Killed it

Question:

Hello everyone, It has been a while since I last posted on here, in fact probably not since finishing treatment 6 months ago.  Anyway I just wanted report that I had my SVR confirmed.  Finally after 23 years of living with this virus I get to see what life is like without it. I have read that the liver can repair itself, does anyone know of anything on how long this takes.  Twelve months ago my liver showed signs of portal bridging fibrosis and I would quite like to have it back to normal.  Still not had a drink, if I am honest I am actually a bit frightened of it.  Maybe on Christmas day. Cheers Jonathan

Response:

Jonathan – Congratulations!  Thanks for letting us know. Gordo In article <do5rkd$lu…@cpca14.uea.ac.uk>, – Hide quoted text — Show quoted text - "Rasputin" <ras.pu…@btinternet.com> wrote: > Hello everyone, > It has been a while since I last posted on here, in fact probably not since > finishing treatment 6 months ago.  Anyway I just wanted report that I had my > SVR confirmed.  Finally after 23 years of living with this virus I get to > see what life is like without it. > I have read that the liver can repair itself, does anyone know of anything > on how long this takes.  Twelve months ago my liver showed signs of portal > bridging fibrosis and I would quite like to have it back to normal.  Still > not had a drink, if I am honest I am actually a bit frightened of it.  Maybe > on Christmas day. > Cheers > Jonathan

Response:

- Hide quoted text — Show quoted text -Rasputin wrote: > Hello everyone, > It has been a while since I last posted on here, in fact probably not since > finishing treatment 6 months ago.  Anyway I just wanted report that I had my > SVR confirmed.  Finally after 23 years of living with this virus I get to > see what life is like without it. > I have read that the liver can repair itself, does anyone know of anything > on how long this takes.  Twelve months ago my liver showed signs of portal > bridging fibrosis and I would quite like to have it back to normal.  Still > not had a drink, if I am honest I am actually a bit frightened of it.  Maybe > on Christmas day. > Cheers > Jonathan

Well done, congratulations. Cheers, jeeb.

Response:

Another one bites the dust, another one bites the dust!    Good for you! Buster "Rasputin" <ras.pu…@btinternet.com> wrote in message

news:do5rkd$luv$1@cpca14.uea.ac.uk… – Hide quoted text — Show quoted text -> Hello everyone, > It has been a while since I last posted on here, in fact probably not > since finishing treatment 6 months ago.  Anyway I just wanted report that > I had my SVR confirmed.  Finally after 23 years of living with this virus > I get to see what life is like without it. > I have read that the liver can repair itself, does anyone know of anything > on how long this takes.  Twelve months ago my liver showed signs of portal > bridging fibrosis and I would quite like to have it back to normal.  Still > not had a drink, if I am honest I am actually a bit frightened of it. > Maybe on Christmas day. > Cheers > Jonathan

Response:

"Rasputin" <ras.pu…@btinternet.com> wrote in message

news:do5rkd$luv$1@cpca14.uea.ac.uk… > Hello everyone, > It has been a while since I last posted on here, in fact probably not > since finishing treatment 6 months ago.  Anyway I just wanted report that > I had my SVR confirmed.  Finally after 23 years of living with this virus > I get to see what life is like without it.

Way to go Rasputin! Congratulations, big hugs and welcome to Club SVR! The coolest thing, to me, is that every time I look back to where I was six months ago, I’m waaaay healthier today, and this has been going on for several years now. It’s a hard fight, but it’s worth every minute of it. I hope you come back here to visit from time to time. It gets discouraging for newbies (and oldies too) when they rarely hear from anyone who has had success with treatment. Waterspider

Response:

Hello Jonathan – such excellent news!  Congratulations!  I recall that you had Hep c since childhood, but I don’t recall what your genotype or liver condition was.  I also recall that you followed a Chinese medical protocol alongwith your tx.  Would you mind telling me what city you’re in and the name of your Chinese practitioner?   Reversal of fibrosis happens, but studies are limited because of the time involved.  Below are excerpts from a Feb 2005 article about fibrosis.  If the link doesn’t work, go to http://www.jci.org/ and search titles for Liver Fibrosis. I am interested in this too, and will keep looking.  Stick around, Bud. SVR’s are golden here! Merry Merry Christmas Kathy http://www.pubmedcentral.gov/articlerender.fcgi?tool=pmcentrez&artid=… x86d9798 LIVER FIBROSIS J Clin Invest. 2005 February …Since the demonstration, in the 1990s, that even advanced liver fibrosis is reversible, researchers have been stimulated to identify antifibrotic therapies. Biotechnology and pharmaceutical companies are increasingly interested in developing antifibrotic programs, and clinical trials are currently underway. However, the most effective therapy for treating hepatic fibrosis to date is still to remove the causative agent… Lack of clinical trials is due to the requirement of long follow-up studies and to the fact that liver biopsy, an invasive procedure, is still the gold-standard method for detecting changes in liver fibrosis… .. The distribution of this fibrous material depends on the origin of the liver injury. In chronic viral hepatitis and chronic cholestatic disorders, the fibrotic tissue is initially located around portal tracts, while in alcohol-induced liver disease, it locates in pericentral and perisinusoidal areas. As fibrotic liver diseases advance, disease progression from collagen bands to bridging fibrosis to frank cirrhosis occurs. ..In humans, spontaneous resolution of liver fibrosis can occur after successful treatment of the underlying disease. This observation has been described in patients with iron and copper overload, alcohol-induced liver injury, chronic hepatitis C, B, and D, hemochromatosis, secondary biliary cirrhosis, NASH, and autoimmune hepatitis.  It may take years for significant regression to be achieved; the time varies depending on the underlying cause of the liver disease and its severity. Chronic HCV infection is the most extensively studied condition, and therapy (IFN-a plus ribavirin) with viral clearance results in fibrosis improvement. Importantly, nearly half of patients with cirrhosis exhibit reversal to a significant degree. Whether this beneficial effect is associated with improvements in long-term clinical outcome, including decreased portal hypertension, is unknown…Several questions remain unanswered: Can we pharmacologically accelerate fibrosis resolution in humans? Can a fibrotic liver completely regress to a normal liver? Does fibrosis reverse similarly in all types of liver diseases? …

Response:

"Rasputin" <ras.pu…@btinternet.com> wrote in message

news:do5rkd$luv$1@cpca14.uea.ac.uk… – Hide quoted text — Show quoted text -> Hello everyone, > It has been a while since I last posted on here, in fact probably not > since finishing treatment 6 months ago.  Anyway I just wanted report that > I had my SVR confirmed.  Finally after 23 years of living with this virus > I get to see what life is like without it. > I have read that the liver can repair itself, does anyone know of anything > on how long this takes.  Twelve months ago my liver showed signs of portal > bridging fibrosis and I would quite like to have it back to normal.  Still > not had a drink, if I am honest I am actually a bit frightened of it. > Maybe on Christmas day. > Cheers > Jonathan

Congratulations! Glad to hear your news.

