I wonder how much doctors know that they decide not to tell us.  If they can’t make the sides any better at least they can help you pretend they’re going to get better faster. Gordo

Response:

On Tue, 5 Oct 2004 22:15:18 -0700, "Agua Girl" <ukn…@spamblock.net>, in message ID <b8mdnV1bEfXvE_7cRVn…@adelphia.com>, in the newsgroup alt.support.hepatitis-c wrote: >Man do I know this feeling.  For a while I almost dreaded Friday’s. >Even taking the pills some days was hard.  I sit there with them >in my hand on days I didn’t feel good..knowing they were the reason >I felt like crap, trying to convince myself to take them anyways. >My doctor told me that you adjust, that it gets easier.  Well around >week 12 it was actually harder, not easier.  Course now I am past >week 18 and it’s much easier.  The shot is just something I do. >I’m still kind of sick of taking so many pills but it’s not so bad. >So he was right, it does get easier,…just not as quickly as I would >have hoped.

This just highlights to me how individual tx is.  My first two weeks were a bit on the rough side.  Then I had about 4 or 5 weeks wondering what all the fuss was about (between sips of water)  :-) .  Around week 6 or 7, I found out.  Even so things were fairly OK up till week 12 but after that it just ground me down – week in week out.  The worst bit was weeks 21 – 24. Every time I opened the fridge door there were screams coming from the little white box in the salad tray (metaphorically speaking).  I was glad I had a favourable genotype (24 weeks tx). The physical sides were difficult at times but the mind games on tx were pretty awkward too. — Paul Use the reply by email facility in your newsreader to send email

Response:

I believe that to be true… My viral response was out the roof and I had some serious sides My wife’s was much lower (barely detectable) and her sides were much lower By the way, I go in for my 6 mos post today We’ll see if the freakin dragon is gone for good Peace, Mike "Waldron" <f…@foo.com> wrote in message

news:kbl6m0h5ktdn4ro2loju3out9rl8dsm9nc@4ax.com… – Hide quoted text — Show quoted text -> Someone (quoting the famous "studies have shown",) suggested that a > report of more side effects correlated with increased viral response. > Anybody heard of such? > Just wondering. > W.

Response:

1st Pegasys Injection

Question:

"Agua Girl" <ukn…@spamblock.net> wrote … – Hide quoted text — Show quoted text -> "Waterspider" <waterspi…@spamshine.net> wrote > > "Agua Girl" <ukn…@spamblock.net> wrote … > > > "Waterspider" <waterspi…@spamshine.net> wrote … > > > > "Agua Girl" <ukn…@spamblock.net> wrote … > > > > > "surfbum" <nos…@isp.net> wrote … > > > > > > I just took my 1st Pegasys injection, 90 m.g.  About how long do I > > > have > > > > to > > > > > > wait to start experiencing negative side effects?  Do you know of > > > anyone > > > > > who > > > > > > has experienced NO side effects?  I also will be taking Copegus > > > orally, > > > > > 200 > > > > > > m.g. b.i.d. > > > > > My doctor has had two patients with no side effect at all > > > > It seems that every doctor and nurse can cite cases where the patient > > had > > > no > > > > side effects at all. > > > > Oddly, no one else on the planet seems to have encountered these > wildly > > > > fortunate people. Is it that patients sometimes downplay their > symptoms > > to > > > > their doctors? Do some doctors trivialize patients’ complaints? Do > some > > > > doctors maybe tell a lil white fib to make their patients feel less > > > anxious > > > > about a procedure or treatment? > > > It’s possible that they are just trying to encourage us but it’s also > > > possible > > > that these people exists.  I don’t know a lot of people on tx and the > only > > > way I meet others is through these support groups.  If you don’t have > any > > > problems you probably don’t seek out support. > > Maybe, but isn’t having hep c somewhat of a problem? > By problems I meant problems with the "cure". > It’s a treatable disease.  Scary to be sure, and the treatment is > neither fun nor 100% effective.

It’s not effective in 100% of cases, but it is 100% effective in, for example, more than 80% of genotype 3 cases. But..if your doctor is treating > it and your not suffering from that treatment I don’t know if you > would seek out support.

I think this depends on the individual. Not everyone here is on tx or intending to take tx, and there are many more folks out there on tx who will not seek support (I like the term "pathologically independent"). > I’m not sure I would have looked for help here if the side > effects had gone about the way I expected.  I thought there > would be a gradual lessening and I didn’t account for the > emotional stress of feeling bad 24/7 for 12 weeks.  If I > was symptom free or if they were so minor that they could > be ignored I probably wouldn’t have looked for help.

So there’s a positive thing about your side-effects! <g> Take care, Waterspider

Response:

"Waterspider" <waterspi…@spamshine.net> wrote in message

news:10htuk4hujb46ab@corp.supernews.com… – Hide quoted text — Show quoted text -> "Agua Girl" <ukn…@spamblock.net> wrote in message > news:_c-dndNct4QF94PcRVn-oQ@adelphia.com… > > "Waterspider" <waterspi…@spamshine.net> wrote in message > > news:10hsptml5k8cf9d@corp.supernews.com… > > > "Agua Girl" <ukn…@spamblock.net> wrote in message > > > news:8v-dnXYP49MTHIDcRVn-tQ@adelphia.com… > > > > "surfbum" <nos…@isp.net> wrote in message > > > > news:10hqjrr766vqlfc@corp.supernews.com… > > > > > I just took my 1st Pegasys injection, 90 m.g.  About how long do I > > have > > > to > > > > > wait to start experiencing negative side effects?  Do you know of > > anyone > > > > who > > > > > has experienced NO side effects?  I also will be taking Copegus > > orally, > > > > 200 > > > > > m.g. b.i.d. > > > > My doctor has had two patients with no side effect at all > > > It seems that every doctor and nurse can cite cases where the patient > had > > no > > > side effects at all. > > > Oddly, no one else on the planet seems to have encountered these wildly > > > fortunate people. Is it that patients sometimes downplay their symptoms > to > > > their doctors? Do some doctors trivialize patients’ complaints? Do some > > > doctors maybe tell a lil white fib to make their patients feel less > > anxious > > > about a procedure or treatment? > > It’s possible that they are just trying to encourage us but it’s also > > possible > > that these people exists.  I don’t know a lot of people on tx and the only > > way I meet others is through these support groups.  If you don’t have any > > problems you probably don’t seek out support. > Maybe, but isn’t having hep c somewhat of a problem?

By problems I meant problems with the "cure". It’s a treatable disease.  Scary to be sure, and the treatment is neither fun nor 100% effective.  But..if your doctor is treating it and your not suffering from that treatment I don’t know if you would seek out support. I’m not sure I would have looked for help here if the side effects had gone about the way I expected.  I thought there would be a gradual lessening and I didn’t account for the emotional stress of feeling bad 24/7 for 12 weeks.  If I was symptom free or if they were so minor that they could be ignored I probably wouldn’t have looked for help. AG

Response:

- Hide quoted text — Show quoted text -"Agua Girl" <ukn…@spamblock.net> wrote… > "Dwight" <Dwi…@Me.net> wrote… > > surfbum wrote: > > > I just took my 1st Pegasys injection, 90 m.g.  About how long do I have > to > > > wait to start experiencing negative side effects?  Do you know of anyone > who > > > has experienced NO side effects?  I also will be taking Copegus orally, > 200 > > > m.g. b.i.d. > > With such a low dose, you might not have any sides.  BTW, thanks for > > reminding me, I haven’t taken my shots tonight.  Friday comes around way > > too often. > I hear ya.  After feeling not so great for too long I am getting to dread > the > day.  I didn’t get rid of my headache from last week until this morning. > The idea of having to do that shot is enough to make me cry. > BTW surfbum..if you haven’t already, check with your doctor to see > if you can take something like tylenol PM.  I go to bed within an > hour of my shot so I can sleep through the worst of it.  Well, I assume > I am.  Not willing to stay up to find out if it’s true.

Lol, I did the same thing! I’d go to bed, take two Tylenol, one Gravol, and do the shot about an hour later when I started to feel drowsy. Waterspider

Response:

"Waterspider" <waterspi…@spamshine.net> wrote in message

news:10hsptml5k8cf9d@corp.supernews.com… – Hide quoted text — Show quoted text -> "Agua Girl" <ukn…@spamblock.net> wrote in message > news:8v-dnXYP49MTHIDcRVn-tQ@adelphia.com… > > "surfbum" <nos…@isp.net> wrote in message > > news:10hqjrr766vqlfc@corp.supernews.com… > > > I just took my 1st Pegasys injection, 90 m.g.  About how long do I have > to > > > wait to start experiencing negative side effects?  Do you know of anyone > > who > > > has experienced NO side effects?  I also will be taking Copegus orally, > > 200 > > > m.g. b.i.d. > > My doctor has had two patients with no side effect at all > It seems that every doctor and nurse can cite cases where the patient had no > side effects at all. > Oddly, no one else on the planet seems to have encountered these wildly > fortunate people. Is it that patients sometimes downplay their symptoms to > their doctors? Do some doctors trivialize patients’ complaints? Do some > doctors maybe tell a lil white fib to make their patients feel less anxious > about a procedure or treatment?

It’s possible that they are just trying to encourage us but it’s also possible that these people exists.  I don’t know a lot of people on tx and the only way I meet others is through these support groups.  If you don’t have any problems you probably don’t seek out support. AG

Response:

"Agua Girl" <ukn…@spamblock.net> wrote in message

news:_c-dndNct4QF94PcRVn-oQ@adelphia.com… – Hide quoted text — Show quoted text -> "Waterspider" <waterspi…@spamshine.net> wrote in message > news:10hsptml5k8cf9d@corp.supernews.com… > > "Agua Girl" <ukn…@spamblock.net> wrote in message > > news:8v-dnXYP49MTHIDcRVn-tQ@adelphia.com… > > > "surfbum" <nos…@isp.net> wrote in message > > > news:10hqjrr766vqlfc@corp.supernews.com… > > > > I just took my 1st Pegasys injection, 90 m.g.  About how long do I > have > > to > > > > wait to start experiencing negative side effects?  Do you know of > anyone > > > who > > > > has experienced NO side effects?  I also will be taking Copegus > orally, > > > 200 > > > > m.g. b.i.d. > > > My doctor has had two patients with no side effect at all > > It seems that every doctor and nurse can cite cases where the patient had > no > > side effects at all. > > Oddly, no one else on the planet seems to have encountered these wildly > > fortunate people. Is it that patients sometimes downplay their symptoms to > > their doctors? Do some doctors trivialize patients’ complaints? Do some > > doctors maybe tell a lil white fib to make their patients feel less > anxious > > about a procedure or treatment? > It’s possible that they are just trying to encourage us but it’s also > possible > that these people exists.  I don’t know a lot of people on tx and the only > way I meet others is through these support groups.  If you don’t have any > problems you probably don’t seek out support.