Response:

Good link, Kathy; thanks. WS – Hide quoted text — Show quoted text -> http://www.pubmedcentral.gov/articlerender.fcgi?tool=pmcentrez&artid=… > x86d9798 > LIVER FIBROSIS > J Clin Invest. 2005 February > …Since the demonstration, in the 1990s, that even advanced liver > fibrosis is reversible, researchers have been stimulated to identify > antifibrotic therapies. Biotechnology and pharmaceutical companies are > increasingly interested in developing antifibrotic programs, and clinical > trials are currently underway. However, the most effective therapy for > treating hepatic fibrosis to date is still to remove the causative > agent… Lack of clinical trials is due to the requirement of long > follow-up studies and to the fact that liver biopsy, an invasive > procedure, is still the gold-standard method for detecting changes in > liver fibrosis… > .. The distribution of this fibrous material depends on the origin of the > liver injury. In chronic viral hepatitis and chronic cholestatic > disorders, > the fibrotic tissue is initially located around portal tracts, while in > alcohol-induced liver disease, it locates in pericentral and > perisinusoidal areas. As fibrotic liver diseases advance, disease > progression from collagen bands to bridging fibrosis to frank cirrhosis > occurs. > ..In humans, spontaneous resolution of liver fibrosis can occur after > successful treatment of the underlying disease. This observation has been > described in patients with iron and copper overload, alcohol-induced liver > injury, chronic hepatitis C, B, and D, hemochromatosis, secondary biliary > cirrhosis, NASH, and autoimmune hepatitis.  It may take years for > significant regression to be achieved; the time varies depending on the > underlying cause of the liver disease and its severity. Chronic HCV > infection is the most extensively studied condition, and therapy (IFN-a > plus ribavirin) with viral clearance results in fibrosis improvement. > Importantly, nearly half of patients with cirrhosis exhibit reversal to a > significant degree. Whether this beneficial effect is associated with > improvements in long-term clinical outcome, including decreased portal > hypertension, is unknown…Several questions remain unanswered: Can we > pharmacologically accelerate fibrosis resolution in humans? Can a fibrotic > liver completely regress to a normal liver? Does fibrosis reverse > similarly > in all types of liver diseases? …

Response:

On Mon, 19 Dec 2005 08:40:30 -0000, "Rasputin" – Hide quoted text — Show quoted text -<ras.pu…@btinternet.com> wrote: >Hello everyone, >It has been a while since I last posted on here, in fact probably not since >finishing treatment 6 months ago.  Anyway I just wanted report that I had my >SVR confirmed.  Finally after 23 years of living with this virus I get to >see what life is like without it. >I have read that the liver can repair itself, does anyone know of anything >on how long this takes.  Twelve months ago my liver showed signs of portal >bridging fibrosis and I would quite like to have it back to normal.  Still >not had a drink, if I am honest I am actually a bit frightened of it.  Maybe >on Christmas day. >Cheers >Jonathan

Congratulations Jonathan.  I’m very happy for you and welcome to the SVR club.  The liver is a magnificent organ and yours is saying thank you very much.  I don’t know about time tables but studies I’ve been reading say you can expect your liver to heal very well within a year or 2.  The problem is who wants to get a biopsy after you’ve killed the dragon.  There is one out there can’t remember the url but it is for people with autoimmune hepatitis that showed drastic liver recovery in short time frames.  I imagine it would be the same for us. take care, Don

Response:

Well done Jonathan!!! I hope you did a victory dance!!! You deserve it!!!! — Shawn (use the "reply feature on your browser to send a private reply via E-Mail.) "ghibelno" <ghibe…@yahoo.it> wrote in message

news:1134993391.720916.287900@z14g2000cwz.googlegroups.com… – Hide quoted text — Show quoted text -> Rasputin wrote: >> Hello everyone, >> It has been a while since I last posted on here, in fact probably not >> since >> finishing treatment 6 months ago.  Anyway I just wanted report that I had >> my >> SVR confirmed.  Finally after 23 years of living with this virus I get to >> see what life is like without it. >> I have read that the liver can repair itself, does anyone know of >> anything >> on how long this takes.  Twelve months ago my liver showed signs of >> portal >> bridging fibrosis and I would quite like to have it back to normal. >> Still >> not had a drink, if I am honest I am actually a bit frightened of it. >> Maybe >> on Christmas day. >> Cheers >> Jonathan > Well done, congratulations. > Cheers, > jeeb.

Response:

Ding dong, the dragon’s dead!  <happy dance> "Rasputin" <ras.pu…@btinternet.com> wrote in message

news:do5rkd$luv$1@cpca14.uea.ac.uk… – Hide quoted text — Show quoted text -> Hello everyone, > It has been a while since I last posted on here, in fact probably not > since finishing treatment 6 months ago.  Anyway I just wanted report that > I had my SVR confirmed.  Finally after 23 years of living with this virus > I get to see what life is like without it. > I have read that the liver can repair itself, does anyone know of anything > on how long this takes.  Twelve months ago my liver showed signs of portal > bridging fibrosis and I would quite like to have it back to normal.  Still > not had a drink, if I am honest I am actually a bit frightened of it. > Maybe on Christmas day. > Cheers > Jonathan

Response:

In article <do5rkd$lu…@cpca14.uea.ac.uk>, ras.pu…@btinternet.com says… – Hide quoted text — Show quoted text ->Hello everyone, >It has been a while since I last posted on here, in fact probably not since >finishing treatment 6 months ago.  Anyway I just wanted report that I had my >SVR confirmed.  Finally after 23 years of living with this virus I get to >see what life is like without it. >I have read that the liver can repair itself, does anyone know of anything >on how long this takes.  Twelve months ago my liver showed signs of portal >bridging fibrosis and I would quite like to have it back to normal.  Still >not had a drink, if I am honest I am actually a bit frightened of it.  Maybe >on Christmas day. >Cheers >Jonathan

You can’t see it, but my thumbs up.  Way up.  Congrats dude.  You’ll be fine from here on out.  Be patient as you’ve been granted a new lease. Take advantage of it Jon.  And don’t forget to kiss your doctor on New Years Eve.  

Response:

"Shawn" <m…@privacy.net> wrote in message

news:lYFpf.10005$aU4.7418@trnddc06… > Well done Jonathan!!! I hope you did a victory dance!!! You deserve it!!!!

Snoopy dance – does that count? J

Response:

"Frank" <HangininTh…@verizon.com> wrote in message

news:0O2dnWJEjN_i9TreRVn-sA@comcast.com… > You can’t see it, but my thumbs up.  Way up.  Congrats dude.  You’ll be > fine > from here on out.  Be patient as you’ve been granted a new lease. Take > advantage of it Jon.  And don’t forget to kiss your doctor on New Years > Eve.