Maybe, but isn’t having hep c somewhat of a problem? Waterspider

Response:

Wait a few hours, LOL!  You’re only taking 200 mg Copegus twice a day? Let’s see, you must weigh about 32 lbs by my calculation.  How can you carry a surfboard? Elmo http://community.webtv.net/elmoemerson/DocElmosHepFile

Response:

On Sat, 14 Aug 2004 09:49:04 +0000 (UTC), Paul <dontspa…@westgreen.freeserve.co.uk> wrote: >I think that ug is mcg – just another way of writing it.   I hope >Thomas or someone will correct that if I’m wrong.

No, you’re doing fine . The Greek micron character in microgram can’t be transmitted in ASCII or even easily entered into a computer, and "ug" looks funny, so the common English (American?) abbreviation is mcg. >  The 0.5ml is just >the amount of liquid in which the drug is contained. >However, Pegasys is actually given in 180mcg (ug) doses usually.

Yes, indeed – Pegasys is normally given in a fixed 180mcg dose, Copegus is weight and genotype dependent (minimum 800mg/day, max 1200mg). I wonder if there was some kind of mix-up, a 90mg dose sounds way too low, it’s only recommended as the absolute minimum if the dose has to be reduced due to side effects. http://www.pegasys.com/hcp/dosing.asp Thomas — To reach me, complete my last name in the address.

Response:

My first sides from #1 didn’t hit until 12-16 hours later but as I continued they started hitting about 10-12 hours later. Good luck!!! hc "surfbum" <nos…@isp.net> wrote in message

news:10hqjrr766vqlfc@corp.supernews.com… – Hide quoted text — Show quoted text -> I just took my 1st Pegasys injection, 90 m.g.  About how long do I have to > wait to start experiencing negative side effects?  Do you know of anyone who > has experienced NO side effects?  I also will be taking Copegus orally, 200 > m.g. b.i.d.

Response:

"Agua Girl" <ukn…@spamblock.net> wrote in message

news:8v-dnXYP49MTHIDcRVn-tQ@adelphia.com… > "surfbum" <nos…@isp.net> wrote in message > news:10hqjrr766vqlfc@corp.supernews.com… > > I just took my 1st Pegasys injection, 90 m.g.  About how long do I have to > > wait to start experiencing negative side effects?  Do you know of anyone > who > > has experienced NO side effects?  I also will be taking Copegus orally, > 200 > > m.g. b.i.d. > My doctor has had two patients with no side effect at all

It seems that every doctor and nurse can cite cases where the patient had no side effects at all. Oddly, no one else on the planet seems to have encountered these wildly fortunate people. Is it that patients sometimes downplay their symptoms to their doctors? Do some doctors trivialize patients’ complaints? Do some doctors maybe tell a lil white fib to make their patients feel less anxious about a procedure or treatment? Yeah, you’ll get some side effects. Hopefully you’ll be in the "mild flu-like symptoms" category and treatment is a cakewalk for you, and that is a possibility. My experience was that the first shot was the worst, sides would kick in hardest the second day after the shot and these sides eased off as my body adjusted to the drugs. In retrospect, the depression that kicked in after a few months was the worst of it. Good luck, and remember that, no matter how crappy you might feel (and as long as your blood tests aren’t showing dangerous results and you aren’t feeling suicidal), the treatment is do-able and, for the majority of people who complete it, it will be successful. All the best, Waterspider

Response:

On Sat, 14 Aug 2004 00:15:52 -0700, "Agua Girl" <ukn…@spamblock.net>, in message ID <wMadnUZaJ9ZMV4DcRVn…@adelphia.com>, in the newsgroup alt.support.hepatitis-c wrote: >I get confused with all the ug, mil, mcg stuff (and I am an engineer, go >figure).  I am on .5 mil..or 150 ug….what does that equal in mcg?  :-)

I think that ug is mcg – just another way of writing it.   I hope Thomas or someone will correct that if I’m wrong.  The 0.5ml is just the amount of liquid in which the drug is contained. However, Pegasys is actually given in 180mcg (ug) doses usually.  I thought that the 150 mcg doses were a pegylated interferon by Scherring.  I believe it comes down to the same strength though but I really couldn’t say how that works out. — Paul Use the reply by email facility in your newsreader to send email

Response:

My first wasn’t too bad, I had been expecting it to be so much worse.   Now (#8 last night) I get some reactions after about 1-2 hours but the color-changing, slightly out of breath, careful going down the stairs, and a little agitated didn’t start until about 8 hours after the shot. So to get it over with faster, I take it with me to work on Friday and jab myself around 2 in the afternoon.  Friday night’s a write-off anyway and then I have longer before Monday to recover some.  Last couple of times have felt relatively OK on Sunday. Worse than two weeks ago but much better than last week which just completely knocked me out, bad nausea, etc. Gordo In article <QtgTc.9657$wo.7292@okepread06>, "buster" <as…@cox.net> wrote: – Hide quoted text — Show quoted text -> As you can see it has different side for different people. Let us know how > it went. I would like to know. My first couple shots were not to easy but it > gets much better. > buster > "surfbum" <nos…@isp.net> wrote in message > news:10hqjrr766vqlfc@corp.supernews.com… > > I just took my 1st Pegasys injection, 90 m.g.  About how long do I have to > > wait to start experiencing negative side effects?  Do you know of anyone > who > > has experienced NO side effects?  I also will be taking Copegus orally, > 200 > > m.g. b.i.d.

Response:

"Paul" <dontspa…@westgreen.freeserve.co.uk> wrote in message

news:g9crh05ccp7l1ev4p9etg81j6l4mnof332@4ax.com… > On Fri, 13 Aug 2004 18:32:11 -0500, "surfbum" <nos…@isp.net>, in > message ID <10hqjrr766vq…@corp.supernews.com>, in the newsgroup > alt.support.hepatitis-c wrote: > >I just took my 1st Pegasys injection, 90 m.g. > That sounds odd.  Maybe there’s a reason you are on 90mg (90 mcg ??) > but the usual dosage for pegasys is 180mcg

I get confused with all the ug, mil, mcg stuff (and I am an engineer, go figure).  I am on .5 mil..or 150 ug….what does that equal in mcg?  :-) > > About how long do I have to > >wait to start experiencing negative side effects? > It’s different for everyone but I felt my side efffects from the first > shot took about 5 hours to hit me.  A friend of mine felt them after > 2. > >Do you know of anyone who > >has experienced NO side effects? > No, but I do know someone who had minimal side effects.

See now my doctor said he has two patients that aren’t having any problems at all.  Maybe they just don’t complain..or maybe he tells everyone that so they can be optimistic.  I know I always feel worse when I "know" I am going to feel worse. > >  I also will be taking Copegus orally, 200 > >m.g. b.i.d. > 200mg sounds low.  The normal daily dosage is between 800mg and 1200mg > – taken in in two doses. > Regarding the dosage of pegylated interferon – A low dose like that > (medical reasons apart) is normally given if you are using a pegylated > interferon alfa 2b and you are very light in bodyweight.  However, it > more usual these days to give alfa interferon alfa 2a which is a > static dose.  As you specifically mentioned pegasys, I assume you are > on an alfa 2a interferon (it will say on the box.). > Is there a medical reason why your dosage is so low?

My pills are 200 mg…but I take two twice a day so it’s 800 mg total. Probably going to be the same thing.  I am also on the alfa 2b.  I wonder if it has to do with the genotype or perhaps the viral load? AG

Response:

As you can see it has different side for different people. Let us know how it went. I would like to know. My first couple shots were not to easy but it gets much better. buster "surfbum" <nos…@isp.net> wrote in message

news:10hqjrr766vqlfc@corp.supernews.com… – Hide quoted text — Show quoted text -> I just took my 1st Pegasys injection, 90 m.g.  About how long do I have to > wait to start experiencing negative side effects?  Do you know of anyone who > has experienced NO side effects?  I also will be taking Copegus orally, 200 > m.g. b.i.d.

Response:

On Fri, 13 Aug 2004 18:32:11 -0500, "surfbum" <nos…@isp.net> wrote: >I just took my 1st Pegasys injection, 90 m.g.  About how long do I have to >wait to start experiencing negative side effects?  Do you know of anyone who >has experienced NO side effects?  I also will be taking Copegus orally, 200 >m.g. b.i.d.

I doubt that anyone has had NO side effects but there are those who have minimal side effects or have very little problem with them. I’ve heard many say and it was true for me that usually within 5 hours you get some flu like symptoms after the first shot.  But to be honest nobody can tell you how your tx experience is going to go.  It’s different for everybody.  Good luck and I hope the sides go easy on you.  

Response:

On Fri, 13 Aug 2004 18:32:11 -0500, "surfbum" <nos…@isp.net>, in message ID <10hqjrr766vq…@corp.supernews.com>, in the newsgroup alt.support.hepatitis-c wrote: >I just took my 1st Pegasys injection, 90 m.g.

That sounds odd.  Maybe there’s a reason you are on 90mg (90 mcg ??) but the usual dosage for pegasys is 180mcg > About how long do I have to >wait to start experiencing negative side effects?

It’s different for everyone but I felt my side efffects from the first shot took about 5 hours to hit me.  A friend of mine felt them after 2. >Do you know of anyone who >has experienced NO side effects?

No, but I do know someone who had minimal side effects. >  I also will be taking Copegus orally, 200 >m.g. b.i.d.

200mg sounds low.  The normal daily dosage is between 800mg and 1200mg – taken in in two doses. Regarding the dosage of pegylated interferon – A low dose like that (medical reasons apart) is normally given if you are using a pegylated interferon alfa 2b and you are very light in bodyweight.  However, it more usual these days to give alfa interferon alfa 2a which is a static dose.  As you specifically mentioned pegasys, I assume you are on an alfa 2a interferon (it will say on the box.). Is there a medical reason why your dosage is so low? — Paul Use the reply by email facility in your newsreader to send email

Response:

I just took my 1st Pegasys injection, 90 m.g.  About how long do I have to wait to start experiencing negative side effects?  Do you know of anyone who has experienced NO side effects?  I also will be taking Copegus orally, 200 m.g. b.i.d.