Unfortunately my doctor is a bit of an ugly old goat, so not sure I will go quite that far. Maybe if I am drunk enough

Response:

Right on, Jonathan!! elmo http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum

Response:

MOST EXCELLENT DUDE!!! Hell yes, have a nice brew and celabrate, but in moderation of course, hehe… Nice work, I’m glad for you. Russ "Rasputin" <ras.pu…@btinternet.com> wrote in message

news:do5rkd$luv$1@cpca14.uea.ac.uk… – Hide quoted text — Show quoted text -> Hello everyone, > It has been a while since I last posted on here, in fact probably not > since finishing treatment 6 months ago.  Anyway I just wanted report that > I had my SVR confirmed.  Finally after 23 years of living with this virus > I get to see what life is like without it. > I have read that the liver can repair itself, does anyone know of anything > on how long this takes.  Twelve months ago my liver showed signs of portal > bridging fibrosis and I would quite like to have it back to normal.  Still > not had a drink, if I am honest I am actually a bit frightened of it. > Maybe on Christmas day. > Cheers > Jonathan

Response:

Oh Good for you, man!      Doug "Rasputin" <ras.pu…@btinternet.com> wrote in message

news:do5rkd$luv$1@cpca14.uea.ac.uk… – Hide quoted text — Show quoted text -> Hello everyone, > It has been a while since I last posted on here, in fact probably not > since finishing treatment 6 months ago.  Anyway I just wanted report that > I had my SVR confirmed.  Finally after 23 years of living with this virus > I get to see what life is like without it. > I have read that the liver can repair itself, does anyone know of anything > on how long this takes.  Twelve months ago my liver showed signs of portal > bridging fibrosis and I would quite like to have it back to normal.  Still > not had a drink, if I am honest I am actually a bit frightened of it. > Maybe on Christmas day. > Cheers > Jonathan

Response:

Willie Nelson pitches in against deadly disease

Question:

Singer, other celebrities film public service announcement about hepatitis C. By Mary Ann Roser AMERICAN-STATESMAN STAFF Sunday, March 20, 2005 LUCK – Willie Nelson put his star wattage behind a cause that he said "loves the dark" and brings pain to many people, including some of his friends in the music world. Nelson lent his voice and face Saturday to a planned public service announcement for hepatitis C, the most common blood-borne infection in the country. The announcement could hit the nation’s TV stations this summer, making the Texas icon a new voice in the fight against a daunting ailment. Hepatitis C, which often goes undetected for many years and can be deadly, infects nearly five times as many people as the human immunodeficiency virus, which causes AIDS. Several Austin musicians have spoken out about their experiences with hepatitis C, including Alejandro Escovedo and Asleep at the Wheel’s Ray Benson, who sat on a panel Saturday at the South by Southwest Music Festival. "It’s a great cause," Nelson said, wearing a ball cap, his braided hair lying across the front of a black T-shirt. "Anything I can do, I’m glad to do." A passel of celebrities, including musicians Billy Joe Shaver, Pauline Reese, Shooter Jennings, Little Joe (of Little Joe y La Familia), comedian Jackie Martling and soap opera star Anthony Herrera descended on a barn in Luck, the mock western town on Nelson’s property west of Austin built for the 1980s movie "Red Headed Stranger." If all goes well, TV stations could air the announcement, something they do free for nonprofits and other organizations, as early as June, said Jim "Taco" Gerik of Dallas, president of Tocrok Productions Inc. and director of Saturday’s announcement. Gerik has no doubt stations will show it. "There were tears in my eyes," he said after Nelson filmed his lines about hepatitis C’s stealth attack and his plea that people act to stop it. "It was that good." Julia Spears, the wife of Nelson’s bass player Bee Spears, has hepatitis C and yearned to do an announcement to raise awareness about the illness and urge people to get tested. "Willie is doing this out of the goodness of his heart," she said. "He understands what a problem hepatitis C is." Along with the generosity of Nelson and the other celebrities, Panavision donated the cameras, Kodak donated the film, and the crews who worked on the shoot donated their time, Gerik said. The Lakeway Inn got in the spirit and donated some rooms to the out-of-towners involved in the shoot. Spears, 54, executive producer of the announcement, wants people to come away with more information – and hope. Those were the reasons she created the Julia Spears Foundation after she was diagnosed with hepatitis C in 2001, long after she was infected from what she calls a brief but foolish encounter with drugs in 1968. "I knew how frightening it could be," she said. Hepatitis C affects 3.9 million, or 1.8 percent, of Americans. It is primarily spread by blood-to-blood contact, with about 80 percent of people being exposed through needles contaminated by someone with hepatitis C. Exposure can also occur from sexual intercourse, long-term kidney dialysis, shared toothbrushes and razors, and blood transfusions and organ transplants before testing began in July 1992. Less common causes include tattooing or body piercing when nonsterile procedures or equipment is used. More than half of the people with hepatitis C don’t know they have it. "The lack of awareness may be the scariest" aspect of the disease, said the writer and co- director, Tracy Helms of Dallas. With treatment, Spears, who lives with her husband in Franklin, Tenn., is now cured, she said. She underwent the standard therapy of pegylated interferon injections and antiviral ribavirin pills. Not everyone can tolerate that treatment, but of those who complete it, up to 65 percent can be cured, said Dr. Bruce Bacon of St. Louis. Bacon, who was at the shoot Saturday and treated Spears, said the virus disappears on its own in another 20 percent of people. But the most severely affected have livers so badly damaged they need a transplant. Some die waiting for an organ. Sadly, Bacon said, people with hepatitis C are sometimes automatically told by ill-informed doctors to prepare to die. County music star Naomi Judd was given three years to live when she was diagnosed more than a decade ago, he said. "It’s not a death sentence," said Bacon, who treated Judd. The singer also has used her celebrity to raise awareness of hepatitis C. Musicians as a group are considered to be at high risk of hepatitis C because of lifestyle factors, but Spears said the disease doesn’t discriminate. "It’s not just musicians," Spears said. "It’s bankers; it’s doctors; it’s CEOs of corporations; it’s the 60-year-old woman who had a blood transfusion before 1992, who’s just finding out. . . . It’s anyone." Help with hepatitis C The Liver Foundation of Central Texas helps the uninsured pay for hepatitis C treatment. It also conducts free screenings the third Thursday of each month from 5:30 to 6:30 p.m. at the People’s Community Clinic, 2909 N. Interstate 35. For more information, see the foundation’s Web site at www.lfct.org. The Julia Spears Foundation can be reached at spearsfoundat…@aol.com. It will have a Web site when the announcement is ready at www.helpwithhepc.com. http://www.statesman.com/metrostate/content/metro/stories/03/20hepc.html

Response:

Shooter Jennings?  Is he a member of the Friday Night Shooter’s Club?   elmo (good boy, Willie) http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum

Response:

Ready set go

Question:

Ray Glad your taking this so well. I just dont want you ending up in ER from mixing stuff like that. It wouldnt be good and you wouldnt want to have to tell ER what your really on. Could be a mess. Tx will zing you enough, make bud your friend and smoke smoke smoke. So your starting monday, do keep in touch and let us all know how your doing. Expect to feel weird believe me you will. Learning to ride the roller coaster of tx is a trip its self. Good luck monday.             Juanita dixo…@optusnet.com.au (RAY) Thank you Juanita for your reply, no i dont really know what to expect. and no i,m not that young, silly, well yeah maybe sometimes. i start monday and am just trying to see what avenues there are to get though it the best i can. sinserely thanks for the consern and taking the time to tell me off -) kind regards Ray "JV" <Meling…@webtv.net> wrote in message

news:16025-439908C4-15@storefull-3171.bay.webtv.net… Ray You must be nuts to mix anything like ex with interferon tx. Do you have a death wish? It seems to me your not taking your disease of hep c very seriously at all. You need to straighten up before you start tx. It is very demanding and requires a full time commitment. Either your not very old or your just plain silly and don’t know any better. Do you want to jeopardize your chances for getting rid of hep c or what. Any thing that will tax your liver you need to forget and leave behind. Smoke some bud and start behaving your self Ray and put the fun on hold for a while. Once you start tx your going to find that just surviving on a daily bases is going to consume you. Now start behaving and come back to reality.

BLEAH! HCV sucks!

Question:

"Thip" <m…@privacy.net> wrote in message

news:3tpnm1Ftuhq7U1@individual.net… > WS, you are absolutely awesome.  I’m so glad you’re in my life.

Back at ya!

Response:

Thipper, I haven’t been checking in a whole lot lately. I like the though of you having the transplant done and you being your old self but can only just image what you must be facing. We will all be with you and pulling for you. buster "Thip" <m…@privacy.net> wrote in message

news:3tkbsfFt9ficU1@individual.net… – Hide quoted text — Show quoted text ->I saw BCLD this morning.  He was great–I shouldn’t hold that one bad >appointment against him.  Besides, I was pretty whiny myself that day. > He said I look better now that I have for at least a year, so I told him > how good I feel and about the glyconutrients.  He told me to keep taking > it but to keep an eye on my blood sugar; chances are there won’t be any > trouble from the glyconutrients, but better safe than sorry.  We also went > over my last blood test results, the MRI, and the last biopsy, and talked > about them at length.  Guess what?  I’m sick!  Then they took a gallon of > blood to run the whole range of tests again. > He nixed the idea of maintenance therapy and he’s putting me in for > transplant instead.  Woohoo, I’m just tickled pink (not).  Dunno when I’ll > be hearing from Emory but I’ll keep y’all posted.  This should be > interesting.  At least I’ll get to see Dr. Gitlin again.  :-)

Response:

WS, you are absolutely awesome.  I’m so glad you’re in my life. "Waterspider" <waterspi…@moonlight.net> wrote in message

news:11ndg8ilqrl74a8@corp.supernews.com… – Hide quoted text — Show quoted text -> Fuck. > Thipper, my good friend, fellow FNSC member, I’m dumbfounded, I’m so sorry > to hear the news. > Here we all are whinging about tx-itch, med costs, post-tx aches and pains > and all the shit that doesn’t really make a tinker’s damn worth of > difference in the big picture, and you got nailed with the transplant > ticket. Talk about perspective… > The next idiot who comes along trilling about how you can live with hep c, > ta-da-ta-da tra-la-tra-la, is going to get decked. It’s deadly serious > shit, and even most of us here who should know better are wearing those > same rose-coloured glasses as you so recently got ripped off your face and > hurled out the window… > I could go on, babbling aimlessly, but I found this and thought it more > relevant because we were both in the same place at the same time, then, > Aug. 25, 2003, and it was a discussion about religion (or lack thereof) > but that hypothetical situation has come around to you and I agian. > Dredged from Google, ash-c archives: > "So here’s the problem: > "Let’s say someone here on the group is going through a bad time, and I > want > to communicate my emotional reaction to their post and feelings about it. > It > could be any of the rest of you, but Thipper comes to mind because she > recently was forced to discontinue tx, and lost her husband. > "What I want to say is this: > "I’ve never met you face-to-face and I really don’t know much about your > life > and its other ups and downs, but what we’ve shared here in fighting the > dragon makes me feel closer to you than many friends I’ve known for years. > "Because we have the same disease, because we are going through many of > the > same trials because of it, my empathy for your situation is stronger than > you can imagine. I enjoy reading your posts like I’d enjoy a greeting card > from a close friend. > "Because you are having problems right now, I want to > tell you how much I care about you, I want you to know that I think of you > often and I truly hope that your problem is soon resolved with the least > amount of pain, fear, expense, anxiety, discomfort etc. etc. possible, and > that I share these feelings with you, although (obviously) to a lesser > degree. If I could do anything to help I would, but I feel helpless, like > watching a friend being pulled under the rapids when I’m stuck on shore. > My > feelings are strong and genuine, but words are inadequate to express them, > but I don’t want to embarass or frighten you by saying, "I love you." > "But, we don’t ever say this. Kinda sad, isn’t it?" > … so, that’s kinda what I want to say to you, again. That, and that > you’re not in this alone. > Waterspider > …and now we’re looking at 2006. > What a long, strange trip it’s been.

Response:

- Hide quoted text — Show quoted text -Waterspider wrote: > Fuck. > Thipper, my good friend, fellow FNSC member, I’m dumbfounded, I’m so sorry > to hear the news. > Here we all are whinging about tx-itch, med costs, post-tx aches and pains > and all the shit that doesn’t really make a tinker’s damn worth of > difference in the big picture, and you got nailed with the transplant > ticket. Talk about perspective… > The next idiot who comes along trilling about how you can live with hep c, > ta-da-ta-da tra-la-tra-la, is going to get decked. It’s deadly serious shit, > and even most of us here who should know better are wearing those same > rose-coloured glasses as you so recently got ripped off your face and hurled > out the window… > I could go on, babbling aimlessly, but I found this and thought it more > relevant because we were both in the same place at the same time, then, Aug. > 25, 2003, and it was a discussion about religion (or lack thereof) but that > hypothetical situation has come around to you and I agian. Dredged from > Google, ash-c archives: > "So here’s the problem: > "Let’s say someone here on the group is going through a bad time, and I want > to communicate my emotional reaction to their post and feelings about it. It > could be any of the rest of you, but Thipper comes to mind because she > recently was forced to discontinue tx, and lost her husband. > "What I want to say is this: > "I’ve never met you face-to-face and I really don’t know much about your > life > and its other ups and downs, but what we’ve shared here in fighting the > dragon makes me feel closer to you than many friends I’ve known for years. > "Because we have the same disease, because we are going through many of the > same trials because of it, my empathy for your situation is stronger than > you can imagine. I enjoy reading your posts like I’d enjoy a greeting card > from a close friend. > "Because you are having problems right now, I want to > tell you how much I care about you, I want you to know that I think of you > often and I truly hope that your problem is soon resolved with the least > amount of pain, fear, expense, anxiety, discomfort etc. etc. possible, and > that I share these feelings with you, although (obviously) to a lesser > degree. If I could do anything to help I would, but I feel helpless, like > watching a friend being pulled under the rapids when I’m stuck on shore. My > feelings are strong and genuine, but words are inadequate to express them, > but I don’t want to embarass or frighten you by saying, "I love you." > "But, we don’t ever say this. Kinda sad, isn’t it?" > … so, that’s kinda what I want to say to you, again. That, and that you’re > not in this alone. > Waterspider > …and now we’re looking at 2006. > What a long, strange trip it’s been.