Response:

"surfbum" <nos…@isp.net> wrote in message

news:10hqjrr766vqlfc@corp.supernews.com… > I just took my 1st Pegasys injection, 90 m.g.  About how long do I have to > wait to start experiencing negative side effects?  Do you know of anyone who > has experienced NO side effects?  I also will be taking Copegus orally, 200 > m.g. b.i.d.

My doctor has had two patients with no side effect at all so there is hope!  As far as when you might start experiencing them…depends. I had a minor headache and felt just a little feverish after the first… thought I was going to be one of the lucky ones.  Apparently the Riba kicked in and my second one was worse.  Honestly , as much as it sucks, for me it hasn’t been "that" horrible.  It’s doable. Good luck with the tx.  How long do you have to take it? AG

Response:

surfbum wrote: > I just took my 1st Pegasys injection, 90 m.g.  About how long do I have to > wait to start experiencing negative side effects?  Do you know of anyone who > has experienced NO side effects?  I also will be taking Copegus orally, 200 > m.g. b.i.d.

With such a low dose, you might not have any sides.  BTW, thanks for reminding me, I haven’t taken my shots tonight.  Friday comes around way too often. Dwight Dragon Slayers’ Club:  http://geocities.com/dwightmspage/

Response:

"Dwight" <Dwi…@Me.net> wrote in message

news:DnfTc.976$NB2.346@newssvr15.news.prodigy.com… – Hide quoted text — Show quoted text -> surfbum wrote: > > I just took my 1st Pegasys injection, 90 m.g.  About how long do I have to > > wait to start experiencing negative side effects?  Do you know of anyone who > > has experienced NO side effects?  I also will be taking Copegus orally, 200 > > m.g. b.i.d. > With such a low dose, you might not have any sides.  BTW, thanks for > reminding me, I haven’t taken my shots tonight.  Friday comes around way > too often.

I hear ya.  After feeling not so great for too long I am getting to dread the day.  I didn’t get rid of my headache from last week until this morning. The idea of having to do that shot is enough to make me cry. BTW surfbum..if you haven’t already, check with your doctor to see if you can take something like tylenol PM.  I go to bed within an hour of my shot so I can sleep through the worst of it.  Well, I assume I am.  Not willing to stay up to find out if it’s true. AG

Response:

Infergen–tx, Round 3 (here I go again)

Question:

It’s the concensus of BCLD and Heap BCLD in Atlanta that I should give daily Infergen/Ribavirin a try.  I’m going Monday for some baseline bloodwork and expect to be sick as a dog by this time next week.  O, happy day!  But maybe it’ll kill the dragon this time. Anyone know the worst of the side effects?  From what I’m reading, it’s the same old flu thing coupled with nausea, etc.  I also can’t find any concrete stats on SVR.  I’ve heard 30% but have read of SVR’s up to 55%.  Is it really that good?????

Response:

Thip wrote: > It’s the concensus of BCLD and Heap BCLD in Atlanta that I should give daily > Infergen/Ribavirin a try.  I’m going Monday for some baseline bloodwork and > expect to be sick as a dog by this time next week.  O, happy day!  But maybe > it’ll kill the dragon this time. > Anyone know the worst of the side effects?  From what I’m reading, it’s the > same old flu thing coupled with nausea, etc.  I also can’t find any concrete > stats on SVR.  I’ve heard 30% but have read of SVR’s up to 55%.  Is it > really that good?????

chukker chase did infergen 3X a wk and ribavirin daily, before it had been approved in combination with one another. He cleared, although I don’t remember what his genotype was. Side effects about the same as Intron A and Ribavirin. Hair loss, bitchy itch, aches pains and general malaise. The inevitable roller coaster ride etc. It should be a snap for you thip. I also recall he had cirrhosis and was also a diabetic. Good Luck. hoof — { Disclaimer: Non Existent words contained within this poast were created in response to the Paperwork Reduction Act.} {If you have a problem with that, take it to the Environmentalists Complaint Dept.} [NOTE: It has come to my attention that water pressure booster pumps are available to city dwellers. Because of this new development, notify your local Environmentalist Complaint Dept. to begin a campaign to *ban* the sale of these pumps to those living within a municipality.   (They don't need more water pressure just so their sprinklers can run water down the sewers.)] The above is a public service announcement from the Committee for *Responsible* Use of Water Pressure Booster Pumps.] A Free Thinker.

Response:

Hey Thip! Strap yourself in and get ready for a ride!  I started daily Infergen (15mcg) + RBV a week ago and it kicked my ass.  11 more weeks to go then I’ll change to 15mcg 3 times/week.  I found the sides similar to Peg-Intron only much more intense.  Although the chills and fever only lasted the first night I had horrible nighttime headaches for the first three nights.  The BCLD said he proably made a mistake in not starting me on a lower dose initially and increasing to 15mcg.  Something you may want to consider.  Make sure you have some good headache meds around.  Tylenol didn’t do jack for me and I had to break out the Hydrocodone. Don’t put too much stock in the SVR stats; different studies with different variables (e.g., prior non-responder, relapser, dosage) make it hard to   compare results. I assume you’ll be doing daily Infergen for 12 weeks then TIW?  What dose? Bob In article <2jh7tqF11p4b…@uni-berlin.de>, m…@privacy.net says… – Hide quoted text — Show quoted text -> It’s the concensus of BCLD and Heap BCLD in Atlanta that I should give daily > Infergen/Ribavirin a try.  I’m going Monday for some baseline bloodwork and > expect to be sick as a dog by this time next week.  O, happy day!  But maybe > it’ll kill the dragon this time. > Anyone know the worst of the side effects?  From what I’m reading, it’s the > same old flu thing coupled with nausea, etc.  I also can’t find any concrete > stats on SVR.  I’ve heard 30% but have read of SVR’s up to 55%.  Is it > really that good?????

Response:

I will more than likely be in here often whining like a 2-year-old. ////////// You’re so cute when you whine, Thipper.  I’ll be here for you….it won’t be all that bad anyway, ehehe Elmo http://community.webtv.net/elmoemerson/DocElmosHepFile

Response:

Your doc didn’t make a mistake starting you at 15 mcg.  The idea is to kick the dragons ass right out of the gate so that you’re undetectable as early in tx as possible.  That has proven to be the most effective strategy in getting an SVR.  And as far as changing to Infergen 3x a week after 6 months…..I’d prefer a weekly dose of Pegasys so that I didn’t have a rollercoaster ride of interferon in my system same as 3x Intron-A (which both of us failed, Thipper). Elmo //////////// Hey Thip! Strap yourself in and get ready for a ride! I started daily Infergen (15mcg) + RBV a week ago and it kicked my ass. 11 more weeks to go then I’ll change to 15mcg 3 times/week. I found the sides similar to Peg-Intron only much more intense. Although the chills and fever only lasted the first night I had horrible nighttime headaches for the first three nights. The BCLD said he proably made a mistake in not starting me on a lower dose initially and increasing to 15mcg. Something you may want to consider. Make sure you have some good headache meds around. Tylenol didn’t do jack for me and I had to break out the Hydrocodone. Don’t put too much stock in the SVR stats; different studies with different variables (e.g., prior non-responder, relapser, dosage) make it hard to compare results. I assume you’ll be doing daily Infergen for 12 weeks then TIW? What dose? Bob In article <2jh7tqF11p4b…@uni-berlin.de>, m…@privacy.net says… It’s the concensus of BCLD and Heap BCLD in Atlanta that I should give daily Infergen/Ribavirin a try. I’m going Monday for some baseline bloodwork and expect to be sick as a dog by this time next week. O, happy day! But maybe it’ll kill the dragon this time. Anyone know the worst of the side effects? From what I’m reading, it’s the same old flu thing coupled with nausea, etc. I also can’t find any concrete stats on SVR. I’ve heard 30% but have read of SVR’s up to 55%. Is it really that good????? http://community.webtv.net/elmoemerson/DocElmosHepFile

Response:

"Thip" <m…@privacy.net> wrote in message

news:2jh7tqF11p4b8U1@uni-berlin.de… > It’s the concensus of BCLD and Heap BCLD in Atlanta that I should give daily > Infergen/Ribavirin a try.  I’m going Monday for some baseline bloodwork and > expect to be sick as a dog by this time next week.  O, happy day!  But maybe > it’ll kill the dragon this time.

Wow!    The idea of daily shots leaves me speechless. You have the determination to make it.  I wish you the very best. Susie —–= Posted via Newsfeeds.Com, Uncensored Usenet News =—– http://www.newsfeeds.com – The #1 Newsgroup Service in the World! —–==  Over 100,000 Newsgroups – 19 Different Servers! =—–

Response:

"Bob" <b…@no.net> wrote in message

news:MPG.1b3d3fbfe1ae2c1989733@news-server.satx.rr.com… > Keep us updated as you learn more, Thip.  I’m really curious about your > experience. > Bob

I will more than likely be in here often whining like a 2-year-old.

Response:

Thanks for the help and kind words, everyone.  I’m almost looking forward to this. "Thip" <m…@privacy.net> wrote in message

news:2jh7tqF11p4b8U1@uni-berlin.de… – Hide quoted text — Show quoted text -> It’s the concensus of BCLD and Heap BCLD in Atlanta that I should give daily > Infergen/Ribavirin a try.  I’m going Monday for some baseline bloodwork and > expect to be sick as a dog by this time next week.  O, happy day!  But maybe > it’ll kill the dragon this time. > Anyone know the worst of the side effects?  From what I’m reading, it’s the > same old flu thing coupled with nausea, etc.  I also can’t find any concrete > stats on SVR.  I’ve heard 30% but have read of SVR’s up to 55%.  Is it > really that good?????

Response:

On Fri, 18 Jun 2004 18:12:25 -0400, "Thip" <m…@privacy.net> wrote: >It’s the concensus of BCLD and Heap BCLD in Atlanta that I should give daily >Infergen/Ribavirin a try.  I’m going Monday for some baseline bloodwork and >expect to be sick as a dog by this time next week.  O, happy day!  But maybe >it’ll kill the dragon this time. >Anyone know the worst of the side effects?  From what I’m reading, it’s the >same old flu thing coupled with nausea, etc.  I also can’t find any concrete >stats on SVR.  I’ve heard 30% but have read of SVR’s up to 55%.  Is it >really that good?????