Lovely ws mye

Response:

And a little butt grope, to boot.  :-) elmo /////////// (cactus

Family Album

Question:

Re: Family Album (Thom)   Group: alt.support.hepatitis-c Date: Sun, Nov 13, 2005, 6:40am (CST+6) From: mara…@ncia.net (Firestar) <elmoemer…@webtv.net> wrote in message

news:16204-43761927-149@storefull-3253.bay.webtv.net… Re: Family Album (Thom) Group: alt.support.hepatitis-c Date: Fri, Nov 11, 2005, 2:45pm (CST+6) From: a…@veloceraptor.free-online.co.uk (Alan) In article <12221-43749BC9-…@storefull-3257.bay.webtv.net>, elmoemer…@webtv.net () wrote:

Got it, Tom. Am going to work on the FA this weekend. elmo Have you got Lana’s email address? If you have, will you kindly give her this? <snip> Elmo, I haven’t been in touch with Lana for a few months, but I will forward your post to the email I have on file. I’ll let you know if I’m successful. Thom ////////////// Considering that it was Alan’s comments to Lana that helped drive her from the NG, I don’t think Lana really wants to get a forwarded message from him.  It would be like someone reminding of you of a bad toothache. elmo http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum

Response:

<elmoemer…@webtv.net> wrote in message

news:16204-43761927-149@storefull-3253.bay.webtv.net… > Re: Family Album (Thom) > Group: alt.support.hepatitis-c Date: Fri, Nov 11, 2005, 2:45pm (CST+6) > From: a…@veloceraptor.free-online.co.uk (Alan) > In article <12221-43749BC9-…@storefull-3257.bay.webtv.net>, > elmoemer…@webtv.net () wrote: > Got it, Tom. Am going to work on the FA this weekend. elmo > Have you got Lana’s email address? > If you have, will you kindly give her this?

<snip> Elmo, I haven’t been in touch with Lana for a few months, but I will forward your post to the email I have on file.  I’ll let you know if I’m successful. Thom

Response:

Re: Family Album (Thom)   Group: alt.support.hepatitis-c Date: Fri, Nov 11, 2005, 2:45pm (CST+6) From: a…@veloceraptor.free-online.co.uk (Alan) In article <12221-43749BC9-…@storefull-3257.bay.webtv.net>, elmoemer…@webtv.net () wrote:

Got it, Tom. Am going to work on the FA this weekend. elmo Have you got Lana’s email address? If you have, will you kindly give her this? Consider this snippet of conversation between that crusading Idaho dentist Len Horowitz and an interviewer about why it seems everyone in America is sick right now with a brochial infection no one seems to be able to get rid of. Horowitz explained: " … in the contemporary warfare arena, where experts in biological chemical warfare convene and discuss the ways that are ideal to conduct warfare today, to really take an enemy out, you don’t want to kill the people. You want to produce people who are chronically ill and become dependent on the state and totally sap the resources of the country. And then you can move in further with your military-medical-industrial complex, your international medical-pharmaceutical cartel. And then you sell these beleaguered and defeated countries all of the pharmaceuticals and chemicals that they need to maintain any semblance of healthy function." Interviewer: "So you’ve got a work force that can work, but they’re too tired after they finish working to …. " "That’s exactly it," Horowitz exclaimed. "They’re completely depleted. They can’t put together a military, you create a dependence and thereby you weaken the population, and weakened populations are easily to control. So you’ve got population control, and you make vast fortunes doing it, versus just blowing up a nuclear weapon and devastating the infrastructure that you own. You and your colleagues own that infrastructure. You want to get rid of the people. You don’t want to get rid of infrastructure." So much for the "why" of this biowarfare now going on that everyone’s overlooking. How about for the "who" and the "how," according to Horowitz. "What you’re looking at with this upper respiratory infection is that it is a multi-factorial illness. It’s associated with a variety of chemical and biological co-factors. Just like with AIDS, it’s not the AIDS virus that ultimately kills, it’s co-factor microbes such as the micoplasma …" "What you have could be described as an ideal Russian biological cocktail. And I suppose it’s called Russian biological cocktail because the Americans likely invented it. What they determined would be the best biological chemical warfare approach was a combination of chemicals and biologicals, so that it would be very difficult to diagnose and then treat the illnesses. Moreover, it would be very difficult to trace where they came from. "If you’ve got, say, ethylene dibromide coming out of the jet fuels that is causing immune suppression and weakening your immune system, and then you’ve got a micoplasma microbe or a fungus that causes an upper respiratory illness, suddenly you develop a secondary bacterial infection. Now you get hit with antibiotics, and the antibiotics cause your body chemistry to go acidic, so now you get rashes and other things, your liver gets full of toxins and comes out through your skin in rashes and they get hyperallergenic reactions associated with the other chemicals. "So all of a sudden now, you realize that you’ve got a human being who is completely out of balance and infected by two, three or four microbial co-factors as well as intoxicated by a variety of different chemicals." There’s your human weather forecast from one of the world’s foremost medical detectives. http://www.johnkaminski.com/ And would you please tell her that although I still don’t believe her flying saucer stories, that I do now beleive her chem-trail stories. Would you please do that for me Elmo? Thank you and goodbye again. Alan /////////// Sure!  No problem, Alan. You’re welcome, and goodbye again. elmo http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum

Response:

Elmo, Let me know if you got the pic I sent.  I don’t know how to shrink the file (can anyone help with directions?), so I hope it isn’t too large for webtv. Thom

Response:

Got it, Tom.  Am going to work on the FA this weekend.   elmo http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum

Response:

In article <12221-43749BC9-…@storefull-3257.bay.webtv.net>, elmoemer…@webtv.net () wrote: > Got it, Tom.  Am going to work on the FA this weekend.   > elmo

Have you got Lana’s email address? If you have, will you kindly give her this? Consider this snippet of conversation between that crusading Idaho dentist Len Horowitz and an interviewer about why it seems everyone in America is sick right now with a brochial infection no one seems to be able to get rid of. Horowitz explained: " … in the contemporary warfare arena, where experts in biological chemical warfare convene and discuss the ways that are ideal to conduct warfare today, to really take an enemy out, you don’t want to kill the people. You want to produce people who are chronically ill and become dependent on the state and totally sap the resources of the country. And then you can move in further with your military-medical-industrial complex, your international medical-pharmaceutical cartel. And then you sell these beleaguered and defeated countries all of the pharmaceuticals and chemicals that they need to maintain any semblance of healthy function." Interviewer: "So you’ve got a work force that can work, but they’re too tired after they finish working to …. " "That’s exactly it," Horowitz exclaimed. "They’re completely depleted. They can’t put together a military, you create a dependence and thereby you weaken the population, and weakened populations are easily to control. So you’ve got population control, and you make vast fortunes doing it, versus just blowing up a nuclear weapon and devastating the infrastructure that you own. You and your colleagues own that infrastructure. You want to get rid of the people. You don’t want to get rid of infrastructure." So much for the "why" of this biowarfare now going on that everyone’s overlooking. How about for the "who" and the "how," according to Horowitz. "What you’re looking at with this upper respiratory infection is that it is a multi-factorial illness. It’s associated with a variety of chemical and biological co-factors. Just like with AIDS, it’s not the AIDS virus that ultimately kills, it’s co-factor microbes such as the micoplasma …." "What you have could be described as an ideal Russian biological cocktail. And I suppose it’s called Russian biological cocktail because the Americans likely invented it. What they determined would be the best biological chemical warfare approach was a combination of chemicals and biologicals, so that it would be very difficult to diagnose and then treat the illnesses. Moreover, it would be very difficult to trace where they came from. "If you’ve got, say, ethylene dibromide coming out of the jet fuels that is causing immune suppression and weakening your immune system, and then you’ve got a micoplasma microbe or a fungus that causes an upper respiratory illness, suddenly you develop a secondary bacterial infection. Now you get hit with antibiotics, and the antibiotics cause your body chemistry to go acidic, so now you get rashes and other things, your liver gets full of toxins and comes out through your skin in rashes and they get hyperallergenic reactions associated with the other chemicals. "So all of a sudden now, you realize that you’ve got a human being who is completely out of balance and infected by two, three or four microbial co-factors as well as intoxicated by a variety of different chemicals." There’s your human weather forecast from one of the world’s foremost medical detectives. http://www.johnkaminski.com/ And would you please tell her that although I still don’t believe her flying saucer stories, that I do now beleive her chem-trail stories. Would you please do that for me Elmo? Thank you and goodbye again. Alan "A society whose citizens refuse to see and investigate the facts, who refuse to believe that their government and their media will routinely lie to them and fabricate a reality contrary to verifiable facts, is a society that chooses and deserves the Police State Dictatorship it’s going to get." – Ian Williams Goddard Nemesis Peace Centre http://www.veloceraptor.free-online.co.uk/protector.html Abuse of Women and Children http://theoriginalfirebird.blogspot.com/ Nemesis News http://lordcerneabbas.blogspot.com/ Absolute Anarchy http://lordcerneabbastoo.blogspot.com/

Response:

What is the latest Tx?

Question:

Thanks Doug. Also I was a little snappy after a long day. A new day better attitude , I’m ready. Thanks again – Hide quoted text — Show quoted text -Doug wrote: > "jst" <js5t…@x.net> wrote in message > news:XMVbf.3587$4l5.2861@dukeread05… >>Well I already read about VX 950. And I already read all of the post about >>1st shot 2nd shot ect and no one said what they were taking for their 1st >>shot. That’s why I asked Doug, if you don’t want to take the time to share >>information then fine. > Hey, I meant no harm by what I said to you.  Just read. It’s all been talked > to death lately on up and coming TXs and what’s currently in use.  If you > don’t understand, ask.  BTW there’s a few add on treatment enhancers like > Amantadine that haven’t been discussed lately.  Read the earlier posts if > you feel like putting your own effort into it.  OK.  :-)  Doug

Response:

Thanks Kjoh. – Hide quoted text — Show quoted text -kjoh wrote: >>by jst <js5t…@x.net> Nov 7, 2005 at 08:49 PM >>What is the latest TX now? What is on the very >near horizon?? > Hi jst:  Nothing is on the "very near horizon" > Check these links: > http://www.hivandhepatitis.com/hep_c/hep_c_treat.html > http://www.hivandhepatitis.com/hep_c/news/2005/ad/102605_a.html > Regards, kj

Response:

"jst" <js5t…@x.net> wrote in message

news:XMVbf.3587$4l5.2861@dukeread05… > Well I already read about VX 950. And I already read all of the post about > 1st shot 2nd shot ect and no one said what they were taking for their 1st > shot. That’s why I asked Doug, if you don’t want to take the time to share > information then fine.

Hey, I meant no harm by what I said to you.  Just read. It’s all been talked to death lately on up and coming TXs and what’s currently in use.  If you don’t understand, ask.  BTW there’s a few add on treatment enhancers like Amantadine that haven’t been discussed lately.  Read the earlier posts if you feel like putting your own effort into it.  OK.  :-)  Doug

Response:

The difference between now and what your family member did is that there is now "pegylated" interferon.  Oversimplified, a soap molecule is attached to the interferon and because of that your kidneys won’t just flush it out quickly.  That soap molecule has to be broken off by the liver and that takes time, so one dose of the peg-interferon a week gives better results and fewer side-effects than the three shots/week that they did. All the other new treatments are still years away from being proven to work in the long run and being made available. I don’t know what the success rate improvement with the peg-interferon is compared to what they did before.  You might find it at the links someone else gave you. Gordo – Hide quoted text — Show quoted text -In article <XMVbf.3587$4l5.2861@dukeread05>, jst <js5t…@x.net> wrote: > Well I already read about VX 950. And I already read all of the post > about 1st shot 2nd shot ect and no one said what they were taking for > their 1st shot. That’s why I asked Doug, if you don’t want to take the > time to share information then fine. I have a family member who took the > first round of meds in approx. 1997 which was three shots a week of > interferon & Ribavarin. The Tx was unsuccessful and they are thinking of > doing the Tx again. I am starting the process of educating myself about > Tx options again so I can pass on the best information I can. We as a > family have also learned not to take the Dr’s word as gospel. The first > Dr. said the fam member would be dead in a year and they had no symptoms > at all. Another said they would need a liver transplant within two years >    , again with no symptoms and a low count and in perfect health. > That’s why I am posting here Doug. > Doug wrote: > > Read back through previous posts.  If there’s something you don’t > > understand > > ask again.  Doug > > "jst" <js5t…@x.net> wrote in message > > news:dnUbf.3568$4l5.2577@dukeread05… > >>What is the latest TX now? What is on the very near horizon??