I’ve seen the 55% as well here: http://www.hivandhepatitis.com/hep_c/news/111802_c.html and even 58% here: http://www.hivandhepatitis.com/hep_c/news/010704_a.html which used C-IFN monotherapy. OTOH, there’s been one report (in a very small group) of very low SVRs for monotherapy. But since you’re doing combo, that’s probably not that relevant. Good luck! Thomas — To reach me, complete my last name in the address.

Response:

On behalf of all of us "re-laspers" we hope things go well for you and are curious to try it ourselves when it works for you! Good luck "Thip" <m…@privacy.net> wrote in message

news:2jihl1F11fr83U1@uni-berlin.de… – Hide quoted text — Show quoted text -> Thanks for the help and kind words, everyone.  I’m almost looking forward to > this. > "Thip" <m…@privacy.net> wrote in message > news:2jh7tqF11p4b8U1@uni-berlin.de… > > It’s the concensus of BCLD and Heap BCLD in Atlanta that I should give > daily > > Infergen/Ribavirin a try.  I’m going Monday for some baseline bloodwork > and > > expect to be sick as a dog by this time next week.  O, happy day!  But > maybe > > it’ll kill the dragon this time. > > Anyone know the worst of the side effects?  From what I’m reading, it’s > the > > same old flu thing coupled with nausea, etc.  I also can’t find any > concrete > > stats on SVR.  I’ve heard 30% but have read of SVR’s up to 55%.  Is it > > really that good?????

Response:

Yes, I read 55 percent SVR just recently. You have to consider that this is a very good number because all of the people who go on Infergen are either non-reponders or re-lapsers. Best of luck to you this time around. Just wondering, I am a gentotype  2b who responded to peg-combo  quickly (undetectable at week-12  PCR) , only to relapse after completion of tx. Are there any other gentoype 2 or 3’s out there who had the same experience? Tom        

Response:

In article <40D36B33.B0EA9…@hotmail.com>, – Hide quoted text — Show quoted text -HoofPrints <equsphotog…@hotmail.com> wrote: > Thip wrote: > > It’s the concensus of BCLD and Heap BCLD in Atlanta that I should give daily > > Infergen/Ribavirin a try.  I’m going Monday for some baseline bloodwork and > > expect to be sick as a dog by this time next week.  O, happy day!  But maybe > > it’ll kill the dragon this time. > > Anyone know the worst of the side effects?  From what I’m reading, it’s the > > same old flu thing coupled with nausea, etc.  I also can’t find any concrete > > stats on SVR.  I’ve heard 30% but have read of SVR’s up to 55%.  Is it > > really that good????? > chukker chase did infergen 3X a wk and ribavirin daily, before it had > been approved in combination with one another. > He cleared, although I don’t remember what his genotype was. > Side effects about the same as Intron A and Ribavirin. > Hair loss, bitchy itch, aches pains and general malaise. > The inevitable roller coaster ride etc. > It should be a snap for you thip. > I also recall he had cirrhosis and was also a diabetic. > Good Luck.

Are you afraid you do not remember what his genotype were?

Response:

Thipper, I’m REALLY happy for you that your doctors have recommened this route  with the daily Infergen.  Even Doc Elmo concurs!  I was scared for you that you’d settle for a clinical trial that would do nothing for you but make you miserable.   You know I did daily Infergen for awhile before switching to weekly Pegasys.  My virus, if there is any, is still undetectable. I believe daily Infergen is the best choice of interferons for us type 1’s.   Side effects?  The first shot is the biggest kick in the ass you’ll ever get from a shot of interferon.  It make me sweat like a stuck pig and I had some really hard, bone shaking chills and headache.  Subsequent shots were much more tolerable in this regard.  I did the max dose of riba with this regimen and between the Infergen and riba, I only needed two weeks to require Procrit for anemia.  If your docs work with you to keep your sides from overcoming you, it’s doable.   Results?  I failed tx two times before trying daily Infergen.  I don’t know the percentages, but believe in my heart and liver that it was what got me over the hump.   Go for the gusto and give it a shot.  I’ll send you my secret weapon soon.  :-) Elmo http://community.webtv.net/elmoemerson/DocElmosHepFile

Response:

"Thip" <m…@privacy.net> wrote in message <news:2jh7tqF11p4b8U1@uni-berlin.de>… > It’s the concensus of BCLD and Heap BCLD in Atlanta that I should give daily > Infergen/Ribavirin a try.  I’m going Monday for some baseline bloodwork and > expect to be sick as a dog by this time next week.  O, happy day!  But maybe > it’ll kill the dragon this time. > Anyone know the worst of the side effects?  From what I’m reading, it’s the > same old flu thing coupled with nausea, etc.  I also can’t find any concrete > stats on SVR.  I’ve heard 30% but have read of SVR’s up to 55%.  Is it > really that good?????

I just started the daily infergen/riba about 4 1/2 weeks ago.  The main differences I see between this tx and the Peg-intron/riba is a constant low level temp (between 99 and 101) and ALOT more nausea. Would have to agree that overall, the sides seem more intense.  Good luck!

Response:

Re: Infergen–tx, Round 3 (here I go again)   Group: alt.support.hepatitis-c Date: Fri, Jun 18, 2004, 3:22pm (CDT-2) From: equsphotog…@hotmail.com (HoofPrints) Thip wrote:

It’s the concensus of BCLD and Heap BCLD in Atlanta that I should give daily Infergen/Ribavirin a try. I’m going Monday for some baseline bloodwork and expect to be sick as a dog by this time next week. O, happy day! But maybe it’ll kill the dragon this time. Anyone know the worst of the side effects? From what I’m reading, it’s the same old flu thing coupled with nausea, etc. I also can’t find any concrete stats on SVR. I’ve heard 30% but have read of SVR’s up to 55%. Is it really that good????? chukker chase did infergen 3X a wk and ribavirin daily, before it had been approved in combination with one another. He cleared, although I don’t remember what his genotype was. Side effects about the same as Intron A and Ribavirin. Hair loss, bitchy itch, aches pains and general malaise. The inevitable roller coaster ride etc. It should be a snap for you thip. I also recall he had cirrhosis and was also a diabetic. Good Luck. hoof /////////// Chukker was a type 1a also.  He’s the guy that helped me decide Infergen was worth trying. Elmo http://community.webtv.net/elmoemerson/DocElmosHepFile

Response:

Keep us updated as you learn more, Thip.  I’m really curious about your experience. Bob In article <2jhe35F1151f…@uni-berlin.de>, m…@privacy.net says… – Hide quoted text — Show quoted text -> "Bob" <b…@no.net> wrote in message > news:MPG.1b3d39e2f308aff1989732@news-server.satx.rr.com… > > Hey Thip! > > I assume you’ll be doing daily Infergen for 12 weeks then TIW?  What dose? > > Bob > I have NO idea.  They just called and said, "We think this might work for > you" and I said, "Ok!"  Then i started looking for information.  I’m going > to call BCLD Monday and ask some questions.  So it’s a nasty ride, eh? > Oooooooooh, boy!  I guess I can do this; heaven knows I’ve been through > worse and made it.

Response:

wow Thip, I wish you luck on this try. Take care now. — Russ Remove "NOSPAM" for replies. "Thip" <m…@privacy.net> wrote in message

news:2jh7tqF11p4b8U1@uni-berlin.de… – Hide quoted text — Show quoted text -> It’s the concensus of BCLD and Heap BCLD in Atlanta that I should give daily > Infergen/Ribavirin a try.  I’m going Monday for some baseline bloodwork and > expect to be sick as a dog by this time next week.  O, happy day!  But maybe > it’ll kill the dragon this time. > Anyone know the worst of the side effects?  From what I’m reading, it’s the > same old flu thing coupled with nausea, etc.  I also can’t find any concrete > stats on SVR.  I’ve heard 30% but have read of SVR’s up to 55%.  Is it > really that good?????

Response:

Good luck Thip, I wish you minimal sides and a SVR! hc "Thip" <m…@privacy.net> wrote in message

news:2jh7tqF11p4b8U1@uni-berlin.de… – Hide quoted text — Show quoted text -> It’s the concensus of BCLD and Heap BCLD in Atlanta that I should give daily > Infergen/Ribavirin a try.  I’m going Monday for some baseline bloodwork and > expect to be sick as a dog by this time next week.  O, happy day!  But maybe > it’ll kill the dragon this time. > Anyone know the worst of the side effects?  From what I’m reading, it’s the > same old flu thing coupled with nausea, etc.  I also can’t find any concrete > stats on SVR.  I’ve heard 30% but have read of SVR’s up to 55%.  Is it > really that good?????

Response:

I wish you the best. I sense good things here. — lucky "Thip" <m…@privacy.net> wrote in message

news:2jh7tqF11p4b8U1@uni-berlin.de… – Hide quoted text — Show quoted text -> It’s the concensus of BCLD and Heap BCLD in Atlanta that I should give daily > Infergen/Ribavirin a try.  I’m going Monday for some baseline bloodwork and > expect to be sick as a dog by this time next week.  O, happy day!  But maybe > it’ll kill the dragon this time. > Anyone know the worst of the side effects?  From what I’m reading, it’s the > same old flu thing coupled with nausea, etc.  I also can’t find any concrete > stats on SVR.  I’ve heard 30% but have read of SVR’s up to 55%.  Is it > really that good?????

Response:

Here the latest figures I have seen. Peginterferon alfa-2a (Pegasys) in Combination with Ribavirin Results in 61% Overall Sustained Virologic Response Rate (SVR), Highest SVR Yet Seen You can read the entire article at http://www.hivandhepatitis.com/hep_c/news/2004/030304_b.html The days of the dragon are numbered, Julie "Thip" <m…@privacy.net> wrote in message

news:2jh7tqF11p4b8U1@uni-berlin.de… – Hide quoted text — Show quoted text -> It’s the concensus of BCLD and Heap BCLD in Atlanta that I should give daily > Infergen/Ribavirin a try.  I’m going Monday for some baseline bloodwork and > expect to be sick as a dog by this time next week.  O, happy day!  But maybe > it’ll kill the dragon this time. > Anyone know the worst of the side effects?  From what I’m reading, it’s the > same old flu thing coupled with nausea, etc.  I also can’t find any concrete > stats on SVR.  I’ve heard 30% but have read of SVR’s up to 55%.  Is it > really that good?????

Response:

Here the latest figures I have seen. Peginterferon alfa-2a (Pegasys) in Combination with Ribavirin Results in 61% Overall Sustained Virologic Response Rate (SVR), Highest SVR Yet Seen You can read the entire article at http://www.hivandhepatitis.com/hep_c/news/2004/030304_b.html The days of the dragon are numbered, Julie "Bob" <b…@no.net> wrote in message

news:MPG.1b3d3fbfe1ae2c1989733@news-server.satx.rr.com… – Hide quoted text — Show quoted text -> Keep us updated as you learn more, Thip.  I’m really curious about your > experience. > Bob > In article <2jhe35F1151f…@uni-berlin.de>, m…@privacy.net says… > > "Bob" <b…@no.net> wrote in message > > news:MPG.1b3d39e2f308aff1989732@news-server.satx.rr.com… > > > Hey Thip! > > > I assume you’ll be doing daily Infergen for 12 weeks then TIW?  What dose? > > > Bob > > I have NO idea.  They just called and said, "We think this might work for > > you" and I said, "Ok!"  Then i started looking for information.  I’m going > > to call BCLD Monday and ask some questions.  So it’s a nasty ride, eh? > > Oooooooooh, boy!  I guess I can do this; heaven knows I’ve been through > > worse and made it.

Response:

Thip, kill it this time.  Still don’t know what’s next for me, until then I’ll keep doing my Peg, just did shot 40, 41, or 42 tonight (damned memory, don’t know if it is a blessing or a curse not to remember well).   Good luck, I have a feeling I will have another hero to go along with Thomas and Elmo in the "Third time is a charm club". Dwight Dragon Slayers’ Club:  http://geocities.com/dwightmspage/ Thip wrote: > It’s the concensus of BCLD and Heap BCLD in Atlanta that I should give daily > Infergen/Ribavirin a try.  I’m going Monday for some baseline bloodwork and > expect to be sick as a dog by this time next week.  O, happy day!  But maybe > it’ll kill the dragon this time. > Anyone know the worst of the side effects?  From what I’m reading, it’s the > same old flu thing coupled with nausea, etc.  I also can’t find any concrete > stats on SVR.  I’ve heard 30% but have read of SVR’s up to 55%.  Is it > really that good?????

–

Response:

"Bob" <b…@no.net> wrote in message

news:MPG.1b3d39e2f308aff1989732@news-server.satx.rr.com… > Hey Thip! > I assume you’ll be doing daily Infergen for 12 weeks then TIW?  What dose? > Bob

I have NO idea.  They just called and said, "We think this might work for you" and I said, "Ok!"  Then i started looking for information.  I’m going to call BCLD Monday and ask some questions.  So it’s a nasty ride, eh? Oooooooooh, boy!  I guess I can do this; heaven knows I’ve been through worse and made it.

Response:

First shot coming up

Question:

yippee SQ!!!!! I wish you all the blessings in this world and remember the water!!! hc "suequill" <suequ…@gtepacifica.net> wrote in message

news:405ad499_2@corp.newsgroups.com… – Hide quoted text — Show quoted text -> Went to doc today.  He said I could start this week-end. > I’m not ready.  Begged off.  I’m still trying to get some > errands completed before starting.  He said I could start with the ribavarin > for a week.  That way I can see how the sides will be from one med at a > time. > Even though I’m 2b, he wants me to go with 1200 mg of ribavarin.  He says > the studies have been too small, and he woulc rather cut back on this later > if I need to….but start out with the full amount.  Insurance finally came > thru.  Pharmacy called to tell me I could pick everything up. > I’ll go tomorrow.  They said they have a cold pack I can put it in to take > it home in.  I’m all hyped up about getting started.  Put it off for years, > but convinced that this is the right time.  Just not going to get rid of the > fibromyalgia unless I can get rid of the HCV.  Doc. thinks that is probably > true. > SusieQ > —–= Posted via Newsfeeds.Com, Uncensored Usenet News =—– > http://www.newsfeeds.com – The #1 Newsgroup Service in the World! > —–==  Over 100,000 Newsgroups – 19 Different Servers! =—–

Response:

I forgot something. The first time I took my Ribavirin, it was like a taking some bad speed. I went to Wal-Mart right after I took it (thinking I wasn’t going to feel anything, its only Ribavirin) I couldn’t get out of there fast enough. Everything was irritating me and I’m usually a very calm, cool and collected gal. But that was the only time it effected me like that. My advice, take it and don’t go to Wal-Mart. Stay home and relax! hc "suequill" <suequ…@gtepacifica.net> wrote in message

news:405ad499_2@corp.newsgroups.com… – Hide quoted text — Show quoted text -> Went to doc today.  He said I could start this week-end. > I’m not ready.  Begged off.  I’m still trying to get some > errands completed before starting.  He said I could start with the ribavarin > for a week.  That way I can see how the sides will be from one med at a > time. > Even though I’m 2b, he wants me to go with 1200 mg of ribavarin.  He says > the studies have been too small, and he woulc rather cut back on this later > if I need to….but start out with the full amount.  Insurance finally came > thru.  Pharmacy called to tell me I could pick everything up. > I’ll go tomorrow.  They said they have a cold pack I can put it in to take > it home in.  I’m all hyped up about getting started.  Put it off for years, > but convinced that this is the right time.  Just not going to get rid of the > fibromyalgia unless I can get rid of the HCV.  Doc. thinks that is probably > true. > SusieQ > —–= Posted via Newsfeeds.Com, Uncensored Usenet News =—– > http://www.newsfeeds.com – The #1 Newsgroup Service in the World! > —–==  Over 100,000 Newsgroups – 19 Different Servers! =—–

Response:

Susie, good luck with tx. It’ll be over before you know it, just like a giant roller coaster ride. HC, I’ve always been like that at Wal Mart.  My wife won’t let me go shopping with her since I started tx.  It’s hard to believe that cussing out one old lady for bumping into your basket works as well as washing a load of underwear with a new red sweater, my chores dramatically decrease. – Hide quoted text — Show quoted text -heppiechik wrote: > I forgot something. The first time I took my Ribavirin, it was like a taking > some bad speed. I went to Wal-Mart right after I took it (thinking I wasn’t > going to feel anything, its only Ribavirin) I couldn’t get out of there fast > enough. Everything was irritating me and I’m usually a very calm, cool and > collected gal. But that was the only time it effected me like that. My > advice, take it and don’t go to Wal-Mart. Stay home and relax! > hc > "suequill" <suequ…@gtepacifica.net> wrote in message > news:405ad499_2@corp.newsgroups.com… >>Went to doc today.  He said I could start this week-end. >>I’m not ready.  Begged off.  I’m still trying to get some >>errands completed before starting.  He said I could start with the > ribavarin >>for a week.  That way I can see how the sides will be from one med at a >>time. >>Even though I’m 2b, he wants me to go with 1200 mg of ribavarin.  He says >>the studies have been too small, and he woulc rather cut back on this > later >>if I need to….but start out with the full amount.  Insurance finally > came >>thru.  Pharmacy called to tell me I could pick everything up. >>I’ll go tomorrow.  They said they have a cold pack I can put it in to take >>it home in.  I’m all hyped up about getting started.  Put it off for > years, >>but convinced that this is the right time.  Just not going to get rid of > the >>fibromyalgia unless I can get rid of the HCV.  Doc. thinks that is > probably >>true. >>SusieQ >>—–= Posted via Newsfeeds.Com, Uncensored Usenet News =—– >>http://www.newsfeeds.com – The #1 Newsgroup Service in the World! >>—–==  Over 100,000 Newsgroups – 19 Different Servers! =—–

– Dwight Dragon Slayers’ Club:  http://geocities.com/dwightmspage/

Response:

On Fri, 19 Mar 2004 09:25:34 -0600, "heppiechik" <canyougetme…@eatspam.spam>, in message ID <105m49v3cjq9…@corp.supernews.com>, in the newsgroup alt.support.hepatitis-c wrote: >I forgot something. The first time I took my Ribavirin, it was like a taking >some bad speed. I went to Wal-Mart right after I took it (thinking I wasn’t >going to feel anything, its only Ribavirin) I couldn’t get out of there fast >enough. Everything was irritating me and I’m usually a very calm, cool and >collected gal. But that was the only time it effected me like that. My >advice, take it and don’t go to Wal-Mart. Stay home and relax!

Yeah.  I’ve felt that the riba is a bit speed like.  It also can feel like IV morphine without the good bits.  That first shot of interferon was more like a dirty fix than flu. Looking forward to my next one tomorrow. Toxic crap.  Hope it’s toxic to the virus as well. — Paul Use the reply by email facility in your newsreader to send email

Response:

What great advice.  I live on an island.  Have pretty much the only pharmacy in town in my hospital.  Since I had so much trouble with getting pre-approved, this isn’t a bad suggestion at all.  Glad it worked out for you in the end. "BeatHepC" <beathepc> wrote in message