Response:

Re: What is the latest Tx?   Group: alt.support.hepatitis-c Date: Tue, Nov 8, 2005, 12:24am (CST+1) From: d…@adelphia.net (Doug) "jst" <js5t…@x.net> wrote in message

news:XMVbf.3587$4l5.2861@dukeread05… Well I already read about VX 950. And I already read all of the post about 1st shot 2nd shot ect and no one said what they were taking for their 1st shot. That’s why I asked Doug, if you don’t want to take the time to share information then fine. Hey, I meant no harm by what I said to you. Just read. It’s all been talked to death lately on up and coming TXs and what’s currently in use. If you don’t understand, ask. BTW there’s a few add on treatment enhancers like Amantadine that haven’t been discussed lately. Read the earlier posts if you feel like putting your own effort into it. OK. Doug /////////// I used Amantadine in the mix of combo drugs in spite of my practitioner’s position that the stuff has been shown to have no effect. She laughed at me while she wrote the script.  We laughed all the way thru tx to SVR.   elmo http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum

Response:

Re: What is the latest Tx?   Group: alt.support.hepatitis-c Date: Mon, Nov 7, 2005, 10:25pm From: js5t…@x.net (jst) Well I already read about VX 950. And I already read all of the post about 1st shot 2nd shot ect and no one said what they were taking for their 1st shot. That’s why I asked Doug, if you don’t want to take the time to share information then fine. I have a family member who took the first round of meds in approx. 1997 which was three shots a week of interferon & Ribavarin. The Tx was unsuccessful and they are thinking of doing the Tx again. I am starting the process of educating myself about Tx options again so I can pass on the best information I can. We as a family have also learned not to take the Dr’s word as gospel. The first Dr. said the fam member would be dead in a year and they had no symptoms at all. Another said they would need a liver transplant within two years

Left side pain

Question:

Anybody ever experience pain on the left side of the body from Hep C prior to treatment?

Response:

Left side pain   Group: alt.support.hepatitis-c Date: Fri, Oct 28, 2005, 5:40pm (CDT-2) From: te…@earthlink.net (anonymousone) Anybody ever experience pain on the left side of the body from Hep C prior to treatment? /////////// I once had my entire left side blown off in an explosion but I’m all right now.   elmo http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum

Response:

Thanks Doc  Elmo. It good to know I have nothing to worry about

Response:

Yeh, he’s got a big bloody open pit on his side where Spunky used to live. He keeps Spunky in a rusting bird cage on his kitchen table and they sip green tea and beer together on Chinese New Year which for some reason happens bimonthly at Elmo’s house.  Spunky dances naked while Elmo keeps 16 Shell from a Thirty Odd Six by John Hammond  replaying on his old Walkman knockoff that he found trashdiving at the town dump with DAC.   doogie <elmoemer…@webtv.net> wrote in message

news:13384-43638B4A-589@storefull-3256.bay.webtv.net… – Hide quoted text — Show quoted text -> Left side pain > Group: alt.support.hepatitis-c Date: Fri, Oct 28, 2005, 5:40pm (CDT-2) > From: te…@earthlink.net (anonymousone) > Anybody ever experience pain on the left side of the body from Hep C > prior to treatment? > /////////// > I once had my entire left side blown off in an explosion but I’m all > right now. > elmo > http://community.webtv.net/elmoemerson/DocElmosHepFile > http://community.webtv.net/elmoemerson/TheFamilyAlbum

Response:

Re: Left side pain   Group: alt.support.hepatitis-c Date: Sat, Oct 29, 2005, 11:58am (CST-1) From: te…@earthlink.net (anonymousone) Thanks Doc Elmo. It good to know I have nothing to worry about ///////////// I didn’t say you don’t have anything to worry about.  :-)  Since your liver, gallbladder, and pancreas are on the other side, I’d think you could rule those out as the culprit.  Let’s see….what’s on the left side?  Hmmm….stomach, spleen, transverse and descending colon.  Ahhh, we might be onto something here.  Anyone check your spleen lately?  Is it enlarged?  How ’bout stomach?  What kind of pain is it?  Sharp, stabbing pain? Dull ache?  Burning pain?  Is your pain steady or intermittent?  Are you nauseated?  Had heartburn?  Black, tarry poopies?  Diarrhea?  Regular poops? Without the benefit of labs and an exam, I’ll have to pass on making a diagnosis.  :-)  Perhaps you should see a doctor and have him/her answer your question.  Hope you get it figured out and that it’s nothing serious.   Doc     http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum

Response:

ahahahahahaha!!!! ////////// Yeh, he’s got a big bloody open pit on his side where Spunky used to live. He keeps Spunky in a rusting bird cage on his kitchen table and they sip green tea and beer together on Chinese New Year which for some reason happens bimonthly at Elmo’s house. Spunky dances naked while Elmo keeps 16 Shell from a Thirty Odd Six by John Hammond replaying on his old Walkman knockoff that he found trashdiving at the town dump with DAC.

VX-950 Recent Clinical and Corporate Highlights

Question:

It’s interesting to note that the new drugs are being used in trials with interferon.  Ribavirin is the drug in present combo tx with the most debilitating side effects, as well.   elmo /////// I think you’re right. Interferon seems to be what provides the SVR. The antivirals by themselves just suppress the virus. In article <7360-43622021-…@storefull-3255.bay.webtv.net>, elmoemer…@webtv.net wrote:

Re: VX-950 Recent Clinical and Corporate Highlights Group: alt.support.hepatitis-c Date: Thu, Oct 27, 2005, 4:00pm (CDT-2) From: smith21…@hotmail.com (smith21…@msn.com) What is it with this Doom and Gloom. Hep -C is not a death sentence. If you read Thomas’s new post you will see that only 3 out of 100 will actually die because of the virus. Peg will soon go by the wayside sooner than later. Schering-Plough see’s the hand writing on the wall and are in heavy research to come up with their inhibitor. Next Month NM-283 as well as VX-950 will be the talk of the AALSD. ?????????????????????????????????????????????? ??????????Ron //////////// Yeah, and half the rest will die from other things caused by their hepc. LOL. Interferon will be around alot longer than ribavirin in the mix of combo drugs used for hepc. Year before last, it was Biln’s drug that was the talk of the town. elmo http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum

Response:

Re: VX-950 Recent Clinical and Corporate Highlights   Group: alt.support.hepatitis-c Date: Fri, Oct 28, 2005, 7:08am (CDT-2) From: smith21…@hotmail.com (smith21…@msn.com) You people that spout TX remind me of a group of junkies. I remember in the 60’s when so many of my friends started shooting dope and for some reason they were always trying to make me become one of them. There seemed to be this need for them to have everyone around them to be junkies so they could feel more secure. The difference here is you use the fear factor. A lot of people feel safer because everyone takes their shoes off before getting on a plane, not me it just smells bad.

the jerk

Question:

Re: the jerk TOUGH LOVE   Group: alt.support.hepatitis-c Date: Fri, Oct 14, 2005, 8:49pm (CDT-2) From: outri…@despammed.com burningdaylight wrote:

Hi Jerks Auntie, I just read all the cold replies to your post. Sometimes we open ourselves up for abuse. Ever hear of tough love? I bet everytime this little fucker needed help, money or bail the family was there for him, I bet that everyone in the family has had things missing but never confronted him about it. The better you treat this kid the more he walks over you, right? I had the same cranked up nephews. When we stopped helping one of them, he went for treatment. The other nephew that we kept helping is dead! Cut him loose! When he bottoms out, the only way is up. I’ve been there myself, I should know. Maybe you should try a substance abuse NG Sue He’s 48. But I thank you Sue. ; ) Women. When will we learn? ////////// Are you saying you’re weak because you’re a woman or are you just man bashing?   elmo http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum

Response:

burningdaylight wrote: > Hi Jerks Auntie, > I just read all the cold replies to your post. > Sometimes we open ourselves up for abuse.  Ever hear of tough love?  I bet > everytime this little fucker needed help, money or bail the family was > there for him, I bet that everyone in the family has had things missing > but never confronted him about it.  The better you treat this kid the more > he walks over you, right?  I had the same cranked up nephews. When we > stopped helping one of them, he went for treatment.  The other nephew that > we kept helping is dead! > Cut him loose! When he bottoms out, the only way is up. I’ve been there > myself, I should know. > Maybe you should try a substance abuse NG > Sue

I didn’t see the original post, just the cold replies.  Tough love is what is needed. But my first thought was why would any of you in this group would want to hurt this woman?  She was ranting, not at any of us, she was just getting this off her chest. I have see this type of reply before, is this the way you want to be treated? Thanks Sue, you were kind enough to reply with information and kindness.