news:EaydnZTL2IvaZcfdRVn-hw@comcast.com… – Hide quoted text — Show quoted text -> Susie Q: > Best to you as you begin your journey to stomp out the monster. > Starting you a week early on the riba just to check for side-effects does > seem rather odd, at best. I’d be asking a few more ‘why’ questions about > that one. > A head’s-up I just learned about insurance, pharmacies and labs – I had lab > work come in last Friday afternoon saying that my nuetrophils were low and > that my GIPA wanted to start me on Neupogen. I need to take the Neupogen 24 > hours in advance of my next interferon shot (which takes place on Sunday > evenings), so I needed to have the Neupogen by the next day. There were > immediate problems: 1.)my pharmacy didn’t think they could get it at such a > late hour (2PM on a Friday). When I asked if they could have it overnighted > to them they said, ’sorry – our suppiler doesn’t ship on the weekends > (imagine that???). 2.) my GIPA couldn’t find me a dose to ‘tide-me-over’ and > said that if I couldn’t get the Neupogen, I’d have to cut my next interferon > dose in half (bad, bad news in trying to erradicate the virus – most > especially since I was only on shot # 6). To cut-to-the-chase, I ended up > scrambling big-time in getting some and in the end, it worked out just fine. > So, the lessons I learned out of this episode are: 1.) get you lab work done > as early in the week as you can. This way, if anything last minute crops up, > you have more time to react to it before they want to cut dosage. 2.) get > things like Neupogen and Procrit pre-approved by your insurance, so there is > no question when/if you need them.3.)make sure that you have a pharmacy that > can supply those drugs – right away – when you need them. Call in advance > and make sure they can have them there for you.4.)be your own advocate – ask > tons of questions and push for your own best interests. Quite often docs are > too busy or too concerned with ‘protocol’ (ie – ‘please, don’t sue me’) and > would rather take the easy way out for them. > BeatHepC > "suequill" <suequ…@gtepacifica.net> wrote in message > news:405ad499_2@corp.newsgroups.com… > > Went to doc today.  He said I could start this week-end. > > I’m not ready.  Begged off.  I’m still trying to get some > > errands completed before starting.  He said I could start with the > ribavarin > > for a week.  That way I can see how the sides will be from one med at a > > time. > > Even though I’m 2b, he wants me to go with 1200 mg of ribavarin.  He says > > the studies have been too small, and he woulc rather cut back on this > later > > if I need to….but start out with the full amount.  Insurance finally > came > > thru.  Pharmacy called to tell me I could pick everything up. > > I’ll go tomorrow.  They said they have a cold pack I can put it in to take > > it home in.  I’m all hyped up about getting started.  Put it off for > years, > > but convinced that this is the right time.  Just not going to get rid of > the > > fibromyalgia unless I can get rid of the HCV.  Doc. thinks that is > probably > > true. > > SusieQ > > —–= Posted via Newsfeeds.Com, Uncensored Usenet News =—– > > http://www.newsfeeds.com – The #1 Newsgroup Service in the World! > > —–==  Over 100,000 Newsgroups – 19 Different Servers! =—–

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Response:

Hmmm!  I really don’t believe in coincidences. The Wal-Mart incident sounds planned to me.  :  ) Oh, a tube of lipstick left in white lab coat with white uniforms works just as well as a red sweater.  I checked it out personally.  Only there wasn’t anyone there to tell me I couldn’t use the washing machine again.  Darn. Susie "Dwight" <Dwi…@Me.net> wrote in message ne> > HC, I’ve always been like that at Wal Mart.  My wife won’t let me go > shopping with her since I started tx.  It’s hard to believe that cussing > out one old lady for bumping into your basket works as well as washing a > load of underwear with a new red sweater, my chores dramatically > decrease.

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Funny how a few words like this can make you feel all warm and fuzzy.  Thanks y’all Susie <elmoemer…@webtv.net> wrote in message

news:22251-405ADC7B-375@storefull-3253.bay.webtv.net… > Right on,  Suzie Q!! > Elmo > http://community.webtv.net/elmoemerson/DocElmosHepFile

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Response:

When did you start the ribavarin?  Was it the same day you took your first shot??  What do you suggest? susie "Ken" <kc…@aol.comremove> wrote in message

news:20040319063329.29951.00000009@mb-m29.aol.com… – Hide quoted text — Show quoted text -> >Subject: First shot coming up > >From: "suequill" suequ…@gtepacifica.net > >Date: 3/19/2004 6:08 AM Eastern Standard Time > >Message-id: <405ad49…@corp.newsgroups.com> > >Went to doc today.  He said I could start this week-end. > >I’m not ready.  Begged off.  I’m still trying to get some > >errands completed before starting.  He said I could start with the ribavarin > >for a week.  That way I can see how the sides will be from one med at a > >time. > Good luck on getting started. I don’t understand doing the ribaviron without > the interferon however. My understanding is the ribaviron has no efffect on hep > c by itself. You might want to check into that … no use taking a weeks worth > of meds just to see what side effects you get. > Ken

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What about the ink pen left in the white lab coat! hc "Susie Quill" <sus…@vzpacifica.net> wrote in message

news:405b5980_2@corp.newsgroups.com… – Hide quoted text — Show quoted text -> Hmmm!  I really don’t believe in coincidences. The Wal-Mart incident sounds > planned to me.  :  ) > Oh, a tube of lipstick left in white lab coat with white uniforms works just > as well as a red sweater.  I checked it out personally.  Only there wasn’t > anyone there to tell me I couldn’t use the washing machine again.  Darn. > Susie > "Dwight" <Dwi…@Me.net> wrote in message ne> > > HC, I’ve always been like that at Wal Mart.  My wife won’t let me go > > shopping with her since I started tx.  It’s hard to believe that cussing > > out one old lady for bumping into your basket works as well as washing a > > load of underwear with a new red sweater, my chores dramatically > > decrease. > —–= Posted via Newsfeeds.Com, Uncensored Usenet News =—– > http://www.newsfeeds.com – The #1 Newsgroup Service in the World! > —–==  Over 100,000 Newsgroups – 19 Different Servers! =—–

Response:

As far as I know ribavirin don’t work against the hep c virus on it’s own. So to me it don’t make much sense to start that early. 1200 mg ribavirin is what I take (1a). I haven’t had too many problems from the riba. My red blood counts got a bit low in the beginning but came back up and stabilized. No skin problems. The only big bad side affect was from the peg-interferon killing my thyroid. Make sure your doc is watching your TSH levels. And good luck Suzie, you can do this!! — Russ Tanner Palmer, Alaska email: remove NOSPAM http://www.tannersacre.com "suequill" <suequ…@gtepacifica.net> wrote in message

news:405ad499_2@corp.newsgroups.com… – Hide quoted text — Show quoted text -> Went to doc today.  He said I could start this week-end. > I’m not ready.  Begged off.  I’m still trying to get some > errands completed before starting.  He said I could start with the ribavarin > for a week.  That way I can see how the sides will be from one med at a > time. > Even though I’m 2b, he wants me to go with 1200 mg of ribavarin.  He says > the studies have been too small, and he woulc rather cut back on this later > if I need to….but start out with the full amount.  Insurance finally came > thru.  Pharmacy called to tell me I could pick everything up. > I’ll go tomorrow.  They said they have a cold pack I can put it in to take > it home in.  I’m all hyped up about getting started.  Put it off for years, > but convinced that this is the right time.  Just not going to get rid of the > fibromyalgia unless I can get rid of the HCV.  Doc. thinks that is probably > true. > SusieQ > —–= Posted via Newsfeeds.Com, Uncensored Usenet News =—– > http://www.newsfeeds.com – The #1 Newsgroup Service in the World! > —–==  Over 100,000 Newsgroups – 19 Different Servers! =—–

Response:

lol at Elmo!!! hc <elmoemer…@webtv.net> wrote in message

news:15116-405B62ED-384@storefull-3258.bay.webtv.net… – Hide quoted text — Show quoted text -> Not quite as bad as the dead lab rat you left in the other pocket of > your lab coat. > Elmo > //////////////// > What about the ink pen left in the white lab coat! hc > "Susie Quill" <sus…@vzpacifica.net> wrote in message > news:405b5980_2@corp.newsgroups.com… > Hmmm! I really don’t believe in coincidences. The Wal-Mart incident > sounds planned to me. : ) > Oh, a tube of lipstick left in white lab coat with white uniforms works > just as well as a red sweater. I checked it out personally. Only there > wasn’t anyone there to tell me I couldn’t use the washing machine again. > Darn. Susie > "Dwight" <Dwi…@Me.net> wrote in message ne> > HC, I’ve always been like that at Wal Mart. My wife won’t let me go > shopping with her since I started tx. It’s hard to believe that cussing > out one old lady for bumping into your basket works as well as washing a > load of underwear with a new red sweater, my chores dramatically > decrease. > —–= Posted via Newsfeeds.Com, Uncensored Usenet News =—– > http://www.newsfeeds.com – The #1 Newsgroup Service in the World! > —–== Over 100,000 Newsgroups – 19 Different Servers! =—– > http://community.webtv.net/elmoemerson/DocElmosHepFile

Response:

My wife tried the lab coat trick.  Told her I didn’t care what my underwear looked like, no one sees them outside of our house. – Hide quoted text — Show quoted text -heppiechik wrote: > What about the ink pen left in the white lab coat! > hc > "Susie Quill" <sus…@vzpacifica.net> wrote in message > news:405b5980_2@corp.newsgroups.com… >>Hmmm!  I really don’t believe in coincidences. The Wal-Mart incident > sounds >>planned to me.  :  ) >>Oh, a tube of lipstick left in white lab coat with white uniforms works > just >>as well as a red sweater.  I checked it out personally.  Only there wasn’t >>anyone there to tell me I couldn’t use the washing machine again.  Darn. >>Susie >>"Dwight" <Dwi…@Me.net> wrote in message ne> >>>HC, I’ve always been like that at Wal Mart.  My wife won’t let me go >>>shopping with her since I started tx.  It’s hard to believe that cussing >>>out one old lady for bumping into your basket works as well as washing a >>>load of underwear with a new red sweater, my chores dramatically >>>decrease. >>—–= Posted via Newsfeeds.Com, Uncensored Usenet News =—– >>http://www.newsfeeds.com – The #1 Newsgroup Service in the World! >>—–==  Over 100,000 Newsgroups – 19 Different Servers! =—–

– Dwight Dragon Slayers’ Club:  http://geocities.com/dwightmspage/

Response:

On 19 Mar 2004 14:27:51 -0800, bluehou…@hotmail.com (Dave bluehound), in message ID <befac85e.0403191427.5b8d8…@posting.google.com>, in the newsgroup alt.support.hepatitis-c wrote: >Hi, I just finished my tx for 2a HCV.  I’m about 40Lbs overweight but >I still was only prescribed 800mg/qd of Riba, along with the Peg inj. >Starting at the highest dose is like holding your hand over a flame to >see how badly you’ll be burned.  Except your BCLD has you holding your >hand over a blowtorch flame not a match flame.  Why?  Believe me >you’ll have sides from the Riba, the question is which ones and how >bad.  Every one is different with the sides but why give you the >highest dose now?  Just to see how you react?  Ask questions.  Don’t >take your BCLD intellegence for granted.  They’re human.  Don’t be >thier test subject.

Well I did do the first few days on 1200 a day as there was an outside chance of geno 4.  Once it was established as being a 2, the dosage was cut to 800.  I did notice soreness in the mouth on 1200 a day and that vaguely yucky feeling was stronger.  I don’t know if it was the reduction that helped but after taking two riba in the evening instead of 3, the following morning the above stuff had eased a lot. I’m certainly getting some effects off the riba but, so far, they have been very manageable.  I notice that the emotions are more alive (not necessarily a bad thing). I don’t get to see the doc much but the nurse is available a lot and, if anything urgent came up, she has a way of contacting the doc. — Paul Use the reply by email facility in your newsreader to send email

Response:

- Hide quoted text — Show quoted text -Paul <dontspa…@westgreen.freeserve.co.uk> wrote in message <news:rn7m509oaq3tq5sfktgsfih745uja2pc6o@4ax.com>… > On Fri, 19 Mar 2004 09:25:34 -0600, "heppiechik" > <canyougetme…@eatspam.spam>, in message ID > <105m49v3cjq9…@corp.supernews.com>, in the newsgroup > alt.support.hepatitis-c wrote: > >I forgot something. The first time I took my Ribavirin, it was like a taking > >some bad speed. I went to Wal-Mart right after I took it (thinking I wasn’t > >going to feel anything, its only Ribavirin) I couldn’t get out of there fast > >enough. Everything was irritating me and I’m usually a very calm, cool and > >collected gal. But that was the only time it effected me like that. My > >advice, take it and don’t go to Wal-Mart. Stay home and relax! > Yeah.  I’ve felt that the riba is a bit speed like.  It also can feel > like IV morphine without the good bits.  That first shot of interferon > was more like a dirty fix than flu. Looking forward to my next one > tomorrow. Toxic crap.  Hope it’s toxic to the virus as well.

Hi, I just finished my tx for 2a HCV.  I’m about 40Lbs overweight but I still was only prescribed 800mg/qd of Riba, along with the Peg inj. Starting at the highest dose is like holding your hand over a flame to see how badly you’ll be burned.  Except your BCLD has you holding your hand over a blowtorch flame not a match flame.  Why?  Believe me you’ll have sides from the Riba, the question is which ones and how bad.  Every one is different with the sides but why give you the highest dose now?  Just to see how you react?  Ask questions.  Don’t take your BCLD intellegence for granted.  They’re human.  Don’t be thier test subject. JMHO.   Dave

Response:

Right on Elmo! This is true! Chez <elmoemer…@webtv.net> wrote in message

news:15115-405B63DB-1210@storefull-3258.bay.webtv.net… – Hide quoted text — Show quoted text -> You should start your ribavirin the same day you take your first shot. > If you take your shot in the morning, start your ribavirin in the > morning.  Start the riba in the evening if you do your shot in the > evening. > Elmo > //////////// > When did you start the ribavarin? Was it the same day you took your > first shot?? What do you suggest? > susie > "Ken" <kc…@aol.comremove> wrote in message > news:20040319063329.29951.00000009@mb-m29.aol.com… > Subject: First shot coming up > From: "suequill" suequ…@gtepacifica.net > Date: 3/19/2004 6:08 AM Eastern Standard Time > Message-id: <405ad49…@corp.newsgroups.com> > Went to doc today. He said I could start this week-end. I’m not ready. > Begged off. I’m still trying to get some errands completed before > starting. He said I could start with the ribavarin for a week. That way > I can see how the sides will be from one med at a time. > Good luck on getting started. I don’t understand doing the ribaviron > without the interferon however. My understanding is the ribaviron has no > efffect on hep c by itself. You might want to check into that … no use > taking a weeks worth of meds just to see what side effects you get. > Ken > —–= Posted via Newsfeeds.Com, Uncensored Usenet News =—– > http://www.newsfeeds.com – The #1 Newsgroup Service in the World! > —–== Over 100,000 Newsgroups – 19 Different Servers! =—– > http://community.webtv.net/elmoemerson/DocElmosHepFile

Response:

You should start your ribavirin the same day you take your first shot. If you take your shot in the morning, start your ribavirin in the morning.  Start the riba in the evening if you do your shot in the evening.   Elmo //////////// When did you start the ribavarin? Was it the same day you took your first shot?? What do you suggest? susie "Ken" <kc…@aol.comremove> wrote in message

news:20040319063329.29951.00000009@mb-m29.aol.com… Subject: First shot coming up From: "suequill" suequ…@gtepacifica.net Date: 3/19/2004 6:08 AM Eastern Standard Time Message-id: <405ad499_2@corp.newsgroups.com> Went to doc today. He said I could start this week-end. I’m not ready. Begged off. I’m still trying to get some errands completed before starting. He said I could start with the ribavarin for a week. That way I can see how the sides will be from one med at a time. Good luck on getting started. I don’t understand doing the ribaviron without the interferon however. My understanding is the ribaviron has no efffect on hep c by itself. You might want to check into that … no use taking a weeks worth of meds just to see what side effects you get. Ken —–= Posted via Newsfeeds.Com, Uncensored Usenet News =—– http://www.newsfeeds.com – The #1 Newsgroup Service in the World! —–== Over 100,000 Newsgroups – 19 Different Servers! =—–   http://community.webtv.net/elmoemerson/DocElmosHepFile

Response:

They make ME all warm and fuzzy.  I’m afeelin all warm and fuzzy myself right now.  Or is it the drugs?  Hell, I don’t know.  LOL  Don’t forget one of those seat massage thingers in every chair and one of those new fangled coin operated vibrating mattresses for your new bed. Maybe even a new boogie board.  Go running naked on the beach!  Have fun!! Elmo ////////////   Funny how a few words like this can make you feel all warm and fuzzy. Thanks y’all Susie <elmoemer…@webtv.net> wrote in message

news:22251-405ADC7B-375@storefull-3253.bay.webtv.net… Right on, Suzie Q!! Elmo http://community.webtv.net/elmoemerson/DocElmosHepFile —–= Posted via Newsfeeds.Com, Uncensored Usenet News =—– http://www.newsfeeds.com – The #1 Newsgroup Service in the World! —–== Over 100,000 Newsgroups – 19 Different Servers! =—–   http://community.webtv.net/elmoemerson/DocElmosHepFile

Response:

Not quite as bad as the dead lab rat you left in the other pocket of your lab coat. Elmo //////////////// What about the ink pen left in the white lab coat! hc "Susie Quill" <sus…@vzpacifica.net> wrote in message

news:405b5980_2@corp.newsgroups.com… Hmmm! I really don’t believe in coincidences. The Wal-Mart incident sounds planned to me. : ) Oh, a tube of lipstick left in white lab coat with white uniforms works just as well as a red sweater. I checked it out personally. Only there wasn’t anyone there to tell me I couldn’t use the washing machine again. Darn. Susie "Dwight" <Dwi…@Me.net> wrote in message ne>

HC, I’ve always been like that at Wal Mart. My wife won’t let me go shopping with her since I started tx. It’s hard to believe that cussing out one old lady for bumping into your basket works as well as washing a load of underwear with a new red sweater, my chores dramatically decrease. —–= Posted via Newsfeeds.Com, Uncensored Usenet News =—– http://www.newsfeeds.com – The #1 Newsgroup Service in the World! —–== Over 100,000 Newsgroups – 19 Different Servers! =—– http://community.webtv.net/elmoemerson/DocElmosHepFile

Response:

Wish we had a wal-mart to go to!  I was going to go to work that day.  I’ll have to think about this.  Hate to screw up my last week-end just with ribavarin. Susie "heppiechik" <canyougetme…@eatspam.spam> wrote in message

news:105m49v3cjq9lb6@corp.supernews.com… – Hide quoted text — Show quoted text -> I forgot something. The first time I took my Ribavirin, it was like a taking > some bad speed. I went to Wal-Mart right after I took it (thinking I wasn’t > going to feel anything, its only Ribavirin) I couldn’t get out of there fast > enough. Everything was irritating me and I’m usually a very calm, cool and > collected gal. But that was the only time it effected me like that. My > advice, take it and don’t go to Wal-Mart. Stay home and relax! > hc > "suequill" <suequ…@gtepacifica.net> wrote in message > news:405ad499_2@corp.newsgroups.com… > > Went to doc today.  He said I could start this week-end. > > I’m not ready.  Begged off.  I’m still trying to get some > > errands completed before starting.  He said I could start with the > ribavarin > > for a week.  That way I can see how the sides will be from one med at a > > time. > > Even though I’m 2b, he wants me to go with 1200 mg of ribavarin.  He says > > the studies have been too small, and he woulc rather cut back on this > later > > if I need to….but start out with the full amount.  Insurance finally > came > > thru.  Pharmacy called to tell me I could pick everything up. > > I’ll go tomorrow.  They said they have a cold pack I can put it in to take > > it home in.  I’m all hyped up about getting started.  Put it off for > years, > > but convinced that this is the right time.  Just not going to get rid of > the > > fibromyalgia unless I can get rid of the HCV.  Doc. thinks that is > probably > > true. > > SusieQ > > —–= Posted via Newsfeeds.Com, Uncensored Usenet News =—– > > http://www.newsfeeds.com – The #1 Newsgroup Service in the World! > > —–==  Over 100,000 Newsgroups – 19 Different Servers! =—–

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Response:

Thanks for the reminder about the water. Going to ace hardware today to reserve a new mattress that is being shipped on island, and I’m going to look for water pitchers while their.  I’ll put one next to each of my new backscratchers.  Got two for the house and one each for two offices at work.  :  ) "heppiechik" <canyougetme…@eatspam.spam> wrote in message

news:105m42k2dppio16@corp.supernews.com… – Hide quoted text — Show quoted text -> yippee SQ!!!!! > I wish you all the blessings in this world and remember the water!!! > hc > "suequill" <suequ…@gtepacifica.net> wrote in message > news:405ad499_2@corp.newsgroups.com… > > Went to doc today.  He said I could start this week-end. > > I’m not ready.  Begged off.  I’m still trying to get some > > errands completed before starting.  He said I could start with the > ribavarin > > for a week.  That way I can see how the sides will be from one med at a > > time. > > Even though I’m 2b, he wants me to go with 1200 mg of ribavarin.  He says > > the studies have been too small, and he woulc rather cut back on this > later > > if I need to….but start out with the full amount.  Insurance finally > came > > thru.  Pharmacy called to tell me I could pick everything up. > > I’ll go tomorrow.  They said they have a cold pack I can put it in to take > > it home in.  I’m all hyped up about getting started.  Put it off for > years, > > but convinced that this is the right time.  Just not going to get rid of > the > > fibromyalgia unless I can get rid of the HCV.  Doc. thinks that is > probably > > true. > > SusieQ > > —–= Posted via Newsfeeds.Com, Uncensored Usenet News =—– > > http://www.newsfeeds.com – The #1 Newsgroup Service in the World! > > —–==  Over 100,000 Newsgroups – 19 Different Servers! =—–

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Response:

Susie Q: Best to you as you begin your journey to stomp out the monster. Starting you a week early on the riba just to check for side-effects does seem rather odd, at best. I’d be asking a few more ‘why’ questions about that one. A head’s-up I just learned about insurance, pharmacies and labs – I had lab work come in last Friday afternoon saying that my nuetrophils were low and that my GIPA wanted to start me on Neupogen. I need to take the Neupogen 24 hours in advance of my next interferon shot (which takes place on Sunday evenings), so I needed to have the Neupogen by the next day. There were immediate problems: 1.)my pharmacy didn’t think they could get it at such a late hour (2PM on a Friday). When I asked if they could have it overnighted to them they said, ’sorry – our suppiler doesn’t ship on the weekends (imagine that???). 2.) my GIPA couldn’t find me a dose to ‘tide-me-over’ and said that if I couldn’t get the Neupogen, I’d have to cut my next interferon dose in half (bad, bad news in trying to erradicate the virus – most especially since I was only on shot # 6). To cut-to-the-chase, I ended up scrambling big-time in getting some and in the end, it worked out just fine. So, the lessons I learned out of this episode are: 1.) get you lab work done as early in the week as you can. This way, if anything last minute crops up, you have more time to react to it before they want to cut dosage. 2.) get things like Neupogen and Procrit pre-approved by your insurance, so there is no question when/if you need them.3.)make sure that you have a pharmacy that can supply those drugs – right away – when you need them. Call in advance and make sure they can have them there for you.4.)be your own advocate – ask tons of questions and push for your own best interests. Quite often docs are too busy or too concerned with ‘protocol’ (ie – ‘please, don’t sue me’) and would rather take the easy way out for them. BeatHepC "suequill" <suequ…@gtepacifica.net> wrote in message

news:405ad499_2@corp.newsgroups.com… – Hide quoted text — Show quoted text -> Went to doc today.  He said I could start this week-end. > I’m not ready.  Begged off.  I’m still trying to get some > errands completed before starting.  He said I could start with the ribavarin > for a week.  That way I can see how the sides will be from one med at a > time. > Even though I’m 2b, he wants me to go with 1200 mg of ribavarin.  He says > the studies have been too small, and he woulc rather cut back on this later > if I need to….but start out with the full amount.  Insurance finally came > thru.  Pharmacy called to tell me I could pick everything up. > I’ll go tomorrow.  They said they have a cold pack I can put it in to take > it home in.  I’m all hyped up about getting started.  Put it off for years, > but convinced that this is the right time.  Just not going to get rid of the > fibromyalgia unless I can get rid of the HCV.  Doc. thinks that is probably > true. > SusieQ > —–= Posted via Newsfeeds.Com, Uncensored Usenet News =—– > http://www.newsfeeds.com – The #1 Newsgroup Service in the World! > —–==  Over 100,000 Newsgroups – 19 Different Servers! =—–

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Went to doc today.  He said I could start this week-end. I’m not ready.  Begged off.  I’m still trying to get some errands completed before starting.  He said I could start with the ribavarin for a week.  That way I can see how the sides will be from one med at a time. Even though I’m 2b, he wants me to go with 1200 mg of ribavarin.  He says the studies have been too small, and he woulc rather cut back on this later if I need to….but start out with the full amount.  Insurance finally came thru.  Pharmacy called to tell me I could pick everything up. I’ll go tomorrow.  They said they have a cold pack I can put it in to take it home in.  I’m all hyped up about getting started.  Put it off for years, but convinced that this is the right time.  Just not going to get rid of the fibromyalgia unless I can get rid of the HCV.  Doc. thinks that is probably true. SusieQ —–= Posted via Newsfeeds.Com, Uncensored Usenet News =—– http://www.newsfeeds.com – The #1 Newsgroup Service in the World! —–==  Over 100,000 Newsgroups – 19 Different Servers! =—–

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Right on,  Suzie Q!! Elmo http://community.webtv.net/elmoemerson/DocElmosHepFile

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On Fri, 19 Mar 2004 21:08:05 +1000, "suequill" <suequ…@gtepacifica.net>, in message ID <405ad49…@corp.newsgroups.com>, in the newsgroup alt.support.hepatitis-c wrote: >Went to doc today.  He said I could start this week-end. >I’m not ready.  Begged off.  I’m still trying to get some >errands completed before starting.

Sure thing.  Why not?  A few weeks either way will not *normally* make a difference to outcome.  I could have started third week in January but I wanted my holiday first and to sort a few other bits out.  I only started last Saturday in the end. > He said I could start with the ribavarin >for a week.  That way I can see how the sides will be from one med at a >time.

This does seem unusual as ribavirin is ineffective on it’s own.  I don’t know if it has side effect potential like this though or if the interferon is needed to "activate" it. >Even though I’m 2b, he wants me to go with 1200 mg of ribavarin.  He says >the studies have been too small, and he woulc rather cut back on this later >if I need to….but start out with the full amount.

Sue.  You don’t say what weight you are but here in the UK (and they may be wrong) it’s normally only 800 a day for your genotype.  For genotype 1 it becomes weight based – up to an absolute maximum of 1200 a day.  As I am quite a bit overweight, I am considering asking if I can try 1200 a day out myself – even though I have genotype 2.  I would prefer to get some extra discomfort if it means an increased chance of clearing. >  Insurance finally came >thru.  Pharmacy called to tell me I could pick everything up. >I’ll go tomorrow.  They said they have a cold pack I can put it in to take >it home in.  I’m all hyped up about getting started.  Put it off for years, >but convinced that this is the right time.  Just not going to get rid of the >fibromyalgia unless I can get rid of the HCV.  Doc. thinks that is probably >true.

In your own time Susie.  If your head isn’t right for it, there’s always next week or the one after (assuming your doc didn’t say it was critical). I don’t know if it’s any help to you but I have been using delphi forums for a while.  Lots of good info. Message boards. Chatrooms.  I was actually using a hep-c chatroom while doing my first shot – but I’m a sad git anyway . — Paul Use the reply by email facility in your newsreader to send email

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>Subject: First shot coming up >From: "suequill" suequ…@gtepacifica.net >Date: 3/19/2004 6:08 AM Eastern Standard Time >Message-id: <405ad49…@corp.newsgroups.com> >Went to doc today.  He said I could start this week-end. >I’m not ready.  Begged off.  I’m still trying to get some >errands completed before starting.  He said I could start with the ribavarin >for a week.  That way I can see how the sides will be from one med at a >time.

Good luck on getting started. I don’t understand doing the ribaviron without the interferon however. My understanding is the ribaviron has no efffect on hep c by itself. You might want to check into that … no use taking a weeks worth of meds just to see what side effects you get. Ken

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Dragon Slayers' Club updated

Question:

I’ve made a few changes to make the DSC page a little easier to read. If there have been any additions, please let me know.  WS suggested adding a little more information such as Genotype, length of tx, number of rounds of tx, type of tx, how long since tx, and maybe your location.   It’s up to those that have finished what they would like to include. As of now I have listed all the info I have.  If there is interest, the DSC page could just list the names and have each one link to a personal biography page.  We could even put your picture on your biography page.   Just kidding about the pictures, it would be nice, but I’ve already seen what could happen.  Let me know of any corrections, additions, or thoughts on the page.  Here is the link to the page again. http://geocities.com/dwightmspage/ Thanks, Dwight

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Cool, you will be able to add my name to that list SOON. Laterz — Peace, Mike "Dwight" <Dwi…@Me.net> wrote in message

news:LdlUb.32161$1N.25139@newssvr33.news.prodigy.com… – Hide quoted text — Show quoted text -> I’ve made a few changes to make the DSC page a little easier to read. > If there have been any additions, please let me know.  WS suggested > adding a little more information such as Genotype, length of tx, number > of rounds of tx, type of tx, how long since tx, and maybe your location. >   It’s up to those that have finished what they would like to include. > As of now I have listed all the info I have.  If there is interest, the > DSC page could just list the names and have each one link to a personal > biography page.  We could even put your picture on your biography page. >   Just kidding about the pictures, it would be nice, but I’ve already > seen what could happen.  Let me know of any corrections, additions, or > thoughts on the page.  Here is the link to the page again. > http://geocities.com/dwightmspage/ > Thanks, > Dwight

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On Thu, 05 Feb 2004 06:17:15 GMT, Dwight <Dwi…@Me.net>, in message ID <LdlUb.32161$1N.25…@newssvr33.news.prodigy.com>, in the newsgroup – Hide quoted text — Show quoted text -alt.support.hepatitis-c wrote: >I’ve made a few changes to make the DSC page a little easier to read. >If there have been any additions, please let me know.  WS suggested >adding a little more information such as Genotype, length of tx, number >of rounds of tx, type of tx, how long since tx, and maybe your location. >  It’s up to those that have finished what they would like to include. >As of now I have listed all the info I have.  If there is interest, the >DSC page could just list the names and have each one link to a personal >biography page.  We could even put your picture on your biography page. >  Just kidding about the pictures, it would be nice, but I’ve already >seen what could happen.  Let me know of any corrections, additions, or >thoughts on the page.  Here is the link to the page again. >http://geocities.com/dwightmspage/ >Thanks, >Dwight

While you’re at it, put me on the chicken list — Paul Use the reply by email facility in your newsreader to send email

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"Dwight" <Dwi…@Me.net> wrote in message

news:LdlUb.32161$1N.25139@newssvr33.news.prodigy.com… > I’ve made a few changes to make the DSC page a little easier to read. > If there have been any additions, please let me know.  WS suggested > adding a little more information such as Genotype, length of tx, number > of rounds of tx, type of tx, how long since tx, and maybe your location. >   It’s up to those that have finished what they would like to include. > As of now I have listed all the info I have.  If there is interest, the > DSC page could just list the names and have each one link to a personal > biography page.  We could even put your picture on your biography page. >   Just kidding about the pictures, it would be nice, but I’ve already > seen what could happen.  Let me know of any corrections, additions, or > thoughts on the page.  Here is the link to the page again. > http://geocities.com/dwightmspage/

Looking good, Dwight. Btw, my tx was 24 weeks. Only suggestion at this point is that you might try reducting the point size by a notch or two, and aligning left rather than centre (this will make it easier to read). Keep up the good work! Waterspider

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