Response:

Hi Jerks Auntie, I just read all the cold replies to your post. Sometimes we open ourselves up for abuse.  Ever hear of tough love?  I bet everytime this little fucker needed help, money or bail the family was there for him, I bet that everyone in the family has had things missing but never confronted him about it.  The better you treat this kid the more he walks over you, right?  I had the same cranked up nephews. When we stopped helping one of them, he went for treatment.  The other nephew that we kept helping is dead! Cut him loose! When he bottoms out, the only way is up. I’ve been there myself, I should know.   Maybe you should try a substance abuse NG Sue

Response:

Re: the jerk   Group: alt.support.hepatitis-c Date: Fri, Oct 14, 2005, 11:48pm (CDT+5) From: waterspi…@moonshine.net (Waterspider) <outri…@despammed.com> wrote in message

news:1129326558.047293.192740@o13g2000cwo.googlegroups.com… Waterspider wrote: <outri…@despammed.com> wrote in message

news:1129266088.719180.208770@g14g2000cwa.googlegroups.com… Waterspider wrote:

<outri…@despammed.com> wrote … Hi You may have read my previous messages here. About my nephew. Who I wanted to donate my liver too. Who’s depression I worried about and lost sleep over. For whom I spent hours and hours and days researching treatments, and finding the latest studies, and thought of cheery little things to tell him (like he was really great on guitar). He was supposed to visit me this summer. I was very excited. I adore him like a son. He came out this way. Spent three weeks, e-mailed me a couple times, sending me pix of his great time a few hours away. Deflecting my suggestions for how we could get together (as I could see it was going to have to be me who made it happen). I cleaned; prepared my small apt for company, then when he couldn’t seem to settle on when he’d come (230 miles from were he was to me) I enquired about a bus ticket, a bed at the hostel there. (my budget). Then I get an e-mail and he’s back home, three thousand miles away. Sorry. He says. Now I know I can’t put this behaviour down to HCV. But there is no newsgroup for shithead nephews. And in some ways; I think this behaviour is the same that got him on drugs; which got him HCV. End rant. The aunt. Let me get this straight: your nephew (who is great on the guitar) has hep c, suffers from depression and has a drug history. You adore him. You wanted him to visit you. He didn’t, so now you no longer adore him but he’s a shithead. Sounds like he didn’t really want to make the visit, maybe you were pushing him into it. Sounds like you’re wallowing in self-pity. Get over it, get a life, get off his case. He’s got more to worry about than an aunt who wants to be a martyr. Waterspider Waterspider Oh and the liver? One of the reasons I wanted to see him so badly is because I was diagnosed with a pre-cancerous condition earlier that month. Of course, for him, that’s bad news because no one else in the family would even consider it. And of course, for me…well it’s bad news for me too. Sorry to hear about your precancerous condition, but that’s not your nephew’s fault either. Waterspider The point about my conditon is that it invalidates me from being a donor for him. You seem to have missed that. Nope, I didn’t miss it. I heard loud and clear that you’re a wonderful, giving, selfless saint of an aunt who spent countless hours on her unappreciative, thoughtless, drug-using shithead of a nephew. And, maybe you are and maybe he is, but because we’re just hearing your side of the story my instinct is to stick up for the person who isn’t here to defend himself, who likely doesn’t even know that he’s being slandered. And why are you posting this stuff on a hep c support group board? It’s hardly supportive of your nephew, the one with hep c. Waterspider /////////// I totally agree with you on this one, Spidey.  She should be writing Ann Landers instead.  Or Miss Manners.  LOL Elmo http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum

Response:

bitch, if hes a shooter, and thats your gripe – you are talking "at" the wrong group. You blame hcv on his shooting. And his shooting on hcv. Are you a blonde? ( bottle blondes will work for your case.) But him some new needles so maybe he wont infect anyone! Or tie him to an oak tree with a log-chain. Feed him dog food and water for 6 months. Horse whip the lad twice a month. And constantly remind him that the reason he has drugs available to him, is to proffit and fill some cocksuckers pockets. Its a money thing. And hes a junky in order to make some crooked motha fuckers wallet fat. Fuck n/a and a/a. Nothing works. the person has to control their mind. Dont feel like a drug is stronger. Thats what aint good. Teach a person they are stronger than a drink or drug. They have the ability if they first want change. I have counciled many people. Now stroll along.                                       R. E. Lee    

Response:

after thinking about your post for 12 more moments, I honestly feel you wanted to blame hcv. (out of ignorance, I hope.) Or more explicitly, you blame his actions on hcv infection. Do some research in the correct order. #1 does he need a pc. of your liver? #2 does he respect life and have desires to live a half-way decent life.  #3 is the fucker mentally imbalanced? #4 is he a crack head or oxy-king or drunk? And, how the fuck does this cat feel while boogieing all over this United States?            

Response:

Fuck the little bastard, I say!  ahahahahahahah!!!  Send him some chopped liver in a bag. elmo http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum

Response:

<elmoemer…@webtv.net> wrote > Fuck the little bastard, I say!

Wouldn’t that be incest? Cody

Response:

Re: the jerk   Group: alt.support.hepatitis-c Date: Fri, Oct 14, 2005, 3:28pm (CDT+7) From: nos…@nospam.comedunet (Michael

Contact Info for Russian NOV-205. Now in Collaboration with Medical University of South Carolina

Question:

FOR IMMEDIATE RELEASE NOVELOS THERAPEUTICS ANNOUNCES COLLABORATION WITH MEDICAL UNIVERSITY OF SOUTH CAROLINA NOV-205 is being developed to treat chronic hepatitis C in the U.S. NOV-205 is designed to act as a hepatoprotective agent with immunomodulating and antiviral activity. In Russian clinical studies, when used as mono-therapy for one month in hepatitis B and for two months in hepatitis C, NOV-205 has been shown to greatly reduce or eliminate viral loads and to vastly improve liver function relative to existing drugs on the market. COMPANY CONTACT Harry S. Palmin, President and Acting CEO Novelos Therapeutics, Inc. One Gateway Center, Ste. 504 Newton, MA 02458 Ph: 617-244-1616 ext. 11 Fax: 631-574-3130 Email: hpal…@novelos.com                                                  Ron

Response:

Email   hpal…@novelos.com

Response: